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Criteria: Content and Relevance - 4pts Grammar and Organization - 1pts Total: 5pts/item

This document discusses an article about gene therapy and the ethical concerns it raises. Some key ethical questions are whether it is acceptable to keep a child isolated in plastic enclosures for their entire life just to survive, and whether it is ethical to subject children to experimental treatments that may have negative side effects and not guarantee safety. Stakeholders affected include the children's parents who must decide whether to allow the risky treatment, and the doctors responsible for the children's lives and treatment outcomes.

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Maika Narciso
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55 views1 page

Criteria: Content and Relevance - 4pts Grammar and Organization - 1pts Total: 5pts/item

This document discusses an article about gene therapy and the ethical concerns it raises. Some key ethical questions are whether it is acceptable to keep a child isolated in plastic enclosures for their entire life just to survive, and whether it is ethical to subject children to experimental treatments that may have negative side effects and not guarantee safety. Stakeholders affected include the children's parents who must decide whether to allow the risky treatment, and the doctors responsible for the children's lives and treatment outcomes.

Uploaded by

Maika Narciso
Copyright
© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
Available Formats
Download as DOCX, PDF, TXT or read online on Scribd
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Directions: Read the article ‘Bubble kid’, success puts gene therapy back on track in pages

1-3 of this document. Answer the following questions.

Criteria:
Content and Relevance - 4pts
Grammar and Organization - 1pts
Total: 5pts/item

1. What are some ethical questions or concerns raised in this case?

Some ethical questions and concerns surrounding gene therapy would be:

(1) Even for this kind of disease, is it ethical to let a child remain in isolation, to live in a
series of plastic enclosures for the rest of his/her life just to keep them alive?

(2) For a treatment that had a rocky start as it caused some negative consequences
before and would not guarantee the safety of the patient, was it ethical to let the
children go through such trials?

(3) How will they now cure SCID in a substantial way, knowing that some patients also
died in the process?

(4) Because of the high costs of the gene therapy treatment, won’t that make it available
only to the poor but only to the wealthy?

2. Who are the stakeholders in this situation? Who are affected by the decisions made?

One of the stakeholders in this situation are of course the children’s parents, as they
would be the main ones to decide if they would allow their child to push through with
taking the risk or not. Another are the Doctors or Specialists, whose hands have been
entrusted with the life of the child, to successfully treat him/her and in which clearly, the
children who has the disease, are the ones that’ll be affected by this.

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