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Recent Posts

The Account Nobody Can Deposit To

·1020 words·5 mins
The federal government created ABLE accounts so disabled people could receive funds without losing benefits. No fundraising platform will deposit to them. That’s not how this is supposed to work.

The Gap Nobody's Building For

·846 words·4 mins
I’ve been sitting with a vision for months. A learning program designed for multiply disabled people from the ground up. Not accommodations bolted onto a broken system, but something built for us as the default case. This isn’t a launch. It’s a ramp.

Becoming

·929 words·5 mins
A reflection on seven months of loss, change, and becoming. How my plans fell away so something else could take shape, and how I found peace with who I’m becoming, even while some questions remain unanswered.

To Those Who Infantilize Me

·2428 words·12 mins
A lifetime of being talked down to, left out, and left behind by people who assumed I couldn’t rather than asking what I needed. This is what infantilization looks like from the inside, and what it costs the people it happens to.

Privacy Is a Luxury I Can't Afford

·1234 words·6 mins
The privacy community pushes self-hosting, de-Googling, and more private alternatives as universal goods. But for disabled users with multiple conditions, those solutions often cost more, work less, and break when we need them most. Privacy shouldn’t require giving up the tools that keep us functioning.

Everrealm: A Game I Built Because Nobody Else Would

·903 words·5 mins
I built a screen-reader-first kingdom builder because I can’t play the games the audiogame community keeps making. The alpha is live, the feedback is coming in, and it works.

What the System Doesn't Count

·2872 words·14 mins
The care system measures whether you can walk, eat, and speak. It doesn’t measure the kitchen you can’t use, the routine you can’t control, or the relief of finally stopping the impossible job of being your own full-time caregiver while disabled.

The Words That Don't Translate

·2472 words·12 mins
My family built a vocabulary for what it’s actually like to live in my body. Systems have their own vocabulary, and none of it has room for mucus-y days, whooshy nights, or the dog who saw the version of me that was actually there.

The Cost of Appearing Functional

·2665 words·13 mins
Multiple disabilities don’t add up to twice the difficulty. They compound. And the hidden cost of producing “acceptable” output from a system with no reserve capacity is one that no assessment, no checklist, and no institution has ever known how to count.