Afflicted

I can only imagine how these chronically ill individuals felt when they saw what their hard work and sacrifice had produced. The filmmakers draw back the curtain on their lives not with compassion, but more like a sideshow huckster asks the healthy audience to step right up and get a closer look at the freaks. Once you realize the framing, it's hideous. Worse, it's obviously taken its directorial inspiration from 'Unrest', a far more honest depiction of chronic, unexplained illness. The hard work the Unrest crew put in to carefully decide how to frame their narratives feels stolen, co-opted by a team that was lazier and carried ill intent, hoping to capitalize on Unrest's success. Healthy people looking down on sick people is nothing new, so the only question I have left is to wonder what possessed Netflix to pick it up? If this show were about any other marginalized group, would that be all right? Asking for several million friends.

As a long-time sufferer of ME/CFS I was insulted by the way these people were portrayed. They were presented in a light which made them appear to be hypochondriacs, and while there may be some over-the-top crazies in any group, that does not negate the seriousness and realness of these conditions. I was hoping this would finally bring some much needed facts and information to light about my condition, but instead it just furthered the stigma. Very disappointing.

This series is about Medically Unexplained Symptoms (MUS), which are exactly what you would expect them to be. Except that label is usually used as an alternative to hysteria, hypochondria, and psychosomatism. Basically it means that someone doesn't think symptoms are bodily, but instead are generated in the mind.

To support this hypothesis, fringe examples are given. The gas-mask wearers, the woman who's primarily sick when her disconnected husband is around, the people who spend absurd amounts of money chasing every bit of false hope dangled under their noses.

The one good think in this movie is that it highlights the shameless quackery and exploitation that sick people are subjected to. Unfortunately, the contrast is offered in the form of several "experts" pontificating on the emotional origin of physical symptoms. The series does nothing to explain that psychosomatic hypotheses are entirely unproven in chronic illness (versus, for example, a temporary increase in heart rate from being frightened), and indeed ultimately untestable and unprovable - ergo unscientific.

Needless to say, they also do not explore that psychosomatic hypothesis have an abysmal track record. Gastric ulcers? Used to be stress before the bacteria was found. Multiple Sclerosis? Hysterical housewives until the MRI was invented and showed brain abnormalities.

This series was especially befuddling because it included ME/CFS, which has already been proven not be psychosomatic. A few denialists still clam it is, but the basis for their beliefs is just as shoddy and marginalized as those who still believe AIDS is caused by a stressful lifestyle, or autism is caused by emotionally distant mothers. There are literally thousands of research papers document abnormalities, especially with the immune system and energy production. There are objective and widely used tests which have been around for decades and provide incontrovertible proof of biomedical dysfunction.

This series could have been good if it focused on the exploitation of the patients, which was both rampant and disgusting. Instead it judged the cause of their symptoms, essentially dismissing their experiences and awareness of their own bodies. In the process, disinformation has been spread to whoever watches this series, and patients with similar diagnoses face an increased threat of negligence and abuse as a result.

Just when myalgic encephalopathy is getting recognition as a real, horrible disease, this crud comes out, "reaffirming" that if we just tried harder, we wouldn't be sick. Sadly, that is anything but the truth. Please do not watch.

The issue I have with this series is that the stories are broadly framed as being psychosomatic even though some of the conditions have a long and established history of being physical. For example, ME has been recognised as a physical neurological illness since the 60s. A lot of viewers seem to be lumping all the conditions together as psychosomatic an example can be found in another review here on IMDB.

I think this is for a number of reasons: The stories are jumbled up randomly rather than one story per episode, Doctors speak in general terms about psychosomatic illnesses rather than about the individual cases, Poor editing, e.g. a clip of Jamison who has Me (Which is a physical illness) is used while a doctor talks about chronic illnesses being caused by the mind then followed by another MD saying statistically most cases are psychiatric. There seems to be disproportionate amount of content from doctors talking about psychosomatic illnesses and not enough scientific content validating conditions, e.g. the history and science of ME.

Documentaries like this need to be handled very carefully and sensitively, there is enough misunderstanding and stigma that surround these illnesses and documentaries like this should be helping educate people rather than perpetuating ignorant and harmful views. It has been deeply upsetting to read all the negative comments questioning the validity of peoples illnesses on Twitter.