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amy-26241

Joined Jul 2016

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amy-26241's rating
The Ataxian

The Ataxian

8.2
10
  • Jul 18, 2016
  • A rare disease story that's really about all of us!

    I had the pleasure to see this in a private screening and loved it. I knew a little about Kyle and Friedrich's Ataxia going in, and came away with a lot more than knowledge. This is a genuine and totally inspirational film that I would see again. The tag line is everything "life is about how you react" - the stark reality of a progressive, degenerative rare disease is a backdrop for making the most of your life, for stepping into meaningful action, and for creating a hopeful future for yourself and for others - a lesson for every single one of us!

    Thank you to Kyle and Sean and John and Mike and the race crew and the film crew and the folks at FARA for pouring yourself into this project.

    This film should be out there in the world - Kyle is a change-agent and the film is a change agent.

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