Paul Rybkin and Karen Rodas knew the challenges ahead of them when they discovered their baby had a rare genetic disorder - but they were ready to face them. The Saddlebrook, New Jersey, couple's 2-year-old daughter Madeline has autosomal recessive polycystic kidney disease (Arpkd). The disorder, which results in the deterioration of kidney and liver function, can be fatal. The couple's first child, Nathaniel, died from the same condition just 36 hours after his birth in 2012 - but it's not a "death sentence," Karen says. "The kidneys form large, water-filled cysts, and these cysts start to prevent the kidney from working normally,...
- 4/7/2016
- by Lindsay Kimble, @lekimble
- PEOPLE.com
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