M. M.
COLLEGE OF NURSING
         MULLANA, AMBALA
                         INSERVICE EDUCATION
                        TOPIC: FAMILY CENTRED CARE
SUBMITTED TO:                                        SUBMITTED BY:
Dr. (Mrs) Jyoti Sarin                                         Ms.
Janet Chaudhary
Director, Principal                                           M. Sc
Nursing 1st year
1909719
                                         IDENTIFICATION DATA: -
Name of the student teacher   : Ms. Balwinder Kaur, Ms. Janet Chaudhary, Mrs. Jasdeep Kaur, Mrs. P. J. Subhashini,
                                Ms. Sandeep Kaur, Ms. Kiran Khasa.
Class                         : M. Sc Nursing 1st Year
Name of the Subject           : Nursing Education
Name of the Topic             : Family Centred care
Group of the students         : Staff Nurses of Kalawati Saran Children Hospital
Size of the Group             : 30
Date and Time                 : 25/01/2010 ; 09:45 am- 12:30 pm
Duration of teaching          : 2 hour
Method of Teaching            : Lecture cum Discussion
A.V. Aids                     : PowerPoint Slides and charts
General Objectives            : At the end of the topic the nursing personnel will be able to exhibit increase in the knowledge
                               Regarding family - centred care and will be able to inculcate family centred care into their practice.
 TIME      SPECIFIC          CONTENT       TEACHING – LEARNING                 EVALUATION
          OBJECTIVES                           OBJECTIVES
5 min    To introduce the              INTRODUCTION OF THE SELF:
         topic.                        Today we the students of M. M.
                                       College of Nursing, Mullana,
                                       ambala are conductiong an
                                       inservice education programme on
                                       the topic family centred care at
                                       Kalawati Saran Children Hospital,
                                       New Delhi.
10 min   At the end of the             INTRODUCTION OF THE TOPIC:
         lecture the
         participants will              The illness of a child can have a
         be able to                    traumatic effect on both family and
         explain the                   a child. Paediatric care has
         meaning of                    adopted the philosophy of a family
         family centred                centred care approach in order to
         care.                         maximize      the   wellbeing     of
                                       paediatric patient. Parents are
                                       experts in the child’s care and
                                       know more about their child then
                                       we can learn through assessments
                                       and charts.
                                       Family-centred     care      is    an
                                       approach to children’s health care
                                       that respects the central role of the
                                       family in a child’s life. It upholds
                                       the importance of the family as a
                                       partner on the health care team.
 TIME      SPECIFIC                                 CONTENT                                  TEACHING – LEARNING               EVALUATION
          OBJECTIVES                                                                             OBJECTIVES
3 min    At the end of the HISTORY OF FAMILY CENTRED CARE:                                                                    Family centred
         lecture the       ■ Family-Centred care was first defined in 1987 as part The student – teacher will explain         care was first
         students will be    of former Surgeon General Koop’s initiative for family- the history of family centred care       defined in the
         able to             centred, community-based, coordinated care for with the help of PowerPoint slides.               year?
         understand the      children with special health care needs and their
         history of family   families. The Key Elements of Family-Centred Care
         centred care.       were further refined in 1994 by the ACCH (Association
                             for the Care of Children’s Health). These key elements
                             are widely accepted by families and professionals alike
                             as they embody both the spirit and heart of Family-
                             Centred Care. Family Centered Care challenges the
                             traditional approaches that:
                             † Focus on patient and family deficits
                             † Disempowering patients and families
                             † Rely heavily on technology and biomedical science
                             † Undervalue the importance of human interactions in
                                the health care experience
                             † Are driven by the needs of the healthcare
                                professionals and the system
                             PHILOSPHY OF FAMILY CENTRED CARE:
12 min
         At the end of the   According to Wong and Hockenbery, the philosophy of         The student – teacher will explain   Explain the
         lecture the         family centred care recognizes the family as the constant   the philosophy of family centred     philosophy of the
         students will be    in a child’s life, health care professionals enable and     care with the help of PowerPoint     family centred
         able to explain     empower families to continue their care giving role.        slides.                              care.
         the philosophy      Families are supported in their natural care giving and
         of family centred   decision making roles by building on their unique
         care.               strengths as individuals and families.
TIME     SPECIFIC                                  CONTENT                                    TEACHING – LEARNING              EVALUATION
        OBJECTIVES                                                                                OBJECTIVES
                           This philosophy also acknowledges diversity among
       At the end of the   family structures and backgrounds, family goals, dreams,
       lecture the         strategies for coping and actions to deal with problems
       students will be    and family support such as relatives and friends, family-
       able to explain     centred care is built on partnerships between families and     The student – teacher will explain
       the philosophy      professionals. ‘Family-centred care was first intended for     the philosophy of family centred
       of family centred   children with special needs, it can also be relevant in all    care with the help of PowerPoint
       care.               settings and can be applied to persons of all ages.’           slides.
                           Family-centred professionals acknowledge and respect
                           family diversity Family-centred care is an approach to
                           health care that shapes health care policies, programs,
                           facility design, and day-to-day interactions among
                           patients, families, physicians, and other health care
                           professionals. Health care professionals who practice
                           family-centred care recognize the vital role that families
                           play in ensuring the health and well-being of children and
                           family members of all ages. These practitioners
                           acknowledge that emotional, social, and developmental
                           support is integral components of health care. They
                           respect each child and family’s innate strengths and view
                           the health care experience as an opportunity to build on
                           these strengths and support families in their care giving
                           and decision-making roles.
                           Family-centred approaches lead to better health
                           outcomes and wiser allocation of resources as well as
                           greater patient and family satisfaction. Family-centred
                           care in paediatrics is based on the understanding that the
                           family is the child’s primary source of strength and support
                           and that the child’s and family’s perspectives and
                           information are important in clinical decision making.
 TIME      SPECIFIC                                  CONTENT                                    TEACHING – LEARNING               EVALUATION
          OBJECTIVES                                                                                OBJECTIVES
                             Family-centred practitioners are keenly aware that health      The student – teacher will explain
                             care experiences can enhance parents’ confidence in            the philosophy of family centred
                             their roles and, over time, increase the competence of         care with the help of PowerPoint
                             children and young adults to take responsibility for their     slides.
                             own health care, particularly in anticipation of the
                             transition to adult service systems.
                             CORE CONCEPTS OF FAMILY CENTRED CARE:
                             Family-centred care core concepts include:
10 min   At the end of the   FAMILY STRENGTHS:
         lecture the         The family is the constant in the child's life. Support and    The student – teacher will explain   Explain in detail
         students will be    empower family members as partners and decision-               the core concept of family centred   the core concepts
         able to explain     makers in their child's care and help them cope more           care with the help of PowerPoint     of family centred
         the core            confidently with their child's illness.                        slides.                              care?
         concepts of
         family centred      RESPECT:
         care.               Family-centred care requires trust and respect, including
                             respect for each family's values, beliefs, and religious and
                             cultural background.  Value families' knowledge of their
                             children, acknowledging their authority as decision-
                             makers and respect their choices.
                             CHOICE:
                             Provide the information families need to make educated
                             choices about treatment and support the choices they
                             make.  When families understand their options, they feel
                             less powerless about their child's hospital experience.
TIME     SPECIFIC                                  CONTENT                                    TEACHING – LEARNING               EVALUATION
        OBJECTIVES                                                                                OBJECTIVES
                           INFORMATION SHARING:
       At the end of the   Professional staff provides medical information to families    The student – teacher will explain   Explain in detail
       lecture the         and values the personal information families provide           the core concept of family centred   the core concepts
       students will be    about their children.  This information exchange builds        care with the help of PowerPoint     of family centred
       able to explain     trust and contributes to the partnership between families      slides.                              care?
       the core            and caregivers.
       concepts of
       family centred      SUPPORT:
       care.               Support families by respecting their decisions; offering
                           comfort as they cope with the child's illness; meeting the
                           social, developmental and emotional needs of the child;
                           and fostering family members' confidence in their ability to
                           care for their child.
                           FLEXIBILITY:
                           Families bring different personalities, life experiences,
                           values, beliefs, education, and religious and cultural
                           backgrounds to the hospital setting.  Family-centred care
                           emphasizes that caregivers must be flexible so they can
                           meet the needs and preferences of all families.
                           COLLABORATION:
                           As partners in care, professional staff and family
                           members work together as collaborators in the best
                           interest of the child.
                           EMPOWERMENT:
                           Families have the right and the authority to care for their
                           children.  The core concepts of family-centred care
                           empower families in the care of their children.
 TIME      SPECIFIC                                CONTENT                                     TEACHING – LEARNING               EVALUATION
          OBJECTIVES                                                                               OBJECTIVES
10 min   At the end of the ELEMENTS OF FAMILY-CENTRED CARE:
         lecture the                                                                       The student – teacher will explain Enumerate the
         students will be  ■ Recognize that the family is the constant in the child's      the elements of family centred care elements of family
         able to explain     life, while the service systems and personnel within          with the help of PowerPoint slides centred care.
         the elements of     those systems fluctuate.                                      and chart.
         family centred
         care.             ■      Share complete and unbiased information with
                             parents about their child's condition on an ongoing
                             basis. Do so in an appropriate and supportive manner.
                           ■      Recognize family strengths and          individuality.
                               Respect different methods of coping.
                           ■      Encourage and make referrals to parent-to-parent
                               support.
                           ■       Facilitate parent/professional collaboration at all
                               levels of health care -- care of an individual child,
                               program development, implementation, and evaluation
                               policy formation.
                           ■       Assure that the design of health care delivery
                               systems is flexible, accessible and responsive to
                               families.
                           ■      Implement appropriate policies and programs that
                               provide emotional and financial support to families.
                           ■       Understand and incorporate the developmental
                               needs of children and families into health care delivery
                               systems.
TIME     SPECIFIC                                 CONTENT                                  TEACHING – LEARNING                EVALUATION
        OBJECTIVES                                                                             OBJECTIVES
       At the end of the   ■ Recognizing that the family is the constant in a child's
       lecture the           life, while the service systems and personnel within The student – teacher will explain Enumerate the
       students will be      those systems fluctuate.                                    the elements of family centred care elements of family
       able to explain                                                                   with the help of PowerPoint slides centred care.
       the elements of     ■ Facilitating child/family/professional collaboration at all and chart.
       family centred        levels of service.
       care.
                           ■ Sharing with the family, on a continuing basis and in a
                             supportive manner, the best information regarding their
                             child's health care.
                           ■ Understanding and incorporating the developmental
                             needs of infants, children, adolescents, and their
                             families in health care delivery.
                           ■ Recognizing family strengths and individuality and
                             respecting different methods of coping.
                           ■ Recognizing and honouring diversity, strengths and
                             individuality within and across all families, including
                             racial, spiritual, social, economic, educational and
                             geographical diversity.
                           ■ Encouraging and facilitating family-to-family support
                             and networking.
                           ■ Implementing comprehensive policies and programs
                             that provide support to meet the diverse health care
                             needs of families.
                           ■ Designing accessible service systems that are flexible,
                             sensitive, and responsive to family-identified health
                             care needs
 TIME      SPECIFIC                                  CONTENT                                   TEACHING – LEARNING                EVALUATION
          OBJECTIVES                                                                               OBJECTIVES
                             BENEFITS OF FAMILY CENTRED CARE:
10 min   At the end of the   ■        A stronger alliance with the family helps in The student – teacher will explain Explain the
         lecture the             promoting each child’s health and development              the benefits of family centred care benefits of family
         students will be    ■        Improved clinical decision making on the basis of with the help of PowerPoint slides. centred care.
         able to explain         better information and collaborative processes
         the benefits of     ■        Improved follow-through when the plan of care is
         family centred          developed collaboratively with families
         care.               ■        Greater understanding of the family’s strengths and
                                 care giving capacities
                             ■        More efficient and effective use of professional time
                                 and health care resources (e.g. more care managed at
                                 home, decrease in unnecessary hospitalizations and
                                 emergency department visits, more effective use of
                                 preventive care)
                             ■        Improved communication among members of the
                                 health care team
                             ■        A more competitive position in the health care
                                 marketplace
                             ■        A practice environment that enhances professional
                                 satisfaction
                             ■        Greater child and family satisfaction with their
                                 health care
                             ■        Family-Centered Care improves and enhances
                                 clinical outcomes for children with special needs and
                                 provides more support for their families as they deal
                                 with the challenges and joys of raising a child with
                                 special needs Greater child and family satisfaction with
                                 their health care
 TIME      SPECIFIC                                  CONTENT                                    TEACHING – LEARNING                EVALUATION
          OBJECTIVES                                                                                OBJECTIVES
                             BARRIERS TO PARENT PARTICIPATION IN FAMILY-
                             CENTRED CARE
10 min   At the end of the   ROLE STRESS:
         lecture the         All roles that a person adopts are subject to role stress      The student – teacher will explain Enumerate the
         students will be    during certain periods of his or her life. Role stress is a    the barriers to parent participation barriers in parent
         able to explain     "subjective experience that is associated with lack of role    in family centred care with the help participation?
         the barriers to     clarity, role overload, role conflict, or temporary role       of PowerPoint slides.
         parent              pressures" . It can affect the communication process by
         participation in    causing the person to focus solely on the source of the
         family centred      stress rather than on the underlying issues. Parenting
         care.               roles can be subjected to role stress from an ill child as
                             well as from the different and greater demands placed on
                             the parent as a result of the child's illness. During both
                             hospitalization and home care, the parent's role changes
                             from parenting the healthy child to parenting an acutely ill
                             child. With such a shift in relations, stress will occur
                             naturally.
                             NEGOTIATION         FAILURE:         Negotiation    "implies
                             discussion resulting in mutual agreement" Negotiation in
                             family-centered care involves an open relationship
                             between the nurse, child, and parents whereby caring
                             roles are established. Positive negotiation between the
                             parents and nurse result in reaching an agreement with
                             the parents concerning their roles in providing care
                             without imposing any of their own erroneous expectations
                             on one another Failed negotiations in care arrangements
                             and poor nurse-family relationships can interfere with the
                             health care experiences for the child and parents, as well
                             as the parents' desire to care for their ill child.
 TIME      SPECIFIC                                  CONTENT                                    TEACHING – LEARNING                EVALUATION
          OBJECTIVES                                                                                OBJECTIVES
                             NURSES’S   RESPONSIBILITIES             IN    PROVIDING
                             FAMILY CENTERD CARE:
10 min   At the end of the          Nurses play very important role in providing family     The student – teacher will explain   Explain the
         lecture the         centered care. As nurses act as collaborator between the       the nurse’s responsibilities in      responsibilities of
         students will be    physician and family so she plays a leading role in            providing family centred care with   the nurse’s in
         able to explain     providing family centered care to children                     the help of PowerPoint slides.       providing family
         the                 ■      The nurse recognize the family as an essential                                               centred care.
         responsibilities       part of the child's care and illness experience but also
         of the nurse in        acknowledges and respects the expertise of the family
         family centred         in caring for the child both within and outside of the
         care.                  hospital environment.
                             ■      The nurse may suggest parenting classes to
                                increase their knowledge base and promote
                                empowerment
                             ■      In the absence of the child's family during
                                hospitalization, the nurse should attempt to maintain
                                routines established by the family
                             ■      The nurse involves encouraging family-to-family
                                support and networking
                             ■      The nurse can also facilitate change and alleviate
                                role stress effectively by aiding the family in realizing
                                their own strengths, coping strategies, and support
                                networks.
TIME    SPECIFIC                              CONTENT                                TEACHING – LEARNING   EVALUATION
       OBJECTIVES                                                                        OBJECTIVES
                    ■ The acronym LEARN dictates the following directives
                      for nurses:
                      L - Listen empathetically and with understanding to the
                      family's perception of the situation.
                      E - Explain your perception of the situation.
                      A - Acknowledge and discuss the similarities as well as
                      differences between the two perceptions.
                      R - Recommend interventions.
                      N - Negotiate an agreement on the interventions.
                    ■ The pediatric nurse involves helping the parents
                      develop advocacy skills for their child to further
                      empower their role during hospitalization and home
                      care visits.
                    RESEARCH EVIDENCES               RELATED       TO    FAMILY
                    CENTERED CARE
                    ■         A short-term longitudinal descriptive evaluation of
                        current levels of parents' participation in the care of a
                        child hospitalized with leukaemia was conducted to
                        identify varying levels of parent participation and their
                        relationship    to   the    child's   behaviour     during
                        hospitalization. A positive relationship between the
                        number of activities a parent participates in and the
                        child's    behaviour     during     hospitalization   was
                        revealed( Dolores C Jones)
TIME    SPECIFIC                           CONTENT                                TEACHING – LEARNING   EVALUATION
       OBJECTIVES                                                                     OBJECTIVES
                    ■ Family-centered care (FCC) has been implemented in
                      many NICUs throughout the U.S. It is valuable in
                      helping families whose infants require hospitalization
                      cope with the stress, fear, and altered parenting roles
                      that may accompany their child's condition and
                      hospitalization. To employ such a significant philosophy
                      of care, nurses must understand what the FCC concept
                      signifies. A concept analysis can often aid
                      understanding of abstract ideas such as FCC. This
                      article utilizes a 1995 framework for concept analysis to
                      clarify the meaning of FCC for the neonatal nurse.
                      Incorporating FCC into daily professional practice can
                      enable nurses to improve the emotional and physical
                      well- being of each family they encounter.( Maluski K
                      Sheila)
 TIME     SPECIFIC        CONTENT       TEACHING – LEARNING               EVALUATION
         OBJECTIVES                         OBJECTIVES
                                    CONCLUSION:
5 min   To conclude the
        topic                         Family is a fundamental social
                                    group in society. Families are big,
                                    small, extended, nuclear and multi
                                    – generational, with one parent,
                                    two parents and grandparents. A
                                    family can be as temporary as a
                                    few weeks, as permanent as
                                    forever. Parents are experts in the
                                    child’s care and know more about
                                    their child then we can learn
                                    through assessments and charts.
                                    The family is also the child’s main
                                    source of support providing
                                    stability in what can be an
                                    otherwise traumatic period in
                                    child’s life.
        To summarize                SUMMARIZATION:
5 min   the topic                   Today we discussed about:
                                    ■ History of family centred care
                                    ■ Philosophy.
                                    ■ Core concepts.
                                    ■ Elements.
                                    ■ Benefits.
                                    ■ Barriers.
                                    ■ Nursing      responsibilities  in
                                      providing family centred care.
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 ■ Hockenberry,Wilson .Wong’s nursing care of infants and children. 2 nd ed.New delhi: elsiever India PVT ltd; 2007.p. 17 -18
 ■ Ball Jane, Bindle Buth. Pediatric nursing. 2nd edition . Connecticut; Appleton and lange publishers;1995.p. 14
 ■ Ahmann, E. (1994). Family-centered care: Shifting orientation. Pediatric Nursing, 20(2), 113-117.
 ■ Arnold, E., & Boggs, K. (1995). Interpersonal relationships (2nd ed.). Toronto: W.B. Saunders Company.
   [Seriaonline]2009Aug[cited2010JAN];9(4):187. Availablefrom:URL:http//www.nursingcenter.com/library/journal/article.asp?
   Article_ID=930266
 ■ Berlin, E.A., & Fowkes, W.C. (1983). A teaching framework for cross-cultural health care. The Western Journal of Medicine, 139(6),
   934-938. [serial online]2009 jul/sep[cited 2010 JAN 19];23(3):213-216.
   Availablefrom:URL:http//www.nursingcenter.com/library/journal/article.asp?Article_ID=93160
 ■   Brown, J., & Ritchie, J. (1990). Nurses' perceptions of parents and nurse roles in caring for hospitalized children. Children's
     Health Care, 19, 28-36. [ serial online] 2005 Aug[cited 2010 jan19]; 35(8):57-59. Available from: URL:http//www.ncbi.nlm.nih.gov
 ■ Callery, P. (1997). Caring for parents of hospitalized children: A hidden area of nursing work. Journal of Advanced Nursing, 26,
   992-998. [serial online] 2008 May [cited 2010jan19] ; 45(5) :376-78.Available from: URL:http//www.ncbi.nlm.nih.gov/pubmed