CARER’S CONCERNS QUALITY OF LIFE QUESTIONNAIRE (CC-QoLS)
Authors: Dr Gemma Unwin, PhD, Research Fellow, School of Psychology, University of Birmingham, UK (g.l.unwin@bham.ac.uk)
and Professor Shoumitro (Shoumi) Deb, MBBS, FRCPsych, MD, Visiting Clinical Professor of Neuropsychiatry, Faculty of Medicine,
Department of Brain Sciences, Imperial College London, UK (s.deb@imperial.ac.uk).
Reference: Unwin G. & Deb S. (2014) Caregiver's Concerns-Quality of Life Scale (CC-QoLS): development and evaluation of
psychometric properties. Research in Developmental Disabilities, 35, 2329-2340. http://dx.doi.org/10.1016/j.ridd.2014.05.018.
Person’s ID: ………………………………. Date: ……………………………… Rater’s ID: ………………………………
Carer’s Concern
Are you concerned about [name of the person you are caring for]’s?
Not Mildly Moderately Very Seriously
Concerned Concerned Concerned Concerned Concerned
His/her physical health
His/her mental health
His/her self esteem
His/her aggression
Missing work/school/day care
Risk of accident
His/her future
Lack of services
Total column score
Total
Quality of Life
How would you rate [name of the person you are caring for]’s?
Very good Good Satisfactory Poor Very Poor
Relationships with others (within home)
Relationships with others (outside home)
Leisure and recreation opportunities
Communication skills (within home)
Communication skills (outside home)
Self-care skills
Mobility
Access to community facilities
Total column score
Total
Scoring
Carer’s Concern : Not concerned = score 4 Quality of Life: Very good = 4
Mildly concerned = score 3 Good = 3
Moderately concerned = score 2 Satisfactory = 2
Very concerned = score 1 Poor = 1
Seriously concerned = score 0 Very poor = 0
The total for each subscale is calculated by summing the responses for each of the eight items in each subscale
separately.
©University of Birmingham, UK, June 2020. This Scale and any adaptation or translation of the Scale cannot be used
for any commercial purpose. This should be made freely available for non-profit making purposes such as research,
teaching, training and clinical use and the full author affiliation should be mentioned at the top.
