Unit 18
Unit 18
Structure
18.1 Introduction
18.2 Cerebral Palsy Definition and Nature?
18.2.2 Effects of Cerebral Palsy
18.3 Types of Cerebral Palsy
18.3.1 Spasticity (Stiff and Difficult Movements)
18.3.2 Athetosis (Involuntary and Uncontrolled Movements)
18.3.3 Ataxia (Unsteady and Shaky Movements)
18.3.4 Mixed Type
18.4 Causes of Cerebral Palsy
18.4.1 Causes before Birth
18.4.2 Causes during Birth
18.4.3 Causes after Birth
18.5 Screening and Early Detection of Cerebral Palsy
18.6 Early Signs of Cerebral Palsy
18.7 Early Intervention for a Child with Cerebral Palsy
18.8 Let Us Sum Up
18.9 Answers to Check Your Progress Exercises
18.10 Some Common Questions Asked by Parents
18.1 INTRODUCTION
Example 1
When I gave birth to Radha, I felt wonderful at having become a mother.
Radha was a weak and premature baby. I had difficulty in feeding Radha
since she could not suck properly, but I managed somehow. The pediatrician
who saw my daughter said that her brain might have been affected during the
process of being born, and that she might have problems in movement. I
wondered what kind of movement problems she might have.
When Radha was ten months old, we went back to the hospital for a follow-
up and were told that Radha has cerebral palsy. I could not understand what
it meant. I had so many things to ask, but my first question was: “What is
cerebral palsy?”
The doctor shared information about the condition and referred us to
organizations that helped us to learn how to enhance Radha’s abilities.
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Locomotor Disability Gradually, though her development was slower as compared to other
children, Radha started showing improvement. At present, she has not started
walking, but is able to stand on her own for a few seconds.
Radha is now four years old and these last three years have been very
challenging but fulfilling years in our lives.
Objectives
After studying this Unit, you will be able to:
This damage occurs when the child’s brain is still developing (before, during
or after birth in the very early years of life). The damage causedto the brain
will not get worse or increase with time; in other words, the damage is non-
progressive. The damage is irreversible as the damaged parts of the brain
cannot recover (scientific advancement may change this state of
affairs).Thesymptoms may change over time – these may get better or worse
depending upon the type of intervention and support the child receives.
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Cerebral Palsy
(a) (b)
Fig. 18.1 (a) & (b): Some children with cerebral palsy
No two children with cerebral palsy are alike. Some children with
cerebral palsy are only mildly affected while others may be more
severely affected.
As per the Rights of Person’s with Disabilities Act 2016, “cerebral palsy”
means a group of non-progressive neurological condition affecting body
movements and muscle coordination, caused by damage to one or more
specific areas of the brain, usually occurring before, during or shortly after
birth’.
Sometimes, the damage may affect other parts of the brain also, apart
from the parts concerned with movement. In such a case, besides
movement, coordination and posture, other areas of development such as
vision, hearing, speech and learning may also be affected. Thus, the child
may have difficulty in communicating and speaking; seeing or hearing;
understanding, thinking and remembering; forming relationships with people,
if the parts of the brain concerned with these areas of development are also
damaged. Thus, children with cerebral palsy may have multiple
disabilities. Thus, cerebral palsy may also occur along with other
conditions like intellectual disability, autism, epilepsy, impairment in
vision, hearing or perception.
Depending on the area of the brain that is damaged and the extent of
damage, some of the following features may be present in a child with
cerebral palsy:
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ACID Attack Victims Lack of proper muscle tone, which causes difficulty in movement
Inappropriate reflexes
Delayed gross and fine motor milestones
Difficulty in coordinating movements
Slow movement, leading to longer time to complete a task
Involuntary movements
Inappropriate body posture
Difficulty in balancing
Breathing difficulties
Perceptual difficulties
Difficulties in feeding, dressing and other self-care activities
Poor bladder control (i.e., poor control over urination)
Epilepsy (fits)
Difficulties in seeing/hearing/talking
Difficulties in speech and communication
Difficulties in understanding, thinking and remembering (cognitive
difficulties)
Social and emotional difficulties
Fig. 18.2 (a) &(b): Some children with cerebral palsy may be able to more around with
the help of tetrapods, calipers, rollators and wheelchairs while others may be able to
walk independently
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Check Your Progress Exercise 1 Cerebral Palsy
When diagnosing which kind (or type) of cerebral palsy a child has, youhave
to consider two aspects:
When the lower limbs are mostly affected, it is called diplegia; A young 435
ACID Attack Victims child with diplegia may also show some stiffness in her arms and trunk, but
these parts will be much less affected.
When one entire side of the body is affected (upper and lower limbs on one
side), it is called hemiplegia.
Fig. 18.3: Types of cerebral palsy on the basis of the parts of the body affected
Depending upon the type of muscle tone, cerebral palsy can be classified
into four types. These are:
spasticity
athetosis
ataxia
mixed
Before describing the features of each of these types of cerebral palsy, let us
first understand what is ‘muscle tone’.
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Let us read about the features of each of the four types of cerebral palsy. Cerebral Palsy
a) Severe Spasticity
When a child has severe spasticity, the muscles are very tight and
hypertonic. There is resistance to moving the child’s limb in any direction.
This leads to the following characteristics.
Fig. 18.4(a): The child without Fig. 18.4(b): The child with
disability adapts his body to cerebral palsy becomes stiff
that of his mother when he like a board and does not
is picked up adapt his body to that of his
mother. His body is totally
extended, causing difficulty in
handling
When a child with severe spasticity tries to move, or when she is handled
and moved by others, she can become very flexed (bent) or very
extended (very rigidly straight). The child may suddenly stiffen like a
wooden board, so that it seems one will not be able to carry or hold her.
Because of this, the child is not able to adjust her body to that of the
caregiver, like other children do, when they are picked or handled. See
Figs. 4(a) & 4(b). While sitting she has a stiff and extended posture.
A child with spasticity will find it difficult to initiate movement since her
muscles are tight. She is able to make limited movements only. The
muscles of a child with spasticity become overactive when she tries to
use them and so the child is not able to make the movement freely. The
more the child attempts to make the movement and becomes conscious
of it, the more the stiffness increases. When the child makes an effort to
move one part of the body, the tone in another part of the body increases.
Often, this stiffness increases when the child is upset, excited or is in 437
ACID Attack Victims certain positions. Thus, the child’s movements are slow, uncoordinated,
stiff and laboured.
The typical posture that a child with severe spasticity adopts when lying on
the bed, on the back, is shown in the Figs. 5 (a), (b), (c) & (d).
Fig. 18.5: The child with severe spasticity assumes these postures when laid on the back
When the child is put on the stomach, she adopts the following position, as
shown in Fig. 6.
When you try to make the child stand, her legs stiffen or cross at the knees as
shown in Fig. 7. This is also called scissoring of the legs.
Fig. 18.7: Scissoring of legs when the child with spasticity stands up or walks
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b) Moderate Spasticity Cerebral Palsy
A child with moderate spasticity has a changeable muscle tone. Thus, the
muscle tone may be relatively normal at rest and becomes high or very high
with stimulation or when the child makes an effort, or when she speaks or
experiences a strong emotion like fear. A child with moderate spasticity will
be able to move about and be able to do something for herself but the pattern
of movement may be abnormal and she will be putting in quite a bit of an
effort to do so. See Figs. 8 (a) & (b).
(a) (b)
Fig. 18.8(a) & (b): A child with moderate spasticity can move with abnormal pattern
with lot of effort
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ACID Attack Victims
Fig. 18.9 (a): Poor balance, asymmetrical body position and involuntary movements in
a child with athetosis
The child with athetosis is not able to carry out a movement smoothly.
For example, to pick up a glass from a table, you have to move your arm
smoothly towards it. However, a child with athetosis may show slow and
wriggly movement of the hand and then suddenly that movement may
become very fast and quick. She can move from full flexion (bending) in a
joint to full extension (stretching) very suddenly. Due to this sudden change
of movement, the body part may move too fast, too far. Thus, the person may
become stuck in extreme positions and must wait for sometime before she
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can move out of that position. In other words, there is lack of grading of Cerebral Palsy
movement – the movement does not gradually change from slow to fast;
instead the change is sudden.
The child also has inadequate balance and protective responses, which
can lead to a tendency to fall. A typical standing posture of a child with
involuntary movements and intermittent spasms, is shown in Fig. 10. To
compensate for her lack of postural control and lack of stability, she often
‘fixes’ herself by clasping her hands together and ‘gripping’ with her toes to
prevent herself from falling backwards.
Fig. 18.10: A child with athetoid cerebral palsy finds it difficult to balance himself
Children with athetosis have higher probability of hearing loss as compared to children
with other types of cerebral palsy.
Fig. 18.11: To keep his balance, the child with ataxia walks bent forward with feet wide
a part. He takes irregular steps.
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ACID Attack Victims When the child tries to hold a small object such as a pen, her hands shake -
like a tremor you might have seen in an old person. The child also has
inadequate balance reactions, slow or delayed protective responses and
poor grading of movement. Children with ataxia have a higher chance of
visual problems (such as squint) as compared to children with other
types of cerebral palsy.
For example, if a child has both spastic and athetoid cerebral palsy, then
some of the muscles may have stiffness and some may have involuntary
movements. Usually, the spastic cerebral palsy is more obvious at first than
the involuntary movements. Mixed type of cerebral palsy reflects damage in
more than one area of the brain. Loss of hearing, visual problems and
difficulties in eating and speech often accompanythis type of cerebral
palsy.
Check Your Progress Exercise 2
1) State whether the following statements are correct of incorrect.
a) ‘Hypertonia’ is a condition when the muscles become too stiff or
tight. ()
b) A person who has uncontrolled movements of the legs, arms, hands
etc. is said to have spasticity. ()
c) The amount of tension or resistance to the movement in a muscle is
called muscle tone. ()
d) A child with moderate spasticity has hypertonia. ()
e) When a child has ataxia, the two halves of the body show
asymmetry. ()
2) What are the different types of cerebral palsy?
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3) What are the features and characteristics of different types of cerebral
palsy?
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4) i) Spasticity Cerebral Palsy
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ii) Athetosis
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iii) Ataxia
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iv) Mixed type
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Achieving and maintaining blood glucose levels should be the main goal
in any case.
Prevention
a) Lack of oxygen to the brain (asphyxia) during the time of birth: This
is one of the significant factors responsible for cerebral palsy during
the birth process and it usually occurs due to medical negligence.
You have already read in the earlier section that low levels of oxygen in
the mother’s blood affect the development of the brain of the foetus.
Continuous supply of oxygen is required to keep the cells alive. When
the baby is in the womb, this continuous supply of oxygen is maintained
through the mother’s blood. As soon as the baby is delivered and the
umbilical cord is cut, this supply of oxygen through the mother’s blood
is cut and now the baby has to learn to breathe. The process of crying,
also known as the ‘birth cry’, results in a sudden intake of the life-giving
breath of air. In case the baby fails to breathe soon after birth or has
a feeble birth cry, it leads to a lack of oxygen to the body, which can
cause brain damage. Blue skin or blue colour at the extremities of the
body indicate lack of oxygen and requires immediate medical care.
Prolonged labour, the twisting of the umbilical cord around the baby’s
neck or improper positioning of the baby in the womb are some other
situations which reduce the oxygen supply to the child’s brain, thereby
leading to cerebral palsy. Immediate medical help and sustained effort
by the doctors present during delivery can prevent asphyxia by
restoring normal breathing.
b) Injuries to the brain at the time of birth: Brain damage can also be a
result of birth injury caused by negligence or lack of training or
446 inexperience of the doctor or dai (mid-wife) during delivery. Injury
can also be caused due to the improper use of forceps during delivery. If Cerebral Palsy
the head of the baby is pressed too much or is pushed out of shape in the
process of delivery, it can cause brain damage. To prevent such
situations, always have the delivery conducted at the hospital. If the
delivery is conducted at home, then a well-trained dai /midwife
should be present.
Prevention
— make sure that the child cries immediately after birth, as that is the first
breathing by the child.
a) Infections of the brain and spinal cord: Brain and spinal cord are quite
resistant to infection; however, once infection sets in, it can result in
serious complications. Meningitis (inflammation of the covering of the
brain called meninges) and encephalitis (inflammation of the brain
itself) can cause brain damage, if left untreated. High fever, headache,
sore throat, stiff neck and vomiting are some of the early symptoms of
meningitis. An adult may become desperately ill within 24 hours and the
symptoms can progress to coma and finally death. In children up to two
years of age, meningitis usually causes fever, feeding problems,
vomiting, seizures and irritability. The skin over the fontanelles (the soft
spots between the skull bones) becomes taut / stretched and it may even
bulge. However, children under one year may not develop a stiff neck. If
you notice all these symptoms, take the child immediately to the
doctor. It is an emergency situation and can cause permanent damage
within hours. Vaccination is a good measure to prevent childhood
meningitis.
Apart from infections, very high fever especially if associated with
seizures, can also cause brain damage and impairment, leading to
cerebral palsy.
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ACID Attack Victims Severe jaundice, very low glucose levels, metabolic disorders and
accumulation of fluid in the brain (hydrocephalous) can also cause
cerebral palsy.
b) Brain tumors: A brain tumor is a swelling caused by an overgrowth of
brain tissue. This overgrowth may grow slowly or rapidly and it damages
the healthy brain tissue. The common symptoms which indicate brain
tumors are seizures, poor coordination, headache (particularly early in
the morning), unclear speech, dizziness, increased head size in case of
infants, and sudden change in vision or sense of smell. Many a times,
these early warning signs are neglected. If you notice any such
symptoms in the child, get medical attention immediately.
c) Accidents leading to head injury: Children can get injured easily if the
environment is not safe. One needs to consciously avoid unsafe
environment. Playing near water tanks, factory areas and open drains can
be dangerous and can cause injuries and accidents. Drowning, gas
poisoning, injuries and insecticides can hamper the development of the
brain, leading to brain damage. If an accident occurs, avoid panic, give
first-aid immediately and go to the doctor.
Prevention
Awareness among the public with regard to causes and prevention of cerebral
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palsy will certainly help. Cerebral Palsy
Often, it is the parents who first notice that there is something wrong with
their child. The child’s inability to lift her hands or the stiffness of her
muscles, difficulty in sucking, delayed milestones of physical and motor
development (such as inability to hold/support the head by 3 months of age)
may indicate that the child is not growing as she should.
On the other hand, many parents may not notice anything unusual about their
child, especially when the degree of impairment or disability is mild or is
restricted to a part of the body which is not used much during infancy.
Therefore, they do not seek medical advice and so no intervention is provided
to the child. This period of ‘lag’ or ‘no intervention’ may prove to be
damaging to the child and lead to irreversible complications later on, as the
following case study brings out.
Example 2
of walking was unusual. His mother thought that perhaps Nalin liked walking
like this. He did not talk much and his mother thought that this was so
because he was a shy child. Nalin started going to school when he was 4
years old. The teacher in the school noticed that his manner of walking and
lack of speech made it difficult for him/her to participate in school activities.
She asked his mother to see a child specialist for guidance. This detection
and assessment, which was done when the child was four years of age, could
have been done much earlier in the child’s life, so that corrective measures
couldhave been taken early.
Screening is the first level of assessment carried out with the specific
purpose of early identification of disability so that you as a
parent/teacher/community worker can take the child to the concerned
specialist and provide appropriate help as early as possible. Screening does
not tell you the details of the disability- it simply helps you to know
whether a child may have a certain disability, developmental delay or
atypical behaviour.
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ACID Attack Victims
18.6 EARLY SIGNS FOR CEREBRAL PALSY
The early signs of stiffness or floppiness may be noticeable soon after birth.
Other signs may take several months before they become obvious. To be
sure the child has cerebral palsy, take her to a doctor. The following signs
are of concern if they are seen most of the time. Not every child will show
allof these signs.
Floppiness
The baby’s head flops and
she cannot lift it. Her
hands and legs hang down
when she is held in the
air.
The baby moves too little.
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Cerebral Palsy
Thus, the child with cerebral palsy may not be able to hold her head steady
by 3-4 months of age, which is usually the time when most children gain
head control. She may not be able to sit independently by 8-9 months, which
is usually the time when most children are able to sit without support. Or, she
may not be able to speak words even though she is 1½ and 2 years of age.
Children with delayed milestones, who are slow to sit, stand or move around
in comparison to other children of their age, need training to learn these
skills. The earlier the training is provided, more effective it is likely to be.
Anu’s parents, who themselves are well-educated, had given up all hopes
about her after trying all kinds of treatments given by local healers. They had
approached them even after consultation with a doctor. It was after a close
friend urged them to admit her in a school, that they decided to do so. Within
one year the girl showed remarkable improvement.
Depending upon the types and the extent of disabilities you would need to
Help the child learn to move around independently or with some suitable
mechanical support.
Enable the child to look after herself - for example, be able to go to the
toilet, wear clothes, eat and drink.
Train her to communicate.
Help her to be as normal as possible in her appearance.
Assist the child in developing relationships with others.
454 Educate her, in keeping with the level of her intellectual functioning.
Of course, you would not be able to manage all this by yourself. The early Cerebral Palsy
training and stimulation should concentrate on increasing muscle
strength and dexterity of different body parts. The idea is to make the
child as self sufficient as possible. This training will need to be provided
under the guidance of a ‘physiotherapist’ who is specifically trained to help
the child improve her motor coordination. Help the parents contact the
Primary Health Centre (PHC)/health worker/hospital to find out about
physiotherapy. Carrying out physical exercise without the guidance of a
physiotherapist can cause damage to the child.
Besides exercises to improve movements and coordination between different
parts of the body, the child may also need training in speech, if this is
affected. For this, they would need to get in touch with a speech therapist. If
the parents are taking the child to a speech therapist or physiotherapist,
then they must carry out the exercises with the child at home.
Maintaining a regularity in the exercises is necessary - only then will the
child benefit from them.
The child may need to be provided with appliances or may have to undergo
surgery to enable her to walk. Medicines would be needed to control fits.
This means that you would need to refer the child to a hospital where these
services are available. Find out where these are available nearest to the child's
area.
While seeking the help of professionals for speech and mobility training is
important, do not forget the role of the parents. They are the ones who are
with the child for most of the day. Their attitude will have a crucial role in
determining how far the child is able to overcome limitations of her
disability.
Help the parents to understand cerebral palsy — they may not have seen
a child with this condition before. Explain to them how it affects mobility or
intellectual functioning or speech. They have to be trained in how to help the
child become independent in her activities. In fact, before the child is old
enough to join preschool, it is the parents who would have a major role in
training her.
What about the education of child with cerebral palsy? What sort of activities
can you organize for such a child in your early childhood care and education
centre? While planning for the child's activities at the preschool centre you
would need to keep some factors in mind.
As you have read, a child with cerebral palsy may have severe motor
handicap, yet she might be above average in intellectual functioning.
Similarly, she may have mild physical problems but moderate intellectual
disability. The intellectual functioning is not related to the level of physical
limitation. Therefore, the type of activities you plan for the child will have
to be in keeping with her levels of both intellectual and physical
functioning. See what the child is able to do and build upon that. The goals
that you would keep for this child would be different from what you would
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ACID Attack Victims expect of the rest of the children at your centre.
If the child does not suffer from intellectual disability, then she can
participate in the same activities as her peers - of course, within the limitation
of the physical handicap. The extent of the child's physical handicap would
affect the type of activities you can plan for her. A child with severe physical
problems will not be able to participate in outdoor activities with other
children. But remember that she would like to see the others playing. Do not
isolate her just because she cannot herself move up to the swing. You can
carry her there and help her to enjoy the swinging motion of the swing. Be
patient if the child takes longer to complete her painting or is not able to sing
the rhyme in tune with others.
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Cerebral Palsy
18.8 LET US SUM UP
In this Unit you have gained a basic understanding regarding the nature
of cerebral palsy. Cerebral palsy occurs due to damage that part of the
brain that is concerned with movement (motor area).
Various factors before, during and after birth can cause cerebral palsy.
Many of these factors are preventable.
Sometimes the damage affects other areas of the brain concerned with
vision, hearing, speech, or learning. Therefore, the child may have
difficulties in these aspects of development. Thus visual hearing,
learning or communication difficulties may accompany cerebral palsy.
Cerebral palsy may also be associated with other conditions like mental
retardation, autism or epilepsy.
Depending upon how the muscle tone has been affected due to damage
to the motor area of the brain, a child may have one of the four kinds of
cerebral palsy – spasticity, athetosis, ataxic and mixed.
Fig.18.12 : When family members spend time with the child, it helps the child to feel
loved and foster his all round development
Early identification can be done through ‘screening’. Screening is a
process which helps us determine whether there is delay or disability in
the child. It can be done at various stages – before birth, during birth and
after birth.
Screening after birth is done by comparing the child’s growth pattern
with the developmental milestones.
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ACID Attack Victims While observing the child for screening, observe her in her routine day to
day activities.
If the training and treatment are begun early, the child can show
tremendous improvement.
The early training and stimulation should concentrate on increasing
muscle strength and dexterity of different body parts.
The role of the parents is most important, their attitude determines how
far the child is able to overcome limitations of her disability.
Since the intellectual functioning is not related to the level of physical
limitation, the type of activities you plan for the child will have to be in
keeping with her levels of both intellectual and physical functioning.
It is important that a child with cerebral palsy goes to a regular school
along with other children. Only if the child’s mental and physical
handicap are such that she cannot benefit from attending a regular
preschool, should she be put in a special school.
Remember
Children with cerebral palsy have the same basic needs as other children, i.e.,
the need for love, security, fun, encouragement and opportunities to
experience and learn. Like other children, they have their own unique
personalities, specific strengths and limitations.
Apgar Score
This test is done on the newborn twice – once at 1 minute after birth and
again at 5 minutes after birth. If there are serious problems with the baby’s
condition, and the first two scores are low, then the test is done for a third
time 10 minutes after birth, but this happens rarely. The five factors listed
below are assessed in order to evaluate the child’s condition and scores are
given as explained below. Each factor is scored on a scale of 0-2 based on the
following guidelines -
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