Cuiden a Maya

This popped up on Netflix when I was looking for something to watch, other than the brief synopsis I didn't know anything more. I live in Australia and had not heard about this case.

Wow... to say I was furious by the end is an understatement. I understand that the safety of a child is always paramount but the hospital and doctors not taking responsibility for their part in what happened is disgusting. I don't know how they sleep at night.

I feel terrible for the Kowalski family and any family that has had to deal with what is obviously a flawed system.

As a race we have come so far, but as human beings we lack the compassion necessary to elevate ourselves to the next level. The society we have created is now out of control and it seems that money and power are our driver.

There's a condition that has left your daughter crippled, you find a physician, who alleviates the ripples, it's a treatment of extremes, but it generates the means, leaves you happy and relieved, a little tickled. Alas remission takes you to emergency, where ignorance and blindness costs some fee, as your world is ripped and shattered, leaves you pulled apart and tattered, as authorities command, mandate, decree. The result destroys the lives it should protect, and incompetence has led to great neglect, hurdles layered to inflict, increasing pain and more conflict, turns out there's many who have had their lives all wrecked.

Powerful and moving and somewhat concerning.

I'll try to hold onto the belief that everyone in this scenario had the best interests of children at the heart in their positions. I'll try, although there's a huge conflict of interest issue that I'd like to see a second documentary tackle all in itself.

(The assessor also being part of the for-profit corporate care system that the referred children go into.)

But lets say that the care givers are there still to "do no harm" and were wanting the best for Maya. This documentary still poses the problem of what to do for "unicorn" illnesses. What to do when doctors from different establishments differ on diagnosis and treatment. Who gets to decide when there's not a widely established protocol?

And mainly, who gets the final decisions when it comes to health.

I'm not sure whose diagnosis and treatment are better, frankly, and will have to read more. Perhaps on that it was a toss up or even that the hospital involved was right.

However, when a hospital thinks parents seeking treatment for a child are wrong for following a doctors orders, there I can see what everyone else here is seeing. How would a mother or father know which doctor to trust? And why would they believe this group at the hospital when they've seen actual improvement before this that no one else got?

There had to be a better way to handle this.

There had to be a more HUMANE way to handle this.

There should be a less corporate, systemic way to handle this.

But unfortunately for some, the system overrules the carers and a few bad apples playing into that spoil it for the bunch.

As a CRPS II sufferer of over 13 years now I could tell within the first few minutes this is what Maya was suffering from. Unfortunately it is very often misdiagnosed and completely misunderstood by so called medical 'professionals'.

My heart breaks for Maya & her family. As an adult this disease is excruciating and a very hard journey to navigate. Children should NEVER have to experience this condition. Her Mother was a protective warrior advocate! Things should never be this hard. This documentary is a sad but very real insight into a rare complex disease & condition and how sufferers & families are treated, dismissed & often worse, not just in the US, but around the world!

May this much needed documentary shed light on this condition & others and may this family find some justice. This family will forever be in my families hearts & thoughts going forward. We believe you Maya.

As a social worker in the UK I can understand why there would be concern over a young child having large and Frequent doses of Ketamine but this decision did not stem from the mother, Ketamine was prescribed by a Doctor! Her mum was not obtaining or administering this drug illegally. Therefore, the hospitals argument over diagnosis and care should Have been between professionals. They should have come to an agreement on how best to treat Maya, including the parents in any decision making. The mum posed no threat to Maya in hospital, therefore, her Visitation rights should not have been stopped.