A Tale of Three Encounters in One Day: Damian Milton
A Tale of Three Encounters in One Day: Damian Milton
Introduction
When trying to understand autism and autistic ways of being one will quickly
come across the controversies that exist between various “stakeholder” groups
and positionalities, with autistic voices often at odds with those of non-autistic
parents and practitioners. Once thought of as a rare disorder, the concept of autism
has expanded in recent decades to encompass a wider range of people. Much
academic work in this area along with practice models are dominated by a medi-
calised and psychological framing of “deficits” in one’s actions in the world and
interactions with others. Such a framing can lead to the stigmatising of autistic
people as less than fully “human” in their sense of self and membership of society,
rather than as ways of being. This framing has also led to autistic people being
“spoken for” instead of at the core of decision-making processes regarding autis-
tic people, as individuals and as a community.
    The subversion of autism as a construct by autistic activists and scholars can
be set against a backdrop however of cultural discrimination, stereotyping, and
othering. At its most violent, the “othering” of autistic people can lead to all kinds
of abuse, from subtle forms of “gaslighting” to blatant ableism and hate speech.
One can see these forms of abuse as being embedded within cultural expecta-
tions of normativity and resultant stigmatisation of those deemed outside of these
parameters. Living with the consequences of a stigmatised identity can lead to
alienation, social isolation, and a negative spiral of psycho-emotional disablism
(Milton & Moon, 2012), where social disablement infiltrates one’s psychological
and emotional well-being. Autistic people thus have to navigate social life, know-
ing (and in some cases not) that their ways of being are not accepted within the
realms of hegemonic normalcy, often resulting in attempts to mask one’s difficul-
ties that can further exhaustion as well as potentially impact their sense of self.
    Hate crimes both impact on the individual targeted as well as wider community
life (Sherry, 2003), as they indicate intolerance and a lack of safety for disabled
people, further spreading fear and othering. Hate crimes are often perpetrated
by strangers with no previous connection with their victims (McPhail, 2000),
which is suggestive of the act being perpetrated on the assumption of someone
being characterised by a stigmatised identity of a collective group. Upon being the
                                         Everyday ableism and hate speech  111
victim of a hate crime, however, autistic people may also be less willing to engage
with a complaint of criminality, especially if they have had negative encounters
with the criminal justice system in the past.
   Disablism can be said to refer to discriminatory, oppressive and abusive behav-
iour targeted at disabled people (Quarmby, 2008). Hate speech and hate crimes
can thus be seen as forms of disablism regularly encountered (Sherry, 2010). The
wider social victimisation of autistic people and those with learning disabilities
is well documented in research (Chakraborti, Garland, & Hardy, 2014; Emerson
& Hatton, 2008; Gravell, 2012). Richardson et al. (2016), through using a sur-
vey method as well as focus groups and interviews, looked into hate incidents
toward autistic people and those with learning disabilities, including wider forms
of victimisation. 46% of their sample had been victimised and many also talked
of historical abuse and bullying. National surveys such as by Emerson and Hatton
(2008) found a figure of 32%. In both these samples, those deemed more “able”
participants experienced more serious incidents of victimisation.
   The nature of such negative social experiences ranges from disapproving
stares to criminal assault, and Richardson et al. (2016) found that multiple inci-
dents of victimisation were common and often sustained over a period of time.
The most common age of instigators of abuse were teenagers (61%) with half of
the respondents saying that the perpetrator was known to them. Although “mate
crime” is not the main topic of this paper, bullying and victimisation by so-called
“friends” can be a common experience. In the accounts of victims and carers,
police were often said to be often unsympathetic and/or ineffective, whilst others
had much more positive accounts of responses by the police. Yet most incidents
were left unreported. In this research, family carers were also often “victims by
proxy” of such disablism. Richardson et al. (2016) found that through a history
of victimisation, it can lead to something of a self-fulfilling prophecy (Becker,
1963); of feeling that this is “just what happens” to autistic people and those with
learning disabilities; and as pointed out by Richardson et al. (2016), is likely to
lead to less reporting of incidents to authorities:
    Whether the incidents were serious and criminal or lower level, repetitive
    harassment, they all had a long lasting and powerful impact on the quality of
    life of the people concerned
                                                    (Richardson et al. 2016: 87).
Aut-ethnography
Although differing in one major respect from aut-ethnography, “aut-ethnogra-
phy” (Milton, 2014) is fundamentally the same in other respects, in the sense of
being a form of self-reflective qualitative method exploring personal experience
in relation to wider social theory and social issues. Whereas aut-ethnography
often seeks to construct a coherent narrative of self over time, an “aut-ethnog-
raphy” analyses snippets or fragments of experience and their relation to wider
socially situated contexts, yet without the constraint of telling a coherent story.
112  Damian Milton
This is to reflect my own fragmented and shifting “rhizomatic” sense of meaning-
making as an autistic person.
Fragment one
My son and I were walking to a train station. Usually a pleasurable activity, espe-
cially with the prospect of a train ride that my son tends to like. My son and I are
both autistic, yet he is also classified as having a severe learning disability. When
out for a walk something we sometimes do is hold each other by our little fin-
gers. This can be a surprisingly useful form of communication, such as applying the
smallest of pressure can indicate wanting to stop. Whilst merrily on our way I heard
a shout from behind: “Are you f***ing gay or something?” This remark angered
me for obvious reasons, yet being in an immediately compromising and stressful
situation, my abilities to process what to say was limited. I turned around to angrily
see three teenagers and somewhat shouted: “He is my son!” Upon reflection I am
not sure that this was necessarily the best choice of words, yet it seemed to create
enough dissonance for the teenagers to turn away and not engage further.
    This encounter illustrates the ways in which autistic behaviours are often
subjected to a hostile gaze  –  and in this case hate speech which read autistic
interactions as homosexual ones (themselves subject to hateful assumptions).
Homophobia was directed at us as autistic people because our relationship was
identified as non-normative. Such prejudice demonstrates the overlapping nature
of hate. The completely unprovoked hostility represented an attack on both my
son and me. Moreover, such utterances psychologically wound. Hate speech
harms its victims.
Fragment two
My son and I arrived for an appointment at a medical clinic. Although this clinic
should have had information at hand that both my son and I were autistic, what
we were to encounter would not be the most “autism-friendly.” Instead, it was a
disablist encounter. Upon arrival the receptionist was quite busy, and I kept turn-
ing around to see if my son was okay, as he was exploring the reception area and
there were automatic doors where he could easily go through them and potentially
                                          Everyday ableism and hate speech  113
get himself into danger. When I did try and converse with the receptionist, they
remarked: “It helps if you keep eye contact when talking to someone.” I was imme-
diately flabbergasted, but somehow explained how my son was autistic and I needed
to keep an eye on him. I did not disclose at that moment that I was also autistic.
    This disablist policing of social interactions (accompanied by judgmental and
critical comments) is common for autistic people. It is a form of discipline, a
reminder that autistics are constantly judged and criticised by people who are
non-autistic and have no interest in accepting different forms of human interac-
tion. Again, the critical gaze of disablism takes an emotional toll – it is a form of
psycho-emotional disablism that wears autistic people down, a reminder that the
social environment is hostile in many ways. Coming on top of the previous hate
speech, the effect of such disablism is to demean and belittle.
    But as the previous fragment also illustrated, autistic people demonstrate resist-
ance to this oppression. Upon sitting in the reception area, I noticed my heartbeat
was very high and that I was highly stressed, something that I generally need to
keep to a minimum to minimise other unwanted adverse events potentially hap-
pening. Thankfully, I noticed that the clinic was undergoing a review and there
were feedback cards to fill in. Doing this about what had just happened managed
to bring my stress down somewhat.
Fragment three
My son and I had just boarded our train to return home and found seats. Suddenly
there was a loud banging at the train window, and a fairly young drunken man
holding a beer can shouted “F***ing weirdos!” before stumbling away again.
Again, disablist hate speech was directed at us as two autistic people in an unpro-
voked and unexpected context. The element of surprise – as well as the fact that
they were outside the train – limited any opportunity to respond. The insult – weir-
dos – is not just a generic slur. In this context, it is disability hate speech. It is
symbolic violence aimed at diminishing our sense of human dignity. Like other
forms of hate speech, it involves a wound that strikes deep.
   Such an encounter on its own would potentially be enough to send me into
something of a panic attack, let alone after the other events that had previously
happened that day, yet I had to hold things together for the sake of my son’s
safety. Needless to say, I was more than relieved when we did eventually return
home. The broader social environment, filled with disablism and disability hate
speech, offered terror rather than inclusion and victimisation rather than safety.
   Nobody else on the train or the train platform reacted to this event at all in any
way that I could see.
References
Becker, H. (1963). Outsiders: studies in the sociology of deviance. New York: The Free
   Press.
                                             Everyday ableism and hate speech  115
Chakraborti, N., Garland, J., & Hardy, S. J. (2014). The Leicester hate crime project:
   Briefing Papers, No. 1: Disablist hate crime. Leicester: University of Leicester.
Emerson, E., & Hatton, C. (2008). People with learning disabilities in England. Lancaster:
   Lancaster University.
Gravell, C. (2012). Loneliness and cruelty: People with learning disabilities and their
   experience of harassment, abuse and related crime in the community. London: Lemos
   and Crane.
McPhail, B. A. (2000). Hating hate: Implications of hate crime legislation. Social Service
   Review, 74(4), 635–653.
Milton, D. (2014). Becoming autistic: An aut-ethnography. Cutting Edge Psychiatry in
   Practice, 4, 185–192.
Milton, D., & Moon, L. (2012). “And that, Damian, is what I call life-changing”: Findings
   from an action research project involving autistic adults in an on-line sociology study
   group. Good Autism Practice, 13(2), 32–39.
Quarmby, K. (2008). Getting away with murder: Disabled people’s experiences of hate
   crime in the UK. London: Scope.
Richardson, L., Beadle-Brown, J., Bradshaw, J., Guest, C., Malovic, A., & Himmerich,
   J. (2016). “I felt that I deserved it” – Experiences and implications of disability hate
   crime. Tizard Learning Disability Review, 21(2), 80–88.
Scior, K., & Werner, S. (2015). Changing attitudes to learning disability: A review of the
   evidence. London: Mencap.
Sherry, M. (2003). Don’t ask, tell or respond: Silent acceptance of disability hate crimes.
   Hamilton, ON: Disabled Women’s Network Ontario.
Sherry, M. (2010). Disability hate crimes: Does anyone really hate disabled people?
   Surrey: Ashgate.