Genetic data sharing and privacy

MD Sorani, JK Yue, S Sharma, GT Manley… - Neuroinformatics, 2015 - Springer
… collaborations by sharing data. Here, we discuss data privacy and sharing approaches, we
… , and we look ahead to address challenges and opportunities for data privacy and sharing. …

Privacy challenges and research opportunities for genomic data sharing

L Bonomi, Y Huang, L Ohno-Machado - Nature genetics, 2020 - nature.com
genetic-testing applications. We additionally present general privacy-protection techniques
for genomic data sharing … Finally, we discuss limitations in current privacy-protection methods…

Assessing the privacy risks of data sharing in genomics

C Heeney, N Hawkins, J de Vries, P Boddington… - Public health …, 2010 - karger.com
… , that prevent them from discovering their genetic relatives. There is therefore a … cess genetic
information which outweigh other ethical considerations such as confidentiality and privacy. …

The tension between data sharing and the protection of privacy in genomics research

J Kaye - Annual review of genomics and human genetics, 2012 - annualreviews.org
… raised by data sharing, this review outlines the issues involved in privacy protection as well
… have transformed genomics research practice and facilitated data sharing. It describes how …

Sharing health-related data: a privacy test?

SOM Dyke, ES Dove, BM Knoppers - NPJ genomic medicine, 2016 - nature.com
… To this end, we discuss a Data Sharing Privacy Test developed to distinguish degrees of …
already disabled, as may occur with predictive genetic data on a late-onset condition where the …

[HTML][HTML] Privacy-preserving data sharing for genome-wide association studies

C Uhlerop, A Slavković, SE Fienberg - The Journal of privacy and …, 2013 - ncbi.nlm.nih.gov
… , for NIH and other GWAS data repositories as well as “GWAS data owners,” to release at
least some genetic data required by practitioners. More specifically, we described a privacy-…

Genes wide open: Data sharing and the social gradient of genomic privacy

T Haeusermann, M Fadda, A Blasimme… - AJOB Empirical …, 2018 - Taylor & Francis
… of privacy among individuals who share their genetic data … results suggest that open sharing
of one’s genetic data is not driven … Moreover, we showed that genetic privacy, for such users, …

Privacy risks from genomic data-sharing beacons

SS Shringarpure, CD Bustamante - … American Journal of Human Genetics, 2015 - cell.com
… for in the design of data-sharing mechanisms. Our results have important implications for
setting up beacons to allow data sharing and protect individual privacy. Beacons are designed …

[HTML][HTML] Privacy considerations for sharing genomics data

M Oestreich, D Chen, JL Schultze, M Fritz… - EXCLI …, 2021 - ncbi.nlm.nih.gov
… improve and develop privacy-preserving data sharing techniques for the genomic context. …
on the lack of protection through genetic data, such as SNPs, longitudinal data, widely used …

Privacy preserving GWAS data sharing

SE Fienberg, A Slavkovic… - … Conference on Data …, 2011 - ieeexplore.ieee.org
privacy guarantees of differential privacy, for NIH or other data owners to release at least
some genetic data … More specifically, we described a privacy-preserving release of aggregate …