I have set up a fundraiser for the SequenceME genetic research project into #MECFS and #LongCovid. I'd be hugely grateful for contributions and shares.

https://www.justgiving.com/page/eleanor-crawford-1

*Whether or not you're looking for a Covid Safe Date, please share this post. Because it's super difficult for people who avoid Covid to find love online.*

Covid Safe Date is now a feature full online dating website for adults of all genders and sexual orientations around the world who take #Covid avoidance seriously.

We have a few dozen members already, join us!

You may have Long Covid or you may be Novid.

You may have been engaging in consistent Covid safety practices since 2020, or you may have just started properly avoiding Covid recently.

You may have a shitty job that forces you to be maskless in order to stay employed. You may share a household with people who don't avoid the plague like the plague.

But as much as possible, you wear a respirator mask in public. People thinking you look weird or peer pressure isn't enough to make you go maskless. You would only risk another infection with a possibly permanently destructive virus if you feared losing your income, or feared violence, or had to get a medical procedure where you couldn't be masked the whole time.

You absolutely would never go inside a restaurant to eat ever again. Restaurant food can be takeout or delivery. Food can be cooked at home.

Whether you've been infected several times or never, you know the best course of action is to avoid as many infections in the future as possible because the harm is cumulative.

Whether or not you keep vaxxed, you understand that the vaccine doesn't stop infection, you still must wear a respirator mask.

You understand the importance of good indoor ventilation and filtering, but you know a public place with a good air quality rating doesn't mean it's safe to take your respirator mask off. You know people get infected outdoors too if they're very close to other people.

When I tell you that Dr. Hoerger's data shows there's more Covid spreading now than at any point in 2020, you're saddened but you're not shocked. You know Covid is far from over.

And if this applies to you and you actually avoid the plague like the plague, chances are dating websites will be hostile to you if you mention Covid safety.

People have anecdotally had a hard time finding romance on CovidMeetups, because it's not really a dating website but a better place to meet friends or find dentists.

That's why Covid Safe Date exists. It may be the only dedicated part of the internet specifically for Covid avoiders to date and possibly fall in love.

Our services will always be 100% free-of-charge. There's no "premium" tier, all features are available to all users.

And for that reason, Covid Safe Date needs donations from people who can afford to do so, so I can keep paying for web hosting and paying my developers who have Long Covid and are struggling generously for their labor.

https://covidsafedate.com/we-need-your-financial-support/

I'm also the founder of Stop Gen AI, so you'd better believe that there is absolutely zero AI on Covid Safe Date. Our web platform and service is completely human crafted and maintained.

We are a space that's LGBTQIA+, neurodivergence, disability, and poverty inclusive.

And I'm a cybersecurity specialist who takes responsibility for your cybersecurity and privacy seriously.

https://covidsafedate.com/privacy-policy/

Here are screenshots from the newly relaunched Covid Safe Date. You can see my profile, I'm looking for love too!

*Whether or not you're looking for a Covid Safe Date, please share this post. Because it's super difficult for people who avoid Covid to find love online.*

https://covidsafedate.com

#CovidIsNotOver #longCOVID #covid19

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Covid Safe Date homepage

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A view of user profiles

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My profile and the top drop down menu

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A page of acceptable respirator masks

RE: https://m.ai6yr.org/@ai6yr/116253659630051645

Not just in the US. Also seriously downplaying and underestimating #LongCOVID #MECFS so we can pretend it is not a devastating global problem.

Death toll at start of Covid-19 pandemic likely higher than US count, study says
https://www.theguardian.com/us-news/2026/mar/18/covid-19-pandemic-death-toll

#Pandemic #PublicHealth #COVID #LongCOVID #COVIDIsntOver

Check out the new #LongCOVID treatment guide from
PLRC & RTHM The guide features 24
medications, & select supplements, procedures, etc.
The guide aims to provide more clarity to patients &
clinicians around the evidence behind potential LC
treatments, in one place.

Link to guide: https://www.rthm.com/treatmentguide

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Downloadable Long COVID Treatment Guide

Ach, schau mal einer an. Da hat die Doro Bär immer den Eindruck vermittelt, sie nähme #MECFS & Co. wirklich ernst und hat die "Dekade der postinfektiösen Erkrankungen" und die damit verbundenen 500 Mio. Forschungsförderung als ihren Erfolg verkauft. Am Ende waren es doch eher "Forderungen von Interessenverbänden bzw. aus dem Außenraum". Immerhin heißt das, dass öffentlicher Druck der Betroffenen und ihrer Angehörigen wirkt. #liegenddemo #longCovid #mecfs

https://www.faz.net/aktuell/wissen/medizin-ernaehrung/wie-ernst-war-es-forschungsministerin-baer-mit-der-forschungsdekad-110854950.html

@Lstn2urmama
Unless you get #LongCovid, you'll have time to sign after you recover. There are various events located according to location.

Long COVID awareness is growing thanks to researchers, clinicians, advocates, and people sharing their experiences online.

This carousel highlights a few posts helping people better understand the scale and impact of Long COVID. The more people who understand Long COVID, the more support, research, and prevention efforts can grow.

Take a moment to explore the accounts featured here and learn more from their work.

#LongCOVID #LongCOVIDAwareness #LongCOVIDAwarenessMonth

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Graphic from longcovidsos shared by whn.global. Text reads: “LONG COVID You can look ‘fine’ and still be very unwell. We can’t wait any longer. Long Covid Awareness Month LONG COVID SOS” Below the graphic: “Learn more at www.longcovidsos.org” Footer: “World Health Network – Science for a safer, healthier world.”

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Graphic from neurocovid_iac shared by whn.global with teal abstract shapes. Text reads: “Did you know? Long COVID occurs in around 10–20% of people who experience an acute SARS-CoV-2 infection making it one of the most prevalent post-viral infections.” Citation at bottom: “(Hastie et al., 2023; Zaazouee et al., 2025)” Below the graphic: “Learn more at www.instagram.com/neurocovid_iac” Footer: “World Health Network – Science for a safer, healthier world.”

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Graphic from cancovidsoc shared by whn.global with a teal ribbon and icons of people. Text reads: “MARCH 1–31 Long Covid Awareness Month 1 in 9 adults in Canada experience Long Covid after a Covid-19 infection” Logo text: “Canadian COVID Society” Below the graphic: “Learn more at www.covidsociety.ca” Footer: “World Health Network – Science for a safer, healthier world.”

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Graphic from longcoviddietitian shared by whn.global with text on a white background. Text reads: “Across studies, roughly one in five long COVID Long Haulers are out of work because of their illness, and 40–50% stay employed only by cutting hours, changing roles, or needing substantial accommodations.” Below the graphic: “Learn more at www.longcoviddietitian.com” Footer: “World Health Network – Science for a safer, healthier world.”

Well, if it's long COVID awareness day, I'll add my ten cents.

I was one of the first to contract it in the UK, and have had it as long as anyone, since 2019. Reclusive even then, I was lured out to help a relative who was essentially dying with a heart condition, when his visiting grandson who's father has been working in Saudi passed it to me, and frankly finished him off.

#Longcovid

It’s Long Covid Awareness Day.

This year marks 3 years of living with it for me… and my health continues to be precarious.

I do my best to walk through life in the present and to manage what I’m able to - while relentlessly advocating for myself in the Canadian* medical system.

If this sounds like you too… know that you’re not alone. I see you.

#LongCovid #MECFS #POTS #LongCovidAwarenessDay

*added for clarity. I also do not currently have any spoons, I’m minus spoons and bed ridden, so I cannot reply to DMs.

Vic Greens health spokesperson Dr Sarah Mansfield posted on Instagram for Long Covid Awareness Week 👏🏻

https://www.instagram.com/reel/DV4KPOBgd89/

#LongCovid #CovidIsNotOver

@broadwaybabyto Thank you for advocating for the disabled. #LongCovid, #CovidIsNotOver, #disabilityjustice

This Long Covid Awareness Day let us remember the millions who've been disabled by the virus.

The people who've been forgotten and left behind.

The folks who have to hide their diagnosis because of the stigma attached to it.

You think you don't know anyone with Long Covid?

I promise, you do:

https://www.disabledginger.com/p/long-covid-awareness-day-2026

#longcovid #longcovidawarenessday #COVIDisAirborne #CovidIsNotOver #sarscpv2 #disability #ableism

To mark International Long COVID Awareness Day

ME/CFS = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
LC = Long Covid
PEM = post-exertional malaise

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19

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MILLIONS OF PEOPLE WITH ME/CFS AND LC SAYING EXERCISE MAKES THEM PERMANENTLY WORSE A DOCTOR WHO HAS NEVER EXPERIENCED PEM NO, you all are Wrong, Huge crowd of people and then a lone voice in the front

#LongCovidAwarenessDay #mecfs

Wir sind noch meilenweit weg von einer anständigen Behandlung der mindestens 80'000 #LongCovid erkrankten in Österreich.

https://www.derstandard.at/story/3000000312217/analyse-eines-betroffenen-mecfs-und-die-erfahrungen-mit-aerzten-und-gesundheitssystem

'Landmarks from around the world will be lit up teal to bring attention to #LongCOVID. It has been 6 years since the beginning of the COVID pandemic.' #PASC #MECFS @openmedf.bsky.social @njbbari3.bsky.social @zalaly.bsky.social @longcovidsos.bsky.social

https://www.longcfoundation.org/lit-for-long-covid?utm_source=substack&utm_medium=email

It's Long Covid Awareness Day, so here once again is my own post on a Long Covid experience - from November 2025, about 3 years after being infected.

"This is to reflect on the illness, the slow journey of mostly-recovering, and the nature of that time."

Love to everyone still dealing with their own version!

https://www.uncharted-worlds.org/blog/2025/11/marking-an-anniversary/

#LongCovid

It’s #LongCovidAwarenessDay . I’m in a huge flare so I don’t have a witty message.

But if you haven’t, I would be thankful if you checked out my art blog, @illmarks or maybe shared it with a friend (especially off fedi!).

Many of us w/ chronic conditions struggle to articulate the diversity / severity / scope of our symptoms, or be heard to when we do. That’s why I use creativity to show what I cannot say. Thank you for listening.

https://illmarks.com

#LongCovid #IdesofMarch #Healthcare

Heute ist "International Long COVID Awareness Day"

Thema 2026: "Impacts of COVID & Long Covid on the cardiovascular system"

https://www.longcovidawareness.life/

Weiterhin elementar: Infektionsschutz zur Vermeidung von Infektionen mit SARS-CoV-2: Clean Air, Masken 😷, Tests, Isolation bei Infektion

#LongCOVID #LongCOVIDAwareness #COVID #COVID19 #LongCOVIDHeartbeats

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Grafik zum Long COVID Awareness Day mit Schatten einer Person und einer Abbildung eines Herzens. Ein Pfeil neben dem Herzen zeigt zum Text: LONG COVID: EVERY HEARTBEAT COUNTS FIBROSIS NECROSIS PERICARDITIS MYOCARDITIS HYPERTENSION HEART FAILURE FIBRILLATION HEART ATTACK THROMBOSIS VESSEL DAMAGE ARRHYΤΗΜΙΑ And more... Every COVID infection can cause damage. High quality masks can help protect you. #LongCovid #Long CovidHeartbeats #Long CovidAwareness

Recapitulando:

Long Covid es una enfermedad que ocurre después de una infección con covid19. Ocurre semanas después de una infección inicial.

Cada infección de covid19 aumenta las probabilidades de Long Covid.

Long Covid se evita al prevenir enfermarse de covid19
#LongCovid #CovidPersistente

Los síntomas entre personas con Long Covid pueden ser totalmente distintos.

No existe una cura. Solo tratamientos a diferentes síntomas.

Todavía hay mucho por descubrir del Long Covid. Se necesita invertir en investigaciones.

#LongCovid #CovidPersistente

A 6 años de la declaración de pandemia, millones de personas han sido expuestas a varias infecciones de covid19, aumentando el riesgo de sufrir Long Covid.

Por eso hoy intentamos concientizar sobre esta condición.

#LongCovid #CovidPersistente

@longcovid The new @patientled #LongCovid Treatment Guide is out!
——
About the Guide:

This guide is meant to spark meaningful conversations with patients and their clinicians about potential treatment options. It is not an exhaustive list, nor is it intended as individualized medical advice. Instead, it offers thoughtfully selected options clinicians and patients can explore together, based on the unique symptoms, needs, and goals of
each patient.

The treatments focus on options that have shown moderate to substantial benefit in at least 20% of individuals with Long COVID in the Harvard/ Stanford TREATME Study (PMID: 40627388 ), that show meaningful promise in clinical practice, or that have shown benefit in other infection-associated chronic conditions.

The guide is focused on medications, but does include a few supplements, procedures, and lifestyle strategies to reflect the diverse nature of Long COVID care options.

https://www.rthm.com/treatmentguide

Today is #LongCOVIDAwarenessDay.

For more than six years i suffer from this insidious disease. Some symptoms have gotten better, others worse, even others have only recently developed (looking at you gastritis).

But the world has moved on, now pretends that #COVID is over and that i as someone with #LongCOVID do not exist (i must be a "trigger").

No one ever asks, how are you doing. All the care work falls to one person, who has zero support for this burden. I have never felt so alone.

Not only on #LongCOVIDAwarenessDay, please reach out to those you know who have #LongCOVID.

Stay informed on the wide range of disease clusters that can occur.

Look out for friends with "strange" and persistent symptoms, they might have LC.

And spread this excellent PDF with known treatments for specific symptom clusters:

https://www.rthm.com/resources/blogs/long-covid-treatment-guide

It's Long Covid Awareness Day. But we need to talk about willful ignorance.

CW: this post is pretty bitter

https://janetgunter.net/willful-ignorance

#LongCovidAwarenessDay #LongCovid

@janet reminded me it was #LongCOVID awareness day.

I got caught in the first wave in March 2020. Here we are six years later still sheltering in place......

This is one of the reasons my @cobbles blog exists.

Here's a COVID post from 2023 I wrote:

https://dotart.blog/cobbles/im-not-going-to-get-better

#CovidIsNotOver

RE: https://spore.social/@yoginho/114167335227617941

#LongCovidAwarenessDay

Today, we remember the disappeared that are still here: millions of people suffering from #LongCovid worldwide.

My own condition has improved since last year, even though symptoms returned this winter, but only mildly. Nothing I couldn't control with a dose of antihistamines, and the right kind of pacing.

Life goes on. But I could do without the recurring post-exertional malaise (#PEM), tremors, or the new allergies that came with this...

#MECFS #MCAS

Yogi Jaeger boosted

Yogi Jaeger » 🌐 2025-03-15
@yoginho@spore.social

I have #MCAS and #MECFS since January 2024, triggered by an #RSV infection that should just have been a cold at my age. But it wasn't since I had #COVID in 2021...

I've been ill for
- more than a year, or
- more than 440 days.

Stop the spread.
Millions are missing worldwide.
#COVID is not over.

#LongCovidAwarenessDay

The impact of testing positive versus negative for COVID-19 on health-related quality of life: cross-sectional evidence from the Alberta post-COVID-19 follow-up survey

https://link.springer.com/article/10.1007/s11136-026-04174-3

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

@novid #novid

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The impact of testing positive versus negative for COVID-19 on health-related quality of life: cross-sectional evidence from the Alberta post-COVID-19 follow-up survey — Kirwin et al. "The study found that people who tested positive for COVID-19 reported a bigger drop in their health-related quality of life than those who tested negative." "This decline impacted several areas of daily life such as mobility, ability to partake in usual activities, pain, and mental health."

From Sweden 🇸🇪 :

Work ability and associated factors among individuals with Post COVID-19 condition- a cross-sectional study

https://link.springer.com/article/10.1186/s12889-026-26771-0

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

@novid #novid

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Work ability and associated factors among individuals with Post COVID-19 condition- a cross-sectional study — Stigmar et al. "we found that more than half of the participants experienced poor work ability." "Despite this, the majority (70%) were working." "The most prevalent symptoms in our cohort were mental and physical fatigue together with dizziness."

Today is Long COVID Awareness Day and I wanted to write something positive — something like: we’re not weak, we’re fighters.

But honestly, today I don’t have the energy. Sometimes the fight feels almost impossible, and the grief doesn’t go away.

To everyone living with Long COVID or another PAIS: wishing you strength.
And to all caregivers: a sincere thank you.

@longcovid
#LongCovid #PAIS #niethersteld #LevendVerdriet #CovidIsNotOver #LongCovidAwarenessDay

📅 Tomorrow March 15 is #LongCOVIDAwarenessDay
Across Canada, events are being held in Vancouver, Calgary, Toronto, and Montreal to amplify the voices of people living with #LongCOVID. 😷

These gatherings will feature clinicians, researchers, and people with lived experience sharing stories and insights to raise awareness and push for better support and research.

🔗 See the full list of events organized by the Canadian Covid Society and ways to get involved: https://covidsociety.ca/priorities/long-covid/events-lcad-2026/

#LongCOVIDAwareness #WearArespie #MaskUp #LongCovidResearch #LongCovidSupport #LongCovid

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Image with the following text "Tomorrow is Long Covid Awareness Day. Donate A Mask Canada, donatemask.ca, #LongCovidAwarenessDay" There is a Donate A Mask logo as well as the ribbon for Long Covid (teal and grey).

This year International Long Covid Awareness Day is March 15
More info:
https://www.longcovidawareness.life/
#LongCovid #CovidIsNotOver

To mark International Long COVID Awareness Day on March 15

From Kornelia Paulsen (who no longer seems to be on social media)

#LongCovid #PASC

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a huge elephant with a flag saying "long Covid, ME, PAIS" It is sitting on 2 people who are saying: "I've got a feeling we might need to address postinfectious conditions" "Are you sure we can't ignore it a little longer?"

Long COVID awareness is powered by community.

Around the world, organizations, advocates, researchers, and patient groups are creating powerful resources to educate others and push for better understanding of Long COVID.

To help make these materials easier to find and use, we’ve created a “Shared by Our Community” page highlighting resources from across the broader public health movement.

Explore the resources and discover work being done around the world:
https://whn.global/shared-by-our-community/

#LongCOVID

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Black graphic from whn.global with dark magenta virus-like shapes around the edges. At the top is the WHN logo text “whn.global.” Large central text reads: “Long COVID awareness is powered by community.” Below: “Organizations and advocates around the world are creating powerful resources to educate and mobilize others.” In pink text: “We’ve added many of these materials to our ‘Shared by Our Community’ page so more people can discover and use them.” A boxed line says: “Explore at: whn.global/shared-by-our-community”. At the bottom: “World Health Network - Science for a safer, healthier world.”

Long COVID can affect anyone — regardless of age, health status, or how mild their initial infection seemed.

Preventing infection and reinfection of COVID-19 is the best way to avoid Long COVID.

If you’re living with Long COVID, how has fatigue affected your daily life?
Share your experience in the comments.

#LongCOVID #COVID19 #PublicHealth #InfectionPrevention #CleanAir #COVID

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Teal World Health Network graphic with the whn.global logo at the top. Header: “Living with Long COVID”. Large quote: “The fatigue can be so severe I sometimes have to crawl to the bathroom because I can’t stand up – let alone walk.” Footer: “World Health Network - Science for a safer, healthier world.”

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Teal World Health Network graphic with the whn.global logo at the top. Large quote: “Most people don’t understand what we mean by ‘fatigue.’ This isn’t just ‘I’m tired at the end of a long day’ … this is ‘I’m so tired that I worry I might not survive it.’” Footer: “World Health Network - Science for a safer, healthier world.”

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Teal World Health Network graphic with the whn.global logo at the top. Main text: “It’s important to understand that Long COVID can affect anyone, regardless of age, health status, or the severity of their initial COVID-19 infection.” Secondary text: “The best way to avoid Long COVID is to avoid infection and reinfection from COVID-19.” Footer: “World Health Network - Science for a safer, healthier world.”

Well happy I just got four official diagnoses day to me, I guess.
The following are now actually on my records as diagnoses so hopefully DSA, PIP and co will believe that I am disabled:

Long covid
Fibro
PoTS
Hyper-mobility

#LongCovid #Fibromyalgia #ChronicIllness

COVID infections are not harmless. Research shows that initial and repeated COVID-19 infections can increase the risk of long-term health problems affecting multiple organ systems. Preventing infection and reinfection helps reduce these risks.

#COVID #COVID19 #LongCOVID #InfectionPrevention #PublicHealth

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Black poster with white and bright pink text. At the top is the WHN logo text: “whn.global”. Large white text in the center reads: “COVID infections are not harmless.” Below, in bright pink text: “COVID-19 infections may cause cumulative harm. Long-term effects from infection are known as Long COVID.” At the bottom, in white text: “World Health Network - Science for a safer, healthier world.”

Long COVID can affect many systems in the body. Researchers have documented more than 200 symptoms, ranging from fatigue and brain fog to heart, lung, and neurological problems.

The symptoms shown here are only a small sample. Preventing infection helps reduce the risk of Long COVID.

#LongCOVID #CleanAir #PublicHealth #COVID19 #COVID #InfectionPrevention #LongCOVIDAwareness

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Light gray poster with the WHN logo “whn.global” at the top. Large headline in teal and black reads: “Long COVID has a long list of symptoms.” Below, smaller bold text says: “Over 200 symptoms have been reported in people living with Long COVID.” At the bottom: “World Health Network - Science for a safer, healthier world.”

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Teal poster with the WHN logo “whn.global” at the top. Large white text lists Long COVID symptoms: “Brain fog, Fatigue, Memory problems, Difficulty concentrating, Headaches, Dizziness, Shortness of breath, Chest pain, Heart palpitations, Rapid heart rate (tachycardia), Post-exertional malaise (symptoms worsen after activity), Sleep problems, Insomnia, Muscle aches, Joint pain, Nerve pain, Tingling or numbness, Tremors.” At the bottom: “World Health Network - Science for a safer, healthier world.”

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Teal poster with the WHN logo “whn.global” at the top. Large white text lists more Long COVID symptoms: “Tinnitus (ringing in the ears), Blurred vision, Sensitivity to light or noise, Loss of smell, Loss of taste, Altered smell or taste, Nausea, Abdominal pain, Diarrhea, Loss of appetite, Skin rashes, New allergies, Mood changes, Anxiety, Depression.” Lower down, bold white text says: “Over 200 symptoms have been reported; only a portion are shown here.” At the bottom: “World Health Network - Science for a safer, healthier world.”

New resource for those who suffering from #longCOVID:

The Long COVID Treatment Guide comes from a collaboration between RTHM and the Patient-Led Research Collaborative.

https://www.rthm.com/treatmentguide

Even one COVID infection can have lasting impacts on the heart, brain, and blood vessels. Prevention is long-term health care.

#LongCOVID #CleanAir #PublicHealth #COVID19 #InfectionPrevention #COVID #MaskUp

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Black background graphic with the whn.global logo at the top. Large bold text in white and bright pink reads: “A single COVID infection can increase risks for heart disease, blood clots, and cognitive and neurological problems months later.” At the bottom, smaller white text reads: “World Health Network - Science for a safer, healthier world.”

RE: https://forall.social/@whn/116187867031213902

Long COVID Awareness Month

#LongCOVID #LongCOVIDAwareness #COVID #COVID19 #Corona #CovidIsNotOver

Elana | אילנה boosted

WHN » 🌐 2026-03-07
@whn@forall.social

Millions of people around the world are living with the lasting impacts of Long COVID — a growing public health crisis that continues long after the initial infection.

Long COVID can affect the brain, heart, lungs, immune system, and more, making it harder for people to work, study, care for families, and participate fully in daily life.

This Long COVID Awareness Month, we must bring visibility to the millions of people affected and accelerate research, prevention, and support.

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Teal graphic with the white whn.global logo at the top. Large centered text reads: “Long COVID is a growing public health crisis.” Smaller centered text below reads: “Millions of people are living with lasting health impacts after COVID infections — affecting their ability to work, study, care for families, and participate fully in daily life.” At the bottom: “World Health Network - Science for a safer, healthier world.”

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Teal graphic with the white whn.global logo at the top. Large centered text reads: “This March, during Long COVID Awareness Month, we commit to making this crisis visible.” Smaller centered text below reads: “Awareness leads to research. Research leads to solutions. Solutions start with attention. If you believe Long COVID deserves urgent public health focus, share this post.” At the bottom: “World Health Network - Science for a safer, healthier world.”

From a randomised, placebo-controlled trial of Nirmatrelvir/Ritonavir:
"no virological or immunological evidence supports [Paxlovid] as a treatment for Long COVID."

https://www.medrxiv.org/content/10.64898/2026.02.24.26347001v1

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

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Exploratory analyses of Immunologic Features in a Randomized, Placebo-Controlled Trial of Nirmatrelvir/Ritonavir for Long COVID — Bornali Bhattacharjee et al. "no virological or immunological evidence supports [Paxlovid] as a treatment for Long COVID." "Decreased RANTES levels were associated with symptom improvement, independent of treatment, age, sex, or vaccine status"

https://gillianlevine.com/reasons-to-mask-in-2026

I'm THRILLED to have such an amazing resource to share with folks who don't get it. Might need to print copies of this zine to leave around the neighborhood, too!

#covidisntover #LongCovid #COVID19 #pandemic #coronavirus #MaskUp #publichealth

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Comic featuring a white person with yellow hair in the center panel, wearing a white medical mask. Text reads "Reasons to wear a mask in the year of our lord 2026: a lil manifesto about taking care of yourself and others with over 50 citations! By Gillian Levine."

When these protections are used together, they help reduce transmission and protect both individuals and communities.

#LongCOVID #COVIDPrevention #CleanAir #Ventilation #MaskUp #InfectionPrevention #PublicHealth #COVIDSafety #COVID19

Q for folks who read a lot of #LongCovid studies-- do you know of any meta-analysis about the very diverse rates of long covid that are reported (1-40%)? Specifically I would love to see an analysis of what factors in the design of a long covid study lead to lower or higher reported rates

@longcovid

#CovidIsNotOver

Long COVID isn’t rare.

According to the WHO, about 15 in 100 people still have symptoms 12 months after COVID-19 infection.

Prevent infection. Prevent reinfection. Protect your health.

#LongCOVID #LongCOVIDAwarenessMonth #PublicHealth #CleanAir

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Teal background graphic with white text. Top left: “whn.global.” Top right: “Long COVID Awareness Month.” Large centered headline: “Long COVID isn’t rare.” Below in smaller bold text: “Per the WHO, approximately 15 in 100 people still have symptoms at 12 months after contracting COVID-19.” Bottom line: “World Health Network - Science for a safer, healthier world.”

News Release 2-Mar-2026
"Study identifies molecular cause of taste loss after COVID"

"Research links persistent loss of sweet, bitter and umami taste to reduced levels of key taste-cell protein"

https://www.eurekalert.org/news-releases/1118387

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

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News Release 2-Mar-2026 Study identifies molecular cause of taste loss after COVID Research links persistent loss of sweet, bitter and umami taste to reduced levels of key taste-cell protein Peer-Reviewed Publication University of Colorado Anschutz FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail AURORA, Colo. (Jan. 29, 2026) – Scientists have identified molecular and structural changes in taste buds that may explain why a small subset of people experience long-term taste loss after COVID-19 infection. The study, published last month in Chemical Senses, provides the first direct evidence linking patients’ reported taste changes to measurable biological abnormalities inside taste cells. What causes long-term taste loss after COVID-19? Researchers from the University of Colorado Anschutz and two Swedish universities studied 28 non-hospitalized patients who reported persistent taste disturbances more than one year after contracting COVID-19.

[ She is back !!! Wonderful!!! ]

[[ Please check her out, she is an amazing science communicator that got completely wiped out by #LongCOVID for years. ]]

This image shouldn’t be possible
#PhysicsGirl

Mar 3, 2026
How is it possible that this photo was taken at night?!

Support Dianna and the Physics Girl team at patreon.com/physicsgirl

https://youtu.be/B3m3AMRlYfc?si=URGVWSedSFoi2nFi

I haven't watched this myself so far but have been generally impressed with media interviews Dr. Binita Kane has done

https://www.youtube.com/watch?v=pk00btt7CVs

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

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Binita KaneBinita Kane • 1stVerified • 1st Consultant Respiratory Physician | Special interest in Long COVID and ME | Founder of The Long COVID Clinic | Co-Founder of South Asian Heritage Month | Diversity Power list 2024/25 | Member of Independent SAGEConsultant Respiratory Physician | Special interest in Long COVID and ME | Founder of The Long COVID Clinic | Co-Founder of South Asian Heritage Month | Diversity Power list 2024/25 | Member of Independent SAGE 2h • 2 hours ago • Visible to anyone on or off LinkedIn Just over a year ago, I left my 25 year NHS career to dedicate my life to a group of patients who remain largely unseen and unheard by the NHS - people with severe Long COVID and Myalgic Encephalomyelitis (ME). Despite hundreds of thousands affected, to this day, there are no commissioned NHS services for those at the severe end of the spectrum - though patient advocates, charities and some MPs are working hard to change this. The transition to the independent sector was never in my life plan - it happened organically. I am very grateful to HLTH Compliance for inviting me onto their podcast to share my journey and experiences of setting up the clinic, which emulates a tertiary level specialist interdisciplinary service - with one important difference - my patients are all over the country and so are my team. My most severe patients are bedbound, tube-fed, have 24/7 full-time care and no regular NHS support outside of their GP (+ possibly a dietician).

37-minute video: "The Biology of Post-Infectious Chronic Illness" with Dr. Anthony L. Komaroff

https://www.youtube.com/watch?v=u282aUTpyIA

I haven't watched so far but he is usually good in these videos

#LongCovid #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @longcovid

1/

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1,080 views Feb 10, 2026 Clinical Research Read "ME/CFS and Long COVID share similar symptoms and biological abnormalities: road map to the literature" – co-authored by Dr. Anthony L. Komaroff & W. Ian Lipkin. https://www.frontiersin.org/journals/... Fatigue is the body’s hard-wired response to a viral infection. In today’s episode, Haylie Pomroy shares insights with Dr. Anthony L. Komaroff to examine the history of ME/CFS research, the causes and triggers of ME/CFS and other post-infectious chronic illnesses, and the abnormalities observed in the brain and autonomic nervous system among patients with ME/CFS and long COVID. Dr. Komaroff also addresses how patients have often been dismissed within the healthcare system, explains the physical and psychological processes involved in these conditions, and discusses how he and other clinicians are now moving to the forefront of diagnosis and treatment.

New:

-Chaos at the CDC (again)
-ACIP announces meeting on #LongCovid and vaccines*
-Covid ⬆️ in US, AU, UK, NZ
-Christina Applegate goes on Jimmy Kimmel while infected
-A fab look at treating Covid safety like STI prevention
-A free ‘zine you’re going to love, plus more!

Link: https://www.patreon.com/posts/covid-february-151686773

https://substack.com/@catsalladinlsw/note/c-219421095

#pandemic #covid #longcovid #covid19 #covidisntover #maskup #disability #disabilityjustice

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post from Cat Salladin, LSW on Cat's Substack: it never ceases to floor me when I see the most radical, liberation-minded people saying “during the pandemic” and “during Covid” through unmasked mouths as if true liberation doesn’t require disability justice. As if Black, trans, poor, and other marginalized folks aren’t the MOST likely to be disabled by COVID. YES COVID IN THE BIG 2026!!! The pandemic never ended. Y’all are always like “the government’s a lying liar who lies” until it comes to believing ur daddy Biden when he said the “pandemic is over” to appease billionaires and delta airlines. Literally put a fucking respirator on. TRUE liberation depends on it.

· SARS-CoV-2 reinfections significantly increase the risk of #LongCOVID in children, a new National Institutes of Health (NIH) RECOVER study found
· A large cohort study found further evidence that people with #HIV have a significantly increased risk of Long COVID following SARS-CoV-2 infection
· An in-depth whole genome sequencing study called Sequence #MECFS and Long COVID is seeking to raise £20 million ($23.6 million USD) in funding

https://thesicktimes.org/2026/02/24/research-updates-february-24/

#ResearchUpdates #TheSickTimes

The Disabled Crone on why "personal risk" isn't enough when it comes to wearing a mask or respirator to protect against Covid.

"I’ve noticed an uptick in large accounts, mostly PhDs in something relevant such as immunology or virology, explaining why they aren’t masking as much (or at all) anymore."

"As an autoimmune person with multiple post viral chronic illnesses, I have to weigh in."

I know it's been a long time, but Covid is still here, still everywhere, still causing lasting immune issues, disability, and death. Pretending it's gone not only risks your own health, but also that of everyone around you.

#Covid #CovidIsNotOver #WearAMask #LongCOVID

https://nannyogg63.substack.com/p/assessing-your-personal-risk-isnt

News Release 25-Feb-2026

"Tulane study reveals key differences in long-term brain effects of #COVID_19 and flu: Disruption of serotonin & dopamine signaling pathways could explain why some feel 'brain fog' after being infected by #COVID19"

https://www.eurekalert.org/news-releases/1117501

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver @novid #novid

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News Release 25-Feb-2026 Tulane study reveals key differences in long-term brain effects of COVID-19 and flu Disruption of serotonin and dopamine signaling pathways could explain why some feel 'brain fog' after being infected by COVID-19 Peer-Reviewed Publication Tulane University FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail Even a mild case of COVID-19 or the flu can impact the body long after the fever and cough fade, according to new Tulane University research that may help explain why some people struggle to feel fully recovered weeks or months later. Tulane researchers found that while both viruses can leave lasting lung damage, only SARS-CoV-2 infection caused persistent brain inflammation and small blood vessel injury, even after the virus was no longer detectable. The findings, published in Frontiers in Immunology, help explain why long COVID often includes neurological symptoms such as brain fog, fatigue and mood changes, while influenza is more commonly associated with respiratory complications.

📺 https://peer.adalta.social/w/kqRH8K2ZTgjShFoaNHUR1g
🔗 [🇩🇪🇺🇸🇫🇷](https://p4u.xyz/ID_5UF0567O/1)
🔗 [ℹ️](https://anzmes.org.nz/wp-content/uploads/2025/07/Hospital-Care-Plan-for-Severe-Very-Severe-ME_CFS-and-long-COVID-1.pdf")

La publication d'un plan de soins spécialisé marque un tournant dans la prise en charge de ces pathologies invalidantes.

#longcovid #mecfs #pwme #cfs #severeme

"New Catalyst Awards to Accelerate ME/CFS and Long Covid Breakthroughs"

https://solvecfs.org/february-2026-catalyst-awards/

“Solve M.E. is committed to putting patients at the center of scientific progress. These Catalyst Award-winning studies not only push the boundaries of ME/CFS research but also ensure that patient voices guide every step. We believe these projects will bring us closer to answers, hope, and better lives for people affected by ME/CFS and Long Covid."

@mecfs @longcovid

#MEcfs #LongCovid #SolveME

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Solve M.E. is proud to support two pioneering studies through our latest round of ME/CFS Catalyst Awards, a focused initiative to support promising research projects that have already made significant strides in advancing our understanding of ME/CFS, Long Covid, and associated conditions, and are poised to deliver meaningful results with just a bit more support.

"Six years in, mental health care providers are still uninformed on Long COVID. And it’s making the crisis worse"

“I’d heard from people that they were being told things like they ‘identified too much with their illness,’ which is one of the most invalidating and dismissive things I could imagine”

#LongCOVID

Source: https://archive.md/ktfd3

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Screenshot of a The Sick Times article titled “Six years in, mental health care providers are still uninformed on Long COVID. And it’s making the crisis worse,” by Elizabeth Yuko, dated February 24, 2026. Below is an image of the American Psychological Association headquarters building in Washington, D.C., with a CNN sign visible in the background.

Der schwerst an #LongCovid #MECFS erkrankte Samuel wählte an seinem 21. Geburtstag den assistierten Suizid. Im Sinne seines letzten Wunsches, dass sein Tod "nicht umsonst" gewesen sein solle, erzählen seine Mutter und sein behandelnder Arzt über ihn und über die Versorgungsmängel bei ME/CFS.

https://on.orf.at/video/14311920/hinter-den-schlagzeilen-mutter-von-me-cfs-opfer-sein-tod-soll-nicht-umsonst-sein

From 🇬🇧

Multimodal imaging suggests potential immune-vascular contributions to altered regional brain perfusion and oxygen metabolism in Post-COVID-19 Syndrome

https://www.sciencedirect.com/science/article/pii/S088915912600228X

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

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Multimodal imaging suggests potential immune-vascular contributions to altered regional brain perfusion and oxygen metabolism in Post-COVID-19 Syndrome — Martins et al. "this study demonstrates that PCS is associated with regionally specific alterations in cerebral perfusion and oxygen metabolism. These findings support a dual process model in which hippocampal hypermetabolism seems to reflect compensatory adaptation, while ACC neurovascular uncoupling might derive from neuroimmune disruption." "findings identify the ACC as a metabolically vulnerable hub in PCS"

News Release 19-Feb-2026

New single-cell transcriptomic clock reveals intrinsic and systemic T cell aging in COVID-19 and HIV

https://www.eurekalert.org/news-releases/1117098

"Immune aging increases susceptibility to infection, cancer, and chronic inflammatory disease."

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
@novid #novid

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News Release 19-Feb-2026 New single-cell transcriptomic clock reveals intrinsic and systemic T cell aging in COVID-19 and HIV “These findings underscore the promise of single-cell transcriptomic biomarkers to disentangle the systemic and cell-intrinsic components of immune aging and to measure immune aging.” Peer-Reviewed Publication Impact Journals LLC FacebookXLinkedInWeChatBlueskyMessageWhatsAppEmail Single-cell transcriptomics reveal intrinsic and systemic T cell aging in COVID-19 and HIV image: Figure 1. Cell type predictions recapitulate known effects of aging on the immune system. (A) Overview of the study design, including the development of cell type prediction and age prediction models using single-cell transcriptomics. The workflow highlights data preprocessing, clustering, annotation, and model training. (B) Cell type proportion changes in individuals from different age groups. (C) CD4/CD8 ratio increases with age, normalized to individuals aged 18–35. (D) Comparison of predicted versus manually annotated cell types in the training dataset. Cell annotations were based on canonical markers: CD4, CD8A, CCR7, GZMB, GNLY, and FOXP3. Predicted clusters align closely with ground truth annotations, demonstrating the accuracy of the model. (E) Validation of the model in the test dataset, showing high concordance between predicted and manually annotated clusters with quantitative accuracy metrics (97% accuracy; F1 score = 0.97). (F)

Ventilation plays an important role in preventing airborne infections. Opening a window helps, but real ventilation is about consistent airflow. CO₂ monitors can give a simple signal of how much shared air is building up indoors.

Share to help raise awareness. 💨🌿

#CleanAir #CO2Monitor #Ventilation #PublicHealth #LongCOVID #COVID19

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Square graphic with a dark blue/gray background. Top left reads “whn.global”; top right reads “Clean Air.” Large tilted green banner headline: “Ventilation” isn’t just opening a window. Below, a CO₂ monitor screen shows 811 CO2 ppm with status Normal, time 13:54, and POA 84. Other readings on the screen: 36 (Noise, dB), 44.1 (RH, %), 3 (PM2.5, µg/m³), 24.0 (Temp, °C), 3 (PM10, µg/m³), 93 (eTVOC, VOC Index). Bottom text says: “Although that helps, real ventilation is about airflow: how much clean air moves through a space. More clean air means a safer space. CO₂ monitors show if fresh air is flowing — or if it’s time to do more.” Footer: “World Health Network - Science for a safer, healthier world.”

· A large study recently connected “chronic absenteeism” to pediatric #LongCOVID, further disproving the “immunity debt” talking points from pundits earlier in the pandemic
· A small mechanistic study in Brain, Behavior, & Immunity – Health found that immunoglobulin G (IgG), isolated from people with #MECFS, can destroy mitochondria in endothelial cells
· ADDRESS-LC has opened two more study sites: a new one in California and one in Connecticut

https://thesicktimes.org/2026/02/10/research-updates-february-10/

#ResearchUpdates

· New review in Dovepress states that #LongCOVID, #MECFS & #POTS should be classified as neuroimmune disorders.
· Wearable activity tracker notifications may not be a reliable way to mitigate or reduce PEM, new study in Nature Communications
· Small, phase one study is recruiting in Sacramento & San Francisco, CA to test advanced techniques in total body imaging to improve understanding of “tissue-level immune dysregulation” in the disease

https://thesicktimes.org/2026/02/17/research-updates-february-17/

#ResearchUpdates #COVID

“[In] music spaces, the denial is huge,” phytocene said. “Because I think if musicians were to admit that every day they put themselves at risk, they wouldn’t be able to do that career.”

https://thesicktimes.org/2026/02/17/these-artists-are-making-concerts-safer-with-covid-19-precautions/

#news #covid #LongCovid #music #musicians #PublicHealth

Covid cautious folks…. I’ve got a dilemma. I’m sick and throwing up so it’s hard for me to mask.

I’ve had a plumbing emergency and someone will be in my unit for approximately 2 hours tomorrow. They will wear an N95 and be in bathroom with exhaust fan on. I will be in bedroom at opposite end of apartment.

I’ve got multiple air purifiers and will open the window in the main living space.

Would you be comfortable not masking under those circumstances? I will mask to let him in obviously.

It’s Been a heck of a 24 hours and I highly doubt I would be able to keep the mask on sadly. My face is too swollen to tolerate it at all right now.

Any tips appreciated!

#covidisairborne #covidisnotover #longcovid #n95

From The Sick Times:

“Invisible Illness” could have been transgressive. Instead, it minimizes Long COVID.

https://thesicktimes.org/2026/02/13/invisible-illness-could-have-been-transgressive-instead-it-minimizes-long-covid/

"The book fails to convey the severity of infection-associated chronic conditions, demands for treatment, or importance of infection prevention."

@longcovid

#LongCovid #PASC #MEcfs #ChronicIllness #CovidIsNotOver #Books #BookReview

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Good histories of medicine are always transgressive, illuminating the politics behind treatments later seen as neutral science. With Secretary of Health and Human Services Robert F. Kennedy Jr. platforming “soft eugenics” and clinicians neglecting hard-won aerosol science, medicine needs more history. Unfortunately, against a backdrop of historical overviews that correlate traumatic social events with outbreaks of mysterious ailments, Mendenhall’s thesis posits a mechanism for chronic illness based purely on pseudoscience. While ignoring infection prevention, the merits of pharmaceuticals, and leading biophysical theories around Long COVID and myalgic encephalomyelitis (ME), Mendenhall examines chronic illness interventions that can harm people with Long COVID and ME, such as graded exercise therapy (GET), cognitive behavioral therapy (CBT), and meditation.

Hospital acquired Covid has a 10% fatality rate.

It’s almost completely preventable with respirators and clean air, but healthcare facilities have chosen a policy of forced infection instead.

Let this case set a precedent & start forcing hospitals to adopt airborne precautions!

https://www.francebleu.fr/nouvelle-aquitaine/charente-maritime-17/la-rochelle/la-famille-d-un-homme-mort-contamine-par-le-covid-a-l-hopital-de-la-rochelle-en-2021-demande-indemnisation-au-tribunal-8196203

#covid #COVIDisAirborne #covidisnotover #sarscov2 #LongCOVID #disability #healthcare

clean air is a human rights issue
clean air is an accessibility need

a decade or three from now, this reality will be so painfully clear to you in so many ways. now would be a GREAT time to stop pretending that the pandemic won't follow you for the rest of your life.

https://www.tiktok.com/t/ZTrWpA7gS/

#covid #covid19 #longcovid #covidisntover #disability #disabled #ableism #access #accessibility #humanrights #cleanair #maskup

Highly recommended household items for my fellow #ChronicIllness baddies:

1) A bed desk / Reading pillow / Bed Wedge (take your pick)
2) A weighted blanket
3) A bedside/portable basket for your essentials
4) A 1L insulated water bottle
5) Dimmable lights (IKEA’s system is quite affordable)
6) Honourable mentions: fidget toys, plushies, blankets, and other cozy items.

🫶🏻💜🫶🏻
#MECFS #LongCovid #autoimmunity

@keithwilson.eu Link to last year's @patientled #LongCovid Fact Sheet: https://patientresearchcovid19.com/storage/2025/03/Long-COVID-Awareness-Day_-2025-Fact-Sheet.pdf

Maryland may soon become the first U.S. state to directly support Long COVID research and development

https://thesicktimes.org/2026/02/06/maryland-considers-long-covid-innovation-bill/

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

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The Sick Times "Maryland considers Long COVID innovation bill" Maryland may soon become the first U.S. state to directly support Long COVID research and development. The proposed bill doesn’t allocate government funding to Long COVID research. It uses existing infrastructure in the state to create a system for distributing potential gifts from private donors.

At parts of the Winter Olympics in Italy, COVID precautions remain, grounded in the reality that airborne infections are still circulating. When your body is your livelihood, prevention is part of performance.

#COVID #COVID19 #PublicHealth #InfectionPrevention #Olympics #LongCOVID #MaskUp #N95

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Photo of four athletes seated at a press conference table, all wearing face masks, with microphones in front of them. A blue backdrop behind them shows sponsor logos (including P&G, Samsung, TCL, Visa, Salomon) and Olympic branding. WHN branding “whn.global” appears at the top left. Large yellow text over the lower half reads: “Olympians are still masking in 2026” Smaller white text below reads: “At the Winter Olympics in Italy, some athletes are still masking and isolating, aware that COVID and other respiratory illnesses are not over.” Footer text: “The World Health Network is a network devoted to global compassion—working together to inspire collective action through science for a safer, healthier world.”

That moment when you have to admit defeat and medically withdrawal from University due to the compounding effect of multiple disabilities/illnesses. 😞

I tried, friends.
For two years, I gave it my all.

Now, I’ve got at least 3-6 months off to focus on trying to stabilize my health. I’d like to return for spring/summer, but it’ll likely be in the fall.

(cont. on second post)

#medical #ph #disability #disabled #mecfs #pots #autoimmunity #LongCovid #Accessibility

Ask your doctor which infectious disease might be right for your child. /s
#Covid #Rsv #MIS-C #CovidIsntOver #LongCovid

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An old cigarette ad, with the slogan “More doctors smoke camels than any other cigarettte”. Shows a man in a suit with a white doctors coat on top, smoking a cigarette.

In case you missed this big, exciting news:

Germany Declares 'National Decade Against Post-Infectious Diseases'

https://www-bmftr-bund-de.translate.goog/SharedDocs/Kurzmeldungen/DE/2025/11/nationale-dekade-postinfekti%C3%B6se-erkrankungen.html?utm_source=newsletter&utm_medium=email&utm_campaign=february-2026-newsletter&_x_tr_sl=de&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp

From February 2026 Massachusetts ME/CFS & FM Association newsletter

https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253

#MEcfs @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

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Germany Declares 'National Decade Against Post-Infectious Diseases' The German government has launched a ten-year initiative to find the underlying biological mechanisms and effective treatments for post-infective diseases. The 'National Decade Against Post-Infectious Diseases' initiative commits 500 million Euros over ten years ($540 million) and will specifically focus on ME/CFS. Federal Research Minister Dorothee Bär, in announcing the strategy, noted that "The need for research is enormous: for ME/CFS and post-viral autoimmune diseases there are still no simple solutions or therapies, and previous studies demonstrate the complexity of the disease mechanisms."

To Ground Research in the Lived Experience of Patients and Caregivers, Give Us a Voice!

Screenshot from February 2026 AMMES newsletter

https://www.annfammed.org/content/23/6/570

#chronicillness #Spoonie #MEcfs #CFS #POTS #LongCovid #hEDS #CCI @mecfs @longcovid @pots

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One hand holding another hand in a supportive way To Ground Research in the Lived Experience of Patients and Caregivers, Give Us a Voice! My daughter has been diagnosed with a range of chronic conditions, including Hyper-mobile Ehlers-Danlos Syndrome and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). I have approached my role as caregiver in the same way I approach my day job leading social science research: reading the literature, carefully observing her condition, and developing hypotheses about her conditions and how they might be treated. I now have more than 7 years of longitudinal observation—a wealth of data—but no easy way to share with the medical research community the hypotheses these observations have engendered and my ideas about how to productively structure future research to accelerate progress toward treatments for her and others like her. Read more here>>

"Pacing in the Real World"

Another blogpost I liked a lot by this OT who specialises in ME/CFS & long Covid.

Contains lots of practical tips. As she says, an emphasis is harm reduction rather than perfection

https://onelifelivedwell.substack.com/p/pacing-in-the-real-world

#MEcfs #LongCovid #CFS #PwME #Pacing #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @longcovid

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Another blogpost I liked a lot by this OT who specialises in ME/CFS and long Covid. Contains lots of practical tips. As she says, an emphasis is harm reduction rather than perfection "Pacing in the Real World" https://onelifelivedwell.substack.com/.../pacing-in-the... Headings: 1: Let’s start here: perfection is a myth (and honestly, a little rude). 2: Triage, a tool for days when everything feels urgent 3: Micro-recoveries (a tiny rebellion). 4: Positions matter more than you think 5: Help looks different when you don’t have a village. 6: Cognitive load counts too. 7: Lower the bar (I know, I know). #MEcfs #LongCovid #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome Pacing in the Real World Where stopping isn't always an option. Abby Nov 10, 2025 Sometimes pacing can feel like a luxury for people who have margins, people who have extra hands, extra hours, extra anything. What do you do when the world still expects you to operate like nothing has changed, even when your body has?

Give me hope & help me escape #abuse & finally get out of here.

Please help by hitting 🔄 #BOOST 🗒️ QUOTE & 💸 GIVE IF YOU CAN. Please #share on all social media platforms you’re on. I can’t get to all.

🚨### Urgent Appeal: Help Anna #Escape #Abuse – Time is Running Out! 🚨

https://chuffed.org/project/161937-help-anna-escape

Thanks so much for reading! 🙏

#MutualAid #Narcissist #NarcissisticAbuse #Crowdfund #pwlc #chronicillness
#LongCovid #MyalgicEncephalomyelitis
#MECFS #PWME #SevereME #ChronicPain
@mecfs
@mutualaid

RECOVER Research Review Webinar: Long COVID trajectories in adults, February 10

Links:
https://rtiorg.zoom.us/webinar/register/WN_N2vZj5WDQzyTJ0qmjXm0LA#/registration

https://recovercovid.org/r3-seminar-series

From February 2026 Massachusetts ME/CFS & FM Association newsletter

https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver

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RECOVER Research Review Webinar: Long COVID trajectories in adults, February 10 Researchers in the NIH's RECOVER (Researching COVID to Enhance Recovery) project will present findings about the clinical presentation of Long COVID and how it changes over time on Tuesday, February 10, at 12:00 PM (ET) . Register here. Previous research review seminars can be viewed here.

Most doctors’ knowledge of Long COVID vs The published Long COVID science.

#LongCOVID #COVIDisNotOVER #COVIDisAIRBORNE

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Two images side by side. On the left, a tiny book held between fingers labeled “Most doctors’ knowledge of Long COVID.” On the right, someone holding a huge, heavy book labeled “The published Long COVID science,” highlighting the big knowledge gap.

Long COVID is not psychosomatic. It is a complex, multisystem condition with physical causes documented across growing bodies of research. Preventing COVID-19 infections remains one of the most effective ways to reduce long-term harm.

Shared from the WHN Voices section — reflecting an individual’s lived experience and review of current research. Read full post here: https://whn.global/long-covid-is-not-psychosomatic/

#LongCOVID #LongCOVIDAwareness #COVID19 #COVID #PublicHealth #InfectionPrevention

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Graphic from WHN (whn.global). Background shows two black-and-white brain scan images at the top. A white banner reads: “This post is adapted from a Voices submission on the WHN website, authored by an individual drawing on personal experience and research.” Main text on a yellow panel over a teal background says: “Long COVID is not ‘all in your head’.” Below: “Long COVID is a complex, chronic illness with real, measurable physical effects. Yet millions of people are still told their symptoms are caused by stress, anxiety, or mindset — not disease.” Footer text: “The World Health Network is a network devoted to global compassion—working together to inspire collective action through science for a safer, healthier world.”

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WHN graphic (whn.global) on a white background with a large yellow highlighted headline: “Research increasingly links Long COVID to physical mechanisms, including:” Bullet list: “viral persistence”; “immune and autoimmune dysfunction”; “nervous system injury”; “mitochondrial damage”; “endocrine disruption”; “vascular injury and microclotting”. Bold text below: “This is not psychosomatic illness. It is a biological condition affecting multiple systems in the body.” At the bottom are two images: a close-up illustration/photo of mitochondria on the left and a human neck/throat image with the thyroid area highlighted on the right. Footer text: “The World Health Network is a network devoted to global compassion—working together to inspire collective action through science for a safer, healthier world.”

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WHN graphic (whn.global) with a solid yellow background and large headline: “Preventing COVID-19 reduces the risk of Long COVID.” Bold paragraph: “Long COVID arises from SARS-CoV-2 infection. Reducing exposure to the virus is therefore a primary prevention strategy.” Next paragraph: “Evidence-based measures — including clean indoor air, respiratory protection, testing, and staying home when sick — lower transmission risk and reduce the likelihood of long-term health impacts.” Final line: “Preventing infection protects both individual and population health.” Footer text: “The World Health Network is a network devoted to global compassion—working together to inspire collective action through science for a safer, healthier world.”

Dieser Text schaffte es auf die Titelseite von @derStandard
Geschrieben von der stellvertretenden Chefredakteurin.

Da versuchen wir seit Jahren, durch medizinische Aufklärung ins kollektive Bewusstsein zu bringen, dass es nicht gut ist, wenn Leute krank in die Arbeit, in die Schule, in den Kindergarten gehen. Nein, der Glaube, dass Kinder krank sein müssten, um gesund zu bleiben, ist grundfalsch.

Durch viel Aufklärung und oft persönliche schlechte Krankheitserfahrungen hat sich bei vielen Lehrenden durchgesetzt, dass kranke Kinder ernst zunehmen sind. Zum Wohle der Kinder und zum Wohle der Lehrenden. Immerhin sind sie -noch vor den Gesundheitsberufen - die Berufsgruppe mit dem höchsten Anteil an #LongCovid und anderen postakuten Infektionssyndromen (PAIS).

Aber wenn die Kinder zu Hause halt zu mühsam sind...

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Wunderheilung im Winter Bisher konnte dieser Winter einiges, was seine unmittelbaren Vorgänger nicht konnten: eisig kalt und glatt sein, zum Beispiel. Dass sich dadurch auch die üblichen Viren länger als normal halten, ist nur ein Gerücht. Aber gefühlt ist es so. Ständig bleibt ein Familienmitglied mit roter Nase und zu Hause. Oder wird von Lehrern nach Hause geschickt. Was für jene, die gerade nicht krank, dafür aber im Büro sind, bedeutet: ebenfalls nach Hause eilen, Tee kochen, Hustensaft kaufen, Fieber messen, Extra-Bildschirmzeit genehmigen. Anstrengend! Vor allem, wenn die nach Hause Geschickten, sobald sie auf dem heimischen Sofa crashen, Wunderheilungen durchleben. Vielleicht bin ich gemein, aber mir fehlt eben das Florence-Nightingale-Gen. Zumal ich es auch nicht gewöhnt bin: In meiner Kindheit wurden wir nicht beim ersten Hatschi in Watte gepackt. Damals sagten mitleidlose Lehrerinnen noch: "Glasig sind deine Augen nicht, also kein Fieber." Oder: "Es sind eh nur mehr zwei Stunden, das hältst du schon aus." Die heutige Jugend dagegen feiert, so mein Verdacht, große Erfolge mit Lernzeit-bedingtem Bauchweh und mathematisch konnotierten Kopfschmerzen. Wir sind sehr froh über Eure Achtsamkeit, liebe Lehrerinnen und Lehrer! Aber beim nächsten Mal schicken wir Euch die Wundergeheilten wieder zurück, versprochen. (Petra Stuiber, 03.02.2026)

· A treatment for cats with a #COVID19-related infection may help advance #LongCOVID research
· The supplement Oxaloacetate may help reduce fatigue for LC, but it “did not reach statistical significance,” according to a new study at Bateman Horne Center
· A new prospective cohort study in JAMA Oncology of 1,572 participants with cancer found that COVID-19 had a “significant impact” on these patients, incl. hospitalization, treatment disruptions, death

https://thesicktimes.org/2025/07/22/research-updates-july-22/

#ResearchUpdate

· Two studies on potential biomarkers for #MECFS were published this month
· Stellate ganglion blocks, a procedure where an anesthetic is injected into nerves in the neck, may help reduce the severity of some symptoms of #LongCOVID and ME
· An observational study is recruiting 40 people in Boston, Massachusetts to test for defects of air and blood flow in the lungs in people with Long COVID

https://thesicktimes.org/2025/07/29/research-updates-july-29/

#ResearchUpdate #COVID19

· A drug originally developed for celiac disease was found to be safe and effective in treating a post-COVID syndrome in children
· “Dormant cancer cells are like the embers left in an abandoned campfire, and respiratory viruses are like a strong wind that reignites the flames,” said one of the authors of a new study in Nature
· An upcoming at-home clinical trial program for #LongCOVID, run by Scripps Research, is seeking participants

https://thesicktimes.org/2025/08/05/research-updates-august-5/

#ResearchUpdates #COVID19

· People with myalgic encephalomyelitis (#MECFS) have significant genetic differences in their DNA
· A very small clinical trial of the infusion drug BC 007 published in eClinicalMedicine found “significant improvement” in fatigue in people with #LongCOVID
· A phase 2 clinical trial testing the monoclonal antibody sipavibart is recruiting in Fort Lauderdale, Florida

https://thesicktimes.org/2025/08/12/research-updates-august-12/

#ResearchUpdates #COVID19

· A new preprint from the National Institutes of Health (NIH) RECOVER study found that #COVID19 reinfections may increase risk of #LongCOVID by about 35%
· A new review article in Ageing Research Reviews found that persistent infections from viruses, bacteria, fungus, and parasites can accelerate human aging
· A new Long COVID clinical trial to test the immunotherapy drug Anktiva was announced this week by the Chan Soon-Shiong Institute for Medicine

https://thesicktimes.org/2025/08/19/research-updates-august-19/

#ResearchUpdates

· Metformin may help reduce the risk of #LongCOVID, according to two new studies
· A Phase 2 clinical trial is studying the drug vidofludimus calcium (IMU-838) for Long COVID
· The National Institutes of Health’s second RECOVER-Treating Long COVID workshop is happening next week, September 9–10

https://thesicktimes.org/2025/09/02/research-updates-september-2/

#ResearchUpdates #COVID19

· A medium sized study in Saudi Arabia found that 29% of participants who were infected with SARS-CoV-2 developed #LongCOVID
· In a small case series, a combination of three antivirals was effective in improving symptoms in participants with Long COVID, according to a new preprint
· The Food and Drug Administration (FDA) accepted the drug application of a potential oral therapy for the prevention of #COVID19 following exposure

https://thesicktimes.org/2025/09/09/research-updates-september-9/

#ResearchUpdates

· An estimated 36% of people with a documented SARS-CoV-2 infection worldwide have experienced #LongCOVID, according to a new systematic review
· New funding will help advance a potential low-cost diagnostic test for myalgic encephalomyelitis (#ME)
· The SPEAR study group has proposed a potential Long COVID clinical trial with the company’s next-generation monoclonal antibody, VYD2311

https://thesicktimes.org/2025/09/16/research-updates-september-16/

#COVID19 #ResearchUpdates

· Two recent studies found limitations of the drug Paxlovid for protection from #LongCOVID, contrasting prior studies that suggested the antiviral drug might help prevent the disease
· Long COVID may increase menstrual bleeding, according to a new survey study published in Nature Communications
· A new clinical trial is testing the supplement Mitoquinone in combination with “exercise rehabilitation” (which may be detrimental) for Long COVID

https://thesicktimes.org/2025/09/23/research-updates-september-23/

#ResearchUpdates #COVID19

· Researchers in Spain assessed over 190,000 participants, found that #LongCOVID prevalence was three to 10 times higher in individuals with three or more reported infections
· A new RECOVER study published in JAMA found that olfactory dysfunction, or changes to sense of smell, occurred in people after SARS-CoV-2 infection
· A behavioral trial at Columbia University (LONG-CALM) is assessing a vague “mindfulness intervention” for Long COVID

https://thesicktimes.org/2025/09/30/research-updates-september-30/

#COVID19 #ResearchUpdates

· A review paper summarizes the vast global costs of #LongCOVID, it is estimated to have an average annual burden of at least $1 trillion globally per year
· A small study in Nature found SARS-CoV-2 in the organs of fetuses from people who were infected with the virus while pregnant
· The National Institutes of Health’s RECOVER-Treating Long COVID initiative released a draft of its protocol for the low-dose naltrexone trial for people ages 6-25

https://thesicktimes.org/2025/11/25/research-updates-november-25/

#ResearchUpdates #covid19

· Large retrospective cohort study of over 18,000 births found infants exposed to #COVID19 during pregnancy were more likely to have adverse neurodevelopmental diagnoses as 3 years olds
· Another study has found that common diabetes drug metformin may help reduce risk of #LongCOVID
· NIH is recruiting for a small observational study to understand if people with neurological symptoms of Long COVID have inactive [?] remnants of SARS-CoV-2 in their bodies

https://thesicktimes.org/2025/12/02/research-updates-december-2/

#ResearchUpdates

· A new study in the International Journal of Infectious Diseases examines how #COVID19 impacts the immune system
· German government announced just over €500 million ($582 million USD) in funding for infection-associated diseases, including #LongCOVID & #MECFS
· A preprint using data from the DecodeME study found more than 250 genes associated with ME, 76 of which were shared with Long COVID

https://thesicktimes.org/2025/12/09/research-updates-december-9/

#researchupdates

· New study in Cureus found veterans diagnosed with #LongCOVID at 34% higher risk of visiting emergency department 6 months after infection
· “Our data demonstrate that [LC] is characterized by chronic inflammation, immune exhaustion, & metabolic dysregulation,” scientists conclud in new study published in Nature Immunology
· U.K. charity ME Association awards £1.1 million in funding to the Imperial College to study immunological profiles of LC & #MECFS

https://thesicktimes.org/2025/12/16/research-updates-december-16/

#ResearchUpdates

· Two recent studies state that #LongCOVID is an occupational disease.
· Vanderbilt researchers are conducting an immune profiling study on people with Long COVID and postural orthostatic tachycardia syndrome (#POTS)
· A new phase two remote clinical trial was recently announced for myalgic encephalomyelitis (ME) #MECFS

https://thesicktimes.org/2025/12/23/research-updates-december-23/

#ResearchUpdates

· 43% of Latino people reported symptoms of #LongCOVID in a new survey study published in Journal of General Internal Medicine
· A case series for Long COVID using a combination of Paxlovid, valacyclovir (Valtrex) and celecoxib (Celebrex), was recently published in Frontiers of Immunology
· A new phase II clinical trial for Long COVID was recently announced in the Netherlands

https://thesicktimes.org/2026/01/06/research-updates-january-6/

#ResearchUpdates #COVID

· A large, electronic health records study published in JAMA Internal Medicine estimated that over 100,000 Americans died each year between 2022 and 2024 from #COVID19
· A new study published in Molecular & Cellular Proteomics found further evidence of abnormalities in post-exertional malaise #PEM
· A small phase two clinical trial is testing #Ketamine for #LongCOVID fatigue and cognitive function

https://thesicktimes.org/2026/01/13/research-updates-january-13/

#ResearchUpdates #TheSickTimes

· A new study in eBioMedicine found neurological #LongCOVID symptoms were associated with increased pTau-181 levels, a marker of brain inflammation tied to Alzheimer’s disease
· A new “state-of-the-art” review on #POTS highlighted that the multisystemic condition is disabling, causes societal & economic withdrawal
· A phase II clinical trial testing efficacy & safety Uplizna (Inebilizumab) in LC & #MECFS recently announced by German Ministry of Research

https://thesicktimes.org/2026/01/20/research-updates-january-20/

#ResearchUpdates

· A large prospective cohort study published in Infectious Diseases found that a majority of people with #LongCOVID did not recover
· Some researchers in Australia are getting a small boost in Long COVID funding
· The biotech company Invivyd is advancing research of a #COVID19 monoclonal antibody called VYD2311, designed to improve upon the currently-available Pemgarda

https://thesicktimes.org/2026/01/27/research-updates-january-27/

#ResearchUpdates