0% found this document useful (0 votes)
4 views20 pages

Ethics Guide

The guide provides researchers with ethical principles and practices for conducting research within LGBT communities, emphasizing the importance of integrity, informed consent, confidentiality, voluntary participation, and harm avoidance. It includes specific questions and considerations tailored to LGBT research to ensure respectful and effective engagement with participants. Researchers are encouraged to familiarize themselves with the communities they study and to prioritize the well-being and rights of their participants throughout the research process.

Uploaded by

fetowe6887
Copyright
© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
Available Formats
Download as PDF, TXT or read online on Scribd
0% found this document useful (0 votes)
4 views20 pages

Ethics Guide

The guide provides researchers with ethical principles and practices for conducting research within LGBT communities, emphasizing the importance of integrity, informed consent, confidentiality, voluntary participation, and harm avoidance. It includes specific questions and considerations tailored to LGBT research to ensure respectful and effective engagement with participants. Researchers are encouraged to familiarize themselves with the communities they study and to prioritize the well-being and rights of their participants throughout the research process.

Uploaded by

fetowe6887
Copyright
© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
Available Formats
Download as PDF, TXT or read online on Scribd
You are on page 1/ 20

Ethical research: good

practice guide to
researching LGBT
communities and issues

LGBT Foundation
Purpose of this Guide

This document aims to aid researchers in identifying, understanding and resolving


ethical issues at all stages of the research process, with added focus on how these
issues might apply to work with lesbian, gay, bisexual and trans (LGBT)
communities. It draws on the ethical principles set out by the Economic and Social
Research Council (ESRC) Framework for Research Ethics (2015). The guide
consists of five sections each covering a key principle of ethical research practice.
Each section covers relevant questions that researchers should be asking
themselves when carrying out their work. Where appropriate, additional information
on how each question might apply to LGBT research has been included.

Using the Guide

The guide is designed to comprehensively cover a range of ethical questions that


might arise while conducting research, so a contents page has been included
overleaf to enable you to quickly locate specific issues. If you don’t have a lot of
experience with research ethics, it is recommended that you read the guide in its
entirety.

1
Contents

Principle 1: Integrity and Quality

1.1: Are my research questions worth asking and what do they add to existing
knowledge? 4
1.2: Do I have a good knowledge of the community I intend to work with? 4
1.3: Are the methods I intend to use appropriate for the research I am conducting?
5
1.4: Am I confident that I have the necessary skills for this piece of research? 5
1.5: If the research is funded, what are the expectations of the funder?
5
Principle 2: Fully Informing Researchers and Participants
2.1: How informed and aware are the research staff? 7
2.2: How can I fully inform participants about my research topic? 7
2.3: How might other factors affect my ability to fully inform participants? 8
2.4: If the research is funded, what implications might this have for informing
participants? 9

Principle 3: Confidentiality and Anonymity


3.1: Are the researchers properly briefed on confidentiality and anonymity? 10
3.2: What steps can I take to ensure confidentiality and anonymity? 10
3.3: How might my research topic affect confidentiality and anonymity? 10
3.4: How might my research methods affect confidentiality and anonymity? 11
3.5: What other factors might affect my ability to preserve confidentiality and
anonymity? 11
3.6: How do I intend to store the data? 12
3.7: How can I ensure confidentiality and anonymity in funded research? 12

Principle 4: Voluntary Participation, Free from Coercion


4.1: How can I ensure that participants are able to give informed consent? 14

2
4.2: Do I know how to obtain informed consent from children and other vulnerable
people? 14
4.3: How do I avoid coercion? 14
4.4: Should I allow participants to withdraw their consent? 15
4.5: How do I obtain proof of consent? 15
4.6: Am I aware of when it might be inappropriate to seek proof of consent? 16

Principle 5: Avoiding Harm


5.1: What sensitivities are involved in my research? 17
5.2: What can I do to help preserve the wellbeing of those participating in sensitive
research? 17
5.3: What can I do to help preserve the wellbeing of those conducting the research?
18
5.4: How can I avoid harm with respect to the methods I am using? 18
5.5: How can I avoid harm with respect to funded research? 18

Further Information 19

3
Principle 1: Integrity and Quality

Ensuring that your work is of a good standard should be a priority for any researcher,
but it should be regarded as an ethical concern as well. People give their time and
energy to participate in research, so to produce something which lacks integrity,
quality or impact would be a waste of this input. Researchers are encouraged to ask
themselves the following questions:

1.1: Are my research questions worth asking and what do they add to existing
knowledge?

What does your research hope to achieve and what impact will it have? Look into
previous research surrounding the topic you hope to investigate and identify what is
and is not known already. Make a commitment to avoid using the time and input
given to you by participants on questions that have already been answered. Design
your research questions with the aim of contributing new knowledge to the field.

Application to LGBT Research: This initial consideration is an important one for


work with LGBT communities, who are not always strongly represented in existing
research. In many ways, this is a good opportunity for researchers, who may have
identified research areas where LGBT people are barely represented at all. In such
cases, try to ensure that your LGBT participants are at the centre of the research you
are conducting. Think about the impact of your research and how any new
knowledge your research provides could benefit the community. In relating your
findings, ensure that you are amplifying the voices of your LGBT participants, rather
than trying to speak for them.

1.2: Do I have a good knowledge of the community I intend to work with?

If you intend to conduct research with a particular community, it is important that you
have a good understanding of said community from the outset. This will help to
ensure that your research is designed with respect for your participants in mind, that
your interactions with participants are sensitive and appropriate and that the findings
you generate can more accurately represent the community you are working with. If
you are uncertain, it is recommended that you seek out relevant resources and
information about the community you are researching before beginning your work.

Application to LGBT Research: If, for example, you wish to conduct research with
members of the trans community, ask yourself how well you understand trans
identities and issues. Try and familiarise yourself with the full spectrum of gender
identity, the social and political issues affecting the lives of trans people
(discrimination, healthcare, abuse etc.) and the kind of language you should be using
to ensure your research is inclusive.

4
Following the same example, if you are not trans yourself you should also
acknowledge that despite how well-informed you are, you will not understand more
about being a trans person than your trans participants do. The ability to conduct
research with particular communities is absolutely not limited to members of those
communities, but it is important to understand that if you are not a member of the
community you are researching, this deprives you of personal knowledge and
experience that your participants will have.

1.3: Are the methods I intend to use appropriate for the research I am conducting?

Ensuring that your research design is valid is essential, so it is important to reflect on


whether the methods you are using suit your research questions and improve the
overall quality of the research. Can your methods of collecting and analysing data
provide valid answers? Do you have enough time to conduct your research using the
methods you have chosen? What sample size do you want to aim for and how will
this affect the representativeness of your research? A wide variety of literature exists
to help address all of these questions, so it is recommended you draw upon these
resources when developing your research design.

1.4: Am I confident that I have the necessary skills for this piece of research?

Identify your strengths and weaknesses as a researcher, then determine how they
will affect the research you intend to conduct. Do you feel confident that you are
equipped with the necessary knowledge and skills? These may include planning,
timekeeping, understanding of the research methods you will be using, knowledge of
relevant software, etc. If not, aim to develop these skills before you begin your
research or consider adapting the design of your research to better suit your abilities.

1.5: If the research is funded, what are the expectations of the funder?

Check whether the person or organisation funding your research has any
expectations that might affect its quality, such as the use of a particular research
method. With the previous guidelines in mind, evaluate how well these specifications
meet the aims of the research and be willing to discuss your ideas. In the interests of
integrity, it is also important to know how your funder intends to use the research
once complete, especially when the research involves vulnerable or marginalised
people. Can you be certain that the research will be used to benefit these
communities and will not be used in an exploitative manner? How do you feel about
the intended outcomes of the research?

Application to LGBT Research: Knowing how your funder intends to use your
research will help you to ensure that the finished product will actually be used to
benefit LGBT communities. Perhaps your funder wants to use your research in order
to find out how to better target advertising at the LGBT community. Do you feel like
this is a use that benefits the LGBT community, or does it simply benefit your
funder? Is this something you are comfortable with?

5
Principle 2: Fully Informing Researchers and Participants

Ensuring that everybody involved in the research is fully informed of its purpose,
methods and intended uses is a very important ethical concern. They must also be
aware of what their participation in the research entails and any risks that might be
involved. Researchers are encouraged to ask themselves the following questions:

2.1: How informed and aware are the research staff?

It is the responsibility of the researcher(s) to ensure that participants understand


what they are being asked to do, why they are being asked to do it and what risks
might be involved. It is therefore essential that any researcher working on the project
is sufficiently knowledgeable and able to provide this information. How much do you
and your team know about the topic you are researching? What resources could you
draw upon to fill in any gaps in your knowledge? Do all the researchers involved feel
confident in explaining the research to participants? You should also identify any
risks to participants beforehand and think of ways to address them. For example, if
your research concerns a topic that might be emotionally upsetting for participants,
you might identify some support services that you could signpost participants toward
if they feel affected.

You should also make sure that all researchers are aware of the impact the research
might have on them. How might the research affect those conducting it? Are there
any emotional concerns that might arise for you or your team during the research
process, e.g. because the topic is sensitive to a particular researcher or you are
gathering data on a difficult issue? Has it been ensured that everyone involved in
conducting the research will be properly acknowledged and thanked for their
contribution? Might the research conflict with the personal views of any of the
researchers and will this affect their ability to be involved?

Application to LGBT Research: You should make sure that none of the
researchers are ignorant or prejudiced towards LGBT people as best you can, as
this is only likely to make participants uncomfortable and compromise the quality and
aims of the research. Beyond this, you need to ensure that the researchers are
sufficiently knowledgeable about LGBT issues and the topic you are researching to
be able to adequately inform participants. If any of the researchers are themselves
LGBT, think about how the topic you have chosen to research might affect them
personally. In the case of sensitive research topics, a variety of support services and
charities specifically for LGBT people (including LGBT Foundation) exist as useful
places to signpost participants toward.

2.2: How can I fully inform participants about my research topic?

Your participants must be as informed as possible at every stage of their


involvement in the research. A clearly written information sheet for participants

6
(which can be printed or online, depending on the methods used) is an ideal way to
communicate any necessary details. Try to include the following information:

 The focus of the research


 The purpose of the research
 Who is conducting the research
 Who is funding the research, if applicable
 How the research will be used once complete
 How and why participants have been recruited
 What the research is asking participants to do
 How much time participants are being asked to give
 Risks of taking part and how these risks are being addressed

Though in some cases the withholding of certain information from participants is


necessary for a piece of research, this is typically only considered acceptable in very
specific and exceptional circumstances. Generally speaking, any variations to the
principle of fully informed consent will not be considered ethically justifiable and
should be avoided.

2.3: How might other factors affect my ability to fully inform participants?

You should consider what else might affect your ability to fully inform your
participants. If you plan to access participants through a service or organisation, do
you have permission to do so and contacts that can help you distribute information?
If you are informing participants in person, are you in a quiet space where your
participants can listen to you clearly and without interruption? Are there any
language or access needs issues that you need to address? Are your participants in
a fit state to understand you and give consent? Are you giving your participants time
to ask you any questions they might have?

If you are conducting your research online, be aware that you are not physically
present for participants to ask you any questions they might have. Try to be as
comprehensive as you can with the information you give and make sure you provide
some contact information so that participants can reach you if they are unsure about
any aspect of the research.

Application to LGBT Research: When going about informing participants, be


sensitive if you are trying to access LGBT participants in an environment in which
they may not be ‘out’, e.g. in school or at work. Also bear this in mind when deciding
on a setting to interact with participants in person, as privacy may be particularly
important. Try to appear comfortable and knowledgeable about LGBT issues, so
that participants feel reassured that they can ask you any questions they might have.
Remember that some LGBT spaces, such as gay bars, are probably not appropriate
places to try and inform your participants about your research due to noise, alcohol,
lack of privacy etc.

7
2.4: If the research is funded, what implications might this have for participants?

Your participants should be made aware of who is funding your research and why.
Though it might not seem like an obvious concern, there are situations where a
funding source might affect participant willingness to be involved in your research. In
such cases, failing to inform your participants about your funding would amount to
deceiving them and would not be considered ethical.

Application to LGBT Research: If, for example, one of your participants is an


LGBT rights activist, they may object to participating in research funded by
organisations that they believe to be homophobic, biphobic or transphobic. They
might also object to participating if they believed the research might be used by the
funding organisation to harm the LGBT community in some way.

8
Principle 3: Confidentiality and Anonymity

It is the ethical responsibility of the researcher(s) to preserve the confidentiality and


anonymity of participants throughout the research process. In accordance with the
principle of providing full information, anything you do in order to preserve
confidentiality and anonymity should be clearly communicated to participants. This
ensures that they can speak freely and that they won’t face consequences for their
involvement in the research should they be identified. For vulnerable or marginalised
participants, it is important to remember that this principle is especially important as it
is possible that their identification could pose a genuine threat to their wellbeing.
Researchers are encouraged to ask themselves the following questions:

3.1: Are the researchers properly briefed on confidentiality and anonymity?

Participants must be able to trust that researchers will not share any of the
information given to them to anybody outside of the research team, so it essential
that everybody involved is properly briefed on confidentiality and anonymity. Ensure
that all members of the research team understand who they can and cannot discuss
the data with. It is best to select participants that are not known to anybody involved
in conducting the research, as this risks the participant being identified and also risks
the researcher learning information about the participant that they would not have
otherwise been told. This also helps to avoid situations where participants might not
feel able to answer honestly because of their relationship to the researcher, which
can also affect the principle of integrity and validity.

3.2: What steps can I take to ensure confidentiality and anonymity?

Consider all the ways you can preserve participant confidentiality and anonymity,
then decide which are best suited to your research. Your participants must not be
identified with their real names, so what will you use instead? Some options include
using pseudonyms (false names) and number-coding (Participant 1, Participant 2
etc.). You must also ensure that any other information that could help identify
participants is not published in your research. This is largely context-dependent and
relative to your sample size; information like gender, age or ethnicity might well
enable identification of a participant from a small sample (within an office), but is
unlikely to be able to from a large one (across a city). Some details such as specific
postcode, appearance or other distinctive information about a participant should be
avoided altogether, as these can enable identification even within a very large
sample.

3.3: How might my research topic affect confidentiality and anonymity?

All research must ensure confidentiality and anonymity, but sometimes this
requirement is particularly important due to the nature of the research itself. For
example, if you were researching intimate partner violence by interviewing survivors,

9
it could present obvious danger to your participants if they were to be identified. In
such cases, particular attention should be paid at every stage to ensure that
participants cannot be identified through the research. You may choose to adapt the
resources you give to participants (such as the information sheet) so that the subject
of your research is not over-emphasised, in case the document is later found by
anyone other than the participant. Returning to the example of an interview-based
study on intimate partner violence, you might generalise by stating on your
information sheet that the research concerns experiences of relationships. You can
then discuss the specific nature of the topic verbally and in person with participants,
without risk.

Application to LGBT Research: All research topics involving LGBT participants


should, to some degree, require extra care on the part of the researcher(s) to
preserve confidentiality and anonymity. Regardless of the specific nature of the
research topic, not all LGBT people will be comfortable with their identities being
known, so it is the responsibility of those conducting the research to make certain
that this information is not shared outside of the research team.

3.4: How might my research methods affect confidentiality and anonymity?

Sometimes the methods you use to collect data require extra consideration with
regard to confidentiality and anonymity. This is particularly true of methods which
involve groups of participants, such as focus groups. In such cases, it is not only
important to understand that researchers are committed to preserving confidentiality
and anonymity, but participants are as well. Ensure that everybody understands not
to discuss the information shared outside of the group. Create some “ground rules”
and make sure that everybody follows them. If you intend to use a group-based
method for a sensitive research topic, evaluate whether the data you hope to
generate is worth the potential harm that could be caused if confidentiality and
anonymity is breached. Similarly, if your research methods require you to provide
additional staff (translators, sign language interpreters etc.) you should ensure that
they are also properly briefed.

Application to LGBT Research: In the case of using group-based methods for


LGBT-related research projects, it is very important that you stress to participants not
to disclose the identities of anyone in attendance, as this could ‘out’ participants
without their permission.

3.5: What other factors might affect my ability to preserve confidentiality and
anonymity?

You should give some thought to the setting in which you are collecting your data. If
interviewing or leading a focus group, ensure that you will not be overheard by
anybody outside of the room. It is harder to control the privacy of particularly public
settings, like cafes or bars, so make sure your venue is appropriate. If you are
conducting your research at an institution or organisation, the conditions of using the

10
setting might present a challenge to confidentiality and anonymity. For example, a
school might ask you to disclose any examples of bad behaviour that you are told
about, or office managers might be keen to know if anybody criticised the workplace.
In the interests of confidentiality and anonymity, you should be prepared to seek a
different setting if such conditions are put forward.

Very occasionally, it may be necessary to breach confidentiality and anonymity


because of your duty of care as a researcher, typically when working with children or
vulnerable adults. If, for example, a child you were interviewing indicated to you that
they were being abused, it would not be in the interests of the child’s wellbeing and
safety to avoid divulging this information. Should you be working with participants
like these, it is absolutely essential that you inform them and/or those consenting on
their behalf of the circumstances in which you would need to break confidentiality
and anonymity.

Application to LGBT Research: The considerations of setting which apply when


informing participants also apply here, in order to avoid ‘outing’ LGBT participants
without their permission. If you are recruiting for a piece of LGBT research through
an institution or organisation there is an extra level of risk. It is possible that, for
example, a workplace might ask you to disclose which of their staff took part in your
research. Providing this information would be a breach of confidentiality and
anonymity regardless of who was taking part, but could be especially damaging for
LGBT participants who might not feel safe being known to be LGBT in that
environment or who may worry that being outed would put their job or career
prospects at risk.

3.6: How do I intend to store the data?

In order to preserve confidentiality, you will need to store the data in such a way that
it cannot be accessed by anyone outside of the research. Digital documents and
recordings can be stored in password-protected folders, while physical documents
can be placed in a locked cabinet. You should aim to destroy the data (by deleting or
shredding as appropriate) after an agreed period of time, so that records of the
information given to you by participants do not remain long after the project is
complete.

3.7: How can I ensure confidentiality and anonymity in funded research?

If you are conducting a piece of funded research, it is important to understand how


confidentiality and anonymity applies to your funder. Your funder may require that
you collect data from particular recommended participants, in which case they
cannot be guaranteed anonymity as the funder will know who they are. However,
you can still assure them confidentiality, in that you will not disclose any information
they provide outside of the research and will not directly attribute it to them. You may
also be asked by your funder to provide feedback that you are not prepared to give
in the interests of preserving confidentiality and anonymity. To avoid this, you should

11
have a discussion with your funder before beginning the research about the
information that you are and are not prepared to give them. It may be useful to get
their agreement to these conditions in writing.

12
Principle 4: Voluntary Participation, Free from Coercion

No participant should feel as though they are taking part in research against their
will, at any stage of their involvement. It is therefore essential that participants are
able to give their informed consent to take part in research and are given the right to
withdraw their consent at any time. Ensuring that your participants can give informed
consent means making sure that they are provided with sufficient information about
the research, free from any element of coercion, so that they can make an informed
and free decision on their involvement with the research. In this respect, this
principle is strongly related to the principle of providing full information. Researchers
are encouraged to ask themselves the following questions:

4.1: How can I ensure that participants are able to give informed consent?

First, ensure that you are adhering to the second principle: fully informing
researchers and participants. This will ensure that any decisions your participants
make are appropriately grounded in knowledge of the research. Whether you are
using a written information sheet to inform your participants or plan to verbally inform
them, ensure that information about the research has been appropriately delivered
before you ask for consent. However you choose to inform your participants, make
sure that it is easy to understand and accessible. You should also ensure that
participants are given time to ask you any questions they might have about the
research or their involvement before you ask them to give consent.

4.2: Do I know how to obtain informed consent from children and other vulnerable
people?

When working with participants who may need to access support in deciding whether
to participate, it is appropriate to ensure that they have time and opportunity to do so.
As an example, you should give a child time to discuss their involvement in your
research with a trusted adult, such as a parent or guardian. Specifically in the case
of children, it is good practice to also gain permission from a responsible adult. This
should be in addition to child consent, not instead of.

Application to LGBT Research: If you are researching an LGBT-related topic with


mature children, such as teenage sexuality, seeking consent from parents or
guardians could compromise the wellbeing of the child and jeopardise the research.
In such circumstances, it may be appropriate to consider whether mature children
can give consent for themselves without adult involvement, though if this is done
then addressing any potential risk to participants must be made an absolute priority.

4.3: How do I avoid coercion?

It should be obvious that no researcher should actively coerce or force anybody to


participate in their research, but coercion can manifest in other ways as well.

13
Unless otherwise indicated, participants may feel like they must continue their
involvement in the research once they have begun, even if they become
uncomfortable or no longer want to take part. Researchers must therefore allow
participants to withdraw from the research at any time, making it very clear that they
are permitted to do so, as failure to provide this information constitutes a form of
coercion.

If you are using a reward to encourage participation, such as money or a gift card,
make sure that the value is not so great that people would participate in the research
purely to obtain the reward, as it then becomes a coercive practice. You must also
avoid making reward eligibility contingent on participants answering all of your
questions or completing their participation. Even if a participant wishes to withdraw
halfway through, they should not forfeit their reward eligibility, otherwise this risks
creating a situation where participants feel forced to answer questions or maintain
their involvement for the sake of the reward.

4.4: Should I allow participants to withdraw their consent?

Generally speaking, participants should be allowed to withdraw their consent if they


wish to, at which point any data they have provided should be fully removed from the
research. However, it is understood that this often becomes impossible after the
point at which data has been anonymised and/or already analysed. As such, it is
appropriate to stipulate a cut-off date after which participants can no longer withdraw
their consent, as long as this is clearly communicated and explained.

4.5: How do I obtain proof of consent?

You will typically need to produce a written consent form for your participants to read
and sign, so that you have evidence that informed consent was given. This should
be easy to understand and accessible. In terms of content, it should cover all of the
issues previously addressed in this section, asking participants to sign off on the
following questions:

 Have they read the information sheet/been verbally informed by the


researcher?
 Do they understand the purpose of the research and what they are being
asked to do?
 Have they had time to ask any questions they might have about the
research?
 In the case of children and vulnerable people, have they been given the
opportunity to discuss their involvement with a trusted adult?
 Do they understand that they can withdraw from the research at any time,
without forfeiting reward eligibility where appropriate?
 Do they understand that they can withdraw their consent by an agreed
date, should they wish to remove their involvement from the research?

14
In the case of participants who are not literate, it is appropriate to obtain verbal
consent in place of using a written consent form, but a recorded written sign-off from
a witness should also be obtained where possible.

Sometimes, the methods you are using might make it difficult to obtain proof of
consent. For example, a telephone interview presents challenges in that you cannot
physically present your interviewee with any written material and you may not be
able to record verbal consent. In such circumstances, you might consider sending a
consent form to potential interviewees ahead of the interview. If you are using an
online survey, you also cannot physically present a written document to your
respondents, but you can dedicate a page of the survey to answering the same
consent questions. This page can then function as your consent form. Try to think of
ways to address the issues your methods present in terms of obtaining proof of
consent.

4.6: Am I aware of when it might be inappropriate to seek proof of consent?

Though it should be stressed that this only applies to a minority of projects,


researchers should be aware that there are some circumstances in which seeking
proof of consent might not be appropriate. Some research topics make obtaining
proof of consent extremely impractical or meaningless, such as research on crowd
behaviour. Not obtaining consent is a key part of covert research, in which
individuals are purposefully not informed of their involvement, but it must be
acknowledged that such research is only ever considered acceptable when it can be
proven that participant awareness (and therefore consent) significantly alters the
phenomenon being investigated. Finally, in some circumstances obtaining written
consent may create unnecessary risks for participants, most often in the case of
research with illegal groups. In such circumstances, a researcher should still try and
ask participants for their consent in order to establish trust and security, but
traditional consent procedures (such as asking for a written signature) might be
avoided so as not to endanger participants.

Application to LGBT Research: Certain pieces of LGBT research may fit one of
these conditions. For example, your research might focus on individuals who are in
the country having fled persecution for being LGBT and may be at risk of being
deported. In such cases, it might be appropriate to avoid obtaining proof of consent
in ways which could identify your participants.

15
Principle 5: Avoiding Harm

Whether it is physical, mental or emotional, researchers should take great care to


ensure that participants are not harmed as a result of their involvement. Researchers
should operate with the view that no research is entirely free of potential for harm. It
may not always be possible to eliminate these risks entirely, but there are ways that
they can be mitigated. Researchers are encouraged to ask themselves the following
questions:

5.1: What sensitivities are involved in my research?

Some research subjects are quite clearly sensitive, such as those concerning
discrimination or abuse, but it should be acknowledged that all research topics are
likely to involve some degree of sensitivity. You must determine how sensitive your
research might be, so that those involved do not feel uncomfortable or negatively
affected by participating. Think in broad terms; all of your participants will have
different life experiences, so the topic might be sensitive to a participant for reasons
that might not be immediately obvious to you. Bear these sensitivities in mind when
designing, communicating and conducting your research.

Application to LGBT Research: Think about the specific ways that your research
topic might affect LGBT communities. In what ways might discrimination be involved
in the subject you are investigating? The same broad approach should be taken
here, as discrimination can manifest in many ways that may not be immediately
obvious. You must also ensure that the research itself is designed in a sensitive
manner. Is the language you are using LGBT-inclusive and appropriate? Many
resources exist detailing the kind of language to favour and avoid when working with
particular groups. These can be found online, through charities, within research
literature etc. Additionally, try to make sure that you do not ask anything of your
participants that could be considered offensive, disrespectful or invasive.

5.2: What can I do to help preserve the wellbeing of those participating in sensitive
research?

First, ensure that your research adheres to the principle of voluntary participation,
making it very clear to participants that they are allowed to withdraw from the
research at any point. This ensures that participants are knowingly involving
themselves in the research, helps to establish trust and offers a clear way out should
they become uncomfortable. Try to identify some relevant support services that you
can direct participants towards if any aspect of the research causes them distress.
These can be with external organisations or within your own organisation if
applicable.

As mentioned previously, remember that you have a duty of care as a researcher,


especially when working with particularly vulnerable participants like children. If a

16
participant gives you any indication that they are currently being harmed (such as
declaring that they are experiencing abuse), it may be unethical to withhold this
information and you may be required to break confidentiality in order to safeguard
the participant in question. Try to anticipate whether there is any chance of this
happening in your research and ensure that participants are told what the procedure
is should it occur. If you feel obligated to break confidentiality at any point, it is
essential that you discuss this with the participant.

5.3: What can I do to help preserve the wellbeing of those conducting the research?

Remember that the sensitivities of your research topic can affect researchers just as
much as participants. The research team will be collecting and analysing all the data
generated through the research. This means you will be spending a lot of time
working with information that, on some projects, may be uncomfortable or
distressing. Try to ensure that your research team is fully briefed on the topic, that
everyone is aware of the risks involved and that everyone has an opportunity to
indicate if there are any tasks that they would not be willing to undertake. Where
appropriate, ensure that your research team has access to the same support
services that you would signpost participants towards if they were feeling upset.

5.4: How can I avoid harm with respect to the methods I am using?

All research methods have some potential for harm, so you should consider this
when choosing how you will conduct your research. For questionnaires and surveys,
try to ensure that what you produce is as accessible as possible (has a readable
font, avoids specialist language, can be translated/interpreted/verbally
communicated), uses appropriate language and asks appropriate questions. Be
aware of the potential for negative or offensive responses, especially if distributing
your survey online. These considerations also apply to interviews, though for this
method you must also try to ensure that there is mutual respect between interviewer
and participant. The same can be said for focus groups, though here you should try
to ensure that there is respect amongst the group members themselves as well.
Similar considerations will be likely be present with all methods, so consider how
your method has potential to cause harm and how you might address it if it is not
listed here. Finally, adhere to the principles of voluntary participation and
confidentiality when quoting from your data, to ensure that you have permission to
do so and that participant identity is protected when you do.

5.5: How can I avoid harm with respect to funded research?

The response to this question should consider all of the ethical issues regarding
funded research that have previously been outlined. As much as possible, you
should try to ensure that your funding body is as committed to upholding ethical
research standards as you are. Knowing what your funder expects from the research
is critical to avoiding harm. Make sure that once complete, the research will not be
exploited and will be put to good use by your funder. Inform participants about who is

17
funding your research and why, so they are able to make their own judgements
about being involved. Finally, ensure that your funder respects anonymity and
confidentiality and does not wish to gain information about participants that they
would not otherwise be given.

18
Further information

For further information about the topics covered in this guide, please contact
research@lgbt.foundation.

19

You might also like