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Cerebral Palsy Books & Resources

This document provides resources about cerebral palsy, including books, adaptive equipment, camps, and organizations. It lists books about living with cerebral palsy and overcoming challenges. Products like adaptive tricycles, standing equipment, and specialized car seats are mentioned. Camps for children and adults with disabilities in various states are listed, along with their activities. National and regional organizations that support those with cerebral palsy through resources, clinics, and fundraising are provided.

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0% found this document useful (0 votes)
149 views2 pages

Cerebral Palsy Books & Resources

This document provides resources about cerebral palsy, including books, adaptive equipment, camps, and organizations. It lists books about living with cerebral palsy and overcoming challenges. Products like adaptive tricycles, standing equipment, and specialized car seats are mentioned. Camps for children and adults with disabilities in various states are listed, along with their activities. National and regional organizations that support those with cerebral palsy through resources, clinics, and fundraising are provided.

Uploaded by

api-499889373
Copyright
© © All Rights Reserved
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Technology Resources

Books
Adaptive Tricycle
Out of My Mind by Sharon Draper According to makers of an adaptive tricycle,
Melody Brooks is an eleven-year-old girl with therapeutic cycling can improve respiration,
cerebral palsy. Melody's body is stiff and swallowing and the development of head and
uncooperative, forcing her to use a wheelchair. trunk control while strengthening anti-gravity
Her mind works well, but she cannot speak. muscles, improving eye-hand coordination and
self-esteem.
If at Birth You Don’t Succeed: My
Adventures with Disaster and Destiny
Stool Scooters and Standing Equipment
by Zach Anner
Depending on your child’s life stage and ability,
This book is a hilariously irreverent and heartfelt
there are products developed for assisting with
memoir about finding your passion and your path
movement while promoting stability or when

Cerebral Palsy
even when it's paved with epic misadventure.
difficulty holding themselves in an upright
Comedian Zach Anner opens his frank and
position.
devilishly funny book, If at Birth You Don't
Succeed, with an admission: he botched his own
birth. Car Seats
According to the American Academy of
By Lydia Dawley
Taking Cerebral Palsy to School Pediatrics, there are different regulations to
by Mary Elizabeth Anderson follow when traveling with your special needs
This book follows the adventures of Chad, a child.  Depending on their disability, you may
child with CP, and his classmates. This book aims need an adaptive car seat.  It is important to
to answer many questions that peers of children never adapt a car seat on your own. About Cerebral Palsy
with CP may have. It does so in a way that  A group of disorders that affect a person’s ability
children can learn to empathize with some of LAMP: Words for Life to move and maintain balance and posture,
the challenges that individuals with cerebral This designed to meet the communication needs caused by brain injury or atypical brain
palsy may have, while encouraging inclusivity of children with autism. Furthermore, it was development that happens around the time of
and acceptance in the classroom. Ages: 5 and created to use in conjunction with Language birth or early in life.
up. Acquisition through Motor Planning (LAMP), a
He’s My Pony by Jeanne Betancourt proven-therapeutic approach that uses
Anna and her neighbor’s niece Christine take on consistent motor plans for accessing vocabulary.
the stables in He’s My Pony! Christine loves
horses, but due to her cerebral palsy, she has Proloquo2Go
been unable to experience the joy of riding a Children, teens and adults who can’t speak can
pony of her own. Christine and Anna’s horse soon use this Augmentative and Alternative
develop a close bond, showcasing the benefits Communication (AAC) app for iOS as a daily
associated with equine and related therapy communication tool and to build language skills.
methods. Ages: 7-10.
This Kid Can Fly: It’s About Ability (Not
Disability) Aaron Phillip
In this uplifting memoir, 14-year-old Aaron Philip details
his journey from being a baby to a teenage artist living
in New York City. This book aims to shed light on the
way that disabilities are perceived by others, and how a
good attitude and a sense of humor can get you
through any of life’s challenges. Ages: 8-14.
CAMPS

National Resources REGIONAL STATE RESOURCES Camp Sunnyside

• For adults and children with disabilities


https://ucp.org Gillette’s Children’s Hospital • In Des Moines, IA.
Minneapolis, MN. • Activities:
https://www.gillettechildrens.org/conditions-care/ • Canoeing
United Cerebral Palsy is an organization that has cerebral-palsy/what-is-cerebral-palsy • Horseback riding
resources for families who have children with This is a Children’s Hospital where they educate parents • Archery
cerebral palsy These resources help people with CP or anyone on Cerebral palsy. It writes about what • Nature trails
to live independently. Cerebral palsy is, the symptoms, the diagnosis of cerebral • Swimming
palsy.

https://www.yourcpf.org/ United Cerebral Palsy


https://www.easterseals.com/ia/our-programs/camping-
recreation/camp-sunnyside.html
Madison and Milwaukee, WI.
The Cerebral Palsy Foundation is an organization https://www.cerebralpalsyguidance.com/cerebral-palsy/ Friendship Circle
united-cerebral-palsy-association/ • For individuals with special needs and their families
that brings awareness to cerebral palsy and has This is an organization that provides information and • In Milwaukee, WI.
events to raise money for CP research. resources to help people with CP. Also it goes through the • Provides recreational, social, and vocational activities
• Provides support to families and individuals struggling with
history of CP.
isolation, addiction, and other family-related crisis
https://www.gillettechildrens.org/ Waisman Center Cerebral Palsy Clinic
Madison, WI. https://www.friendshipcircle.org/about/
conditions-care/cerebral-palsy/what-is- https://www.waisman.wisc.edu/clinics/cerebral-palsy/
cerebral-palsy This is a clinic that provides comprehensive clinical care
Easterseals Wisconsin
and support for children with disabilities and their
• For children and adults with disabilities
families. The Waisman Center Cerebral Palsy Clinic is a
• Services provide
This website is a Children’s Hospital where they partnership with UW Health and the American Family • Vacational rehabilitation
educate parents or anyone on Cerebral palsy. It Children’s Hospital. An interdisciplinary team of • Respite services
writes about what Cerebral palsy is, the symptoms, professionals works together to address the complex • Camping and recreation information and referral
the diagnosis of cerebral palsy. needs of children up to 21 years of age with cerebral • Public education
palsy and other neurological conditions that affect motor • Services are designed to help people with disabilities live
development. independently, become self-sufficient, and enjoy life more
https://www.cerebralpalsyguidance.com/ Cerebral Palsy Agency of Racine (RADD) fully.
cerebral-palsy/united-cerebral-palsy- Racine, WI.
https://camp.eastersealswisconsin.com/easter-seals-camps/
association/ http://radd-cpa.org
This is a nonprofit organization governed by a volunteer Arch Camp Pow Wow
Board of Directors supporting individual’s and their • For children and adults with disabilities
This website is an organization that provides families with developmental disabilities. Currently, RADD • In Menomonee Park
information and resources to help people with CP. serves over 450 individuals 7 years old and up. Clients • Activities:
come from a variety of ethnic and socioeconomic • Arts and crafts
Also it goes through the history of CP.
backgrounds with autism, cerebral palsy, intellectual • Canoeing
• Fishing
https://www.cerebralpalsy.org/resources/ cognitive disabilities and other developmental
• Fitness
disabilities.
community-support/cerebral-palsy-organizations • Gardening
Children’s Hospital-Child Development Center • Life skills
Milwaukee, WI. • Music
This website is an organization for parents who have • Nature
children with CP or people with CP. It gives advice This is dedicated to the care of children with • Recreation
and provides information about how to advocate. developmental disabilities from infancy through • Swimming
adolescence. Services are provided directly or in
https://www.archchangeslives.org/about-camp-pow-wow
collaboration with other pediatric specialists to provide
high-quality, family-centered patient care, education,
prevention, research and advocacy. Very Special Camps: Wisconsin Youth Leadership
• For high school sophomores, juniors, and seniors with
disabilities
• Help increase leadership skills
• Provides information about the resources there are after
graduation
https://www.veryspecialcamps.com/summer-camps/WI-Youth-
Leadership-Forum-YLF-2060.html

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