Showing posts with label Autoimmune. Show all posts
Showing posts with label Autoimmune. Show all posts

Wednesday, August 22, 2018

KNIT ONE PURL TWO


I am trying to write for at least an hour every day.  Some days all I can manage is a grocery list but like Stephen King said, “Sometimes you have to go on when you don't feel like it, and sometimes you're doing good work when it feels like all you're managing is to shovel shit from a sitting position.”  Believe me, most days I feel like I am following around an elephant.  Again, I digress.  I am writing with the encouragement of my quirky cousins to write then ship-it. (stops and waves to quirky cousins) So I am putting a stamp on this and shipping it.

Gladys climbed on the stationary bike cussing and huffing.  It was her third day at the Cardiac Rehab center.  She was feeling a little out of place, as she had not had a heart attack like the rest of these poor people, instead she had a rheumatic heart from childhood illness.  Her cardiologist wanted to get a baseline on her before she went off and killed herself exercising on her own.   Now if you have never been to a cardio rehab class let me give you a brief description of the events.   First thing you do when you get there is get your blood pressure, heart rate and blood oxygen levels.  This is done by waiting in line behind about fifty octogenarians and a dozen nonagenarians who all give you the stink eye wondering what your quinquagenarian self is doing here. It is not like Gladys is a spring chick but still those oldsters are just a little suspicious of those young whippersnapper baby boomers. Once you have your vitals you head over to stick electrodes all over your body with super glue stuck to toilet paper. 

Finally, you climb aboard one of the instruments of torture, otherwise known as the recumbent bicycle on which you are tortured for a minimum of fifteen minutes of pure agony.  Then you drag your limp and tired legs over to the next instrument of torture also known as the treadmill.  Once you have completed the Bataan death march they usher you to a machine on which you peddle up hills both ways with your hands.  Yes, it is a hand peddler.  Yes, I know, you are saying.  What the heck Gladys?  None of this is that bad.  But Gladys abhorred exercise.

The nice nurse came to her machine and dialed up a level three.  Let’s test your stamina she said.  This will be easy, she lied.  Gladys began to peddle and the more she peddled the harder it became.  The harder it became the harder she panted and puffed.  Her face turned beat red.  He hands gripped the handles as if they would save her from falling into the bowels of hell.  She began to sweat and her legs began to burn.  The faster she peddled the inertia caused her to slide down the seat causing her to have to pull herself off the floor and back up on the seat.


It was during one of these adjustments she noticed that someone had taken the seat next to her.  Not just anyone, but a small little elvish woman in a baby pink track suit with a shocking head of white hair.  She was the Betty White of cardio.  Gladys gulped air and huffed out a hello.  The little woman smiled and returned the greeting in a sweet soft voice, not at all inconvenienced by the weapon of mass destruction she was peddling.   By this time Gladys was convinced she is going to die right there with her feet in the stirrups.  She looked hopefully over at the nonagrian next to her for some commiseration only to find old Betty White wanna-be  knitting.  The woman is KNITTING while working out.  WHAT KIND OF VOODOO IS THIS?   She’s a witch!  Burn her! Burn her!  Gladys was sure this woman was not working at the same level as she.  She was probably on a level one, barely peddling so holding on tight to the handles she leaned as far over as she could without being thrown like a city slicker on a mechanical bull.  She stretched and squinted only to see that old Betty was three levels higher than she was at and was on a much harder program.  One that made her climb hills at a high incline.  Humph, Gladys thought.  She isn’t human, that has to be the explanation. 

Finally, her time on the recumbent torture machine was over and she drug her limp and lifeless body over to the treadmill where once again the not so nice lying nurse set the machine to the lowest level allowed.  The tread began to roll and Gladys stumbled and caught herself with the bar,  caught up to the cadence and began her huffing and puffing.  Just a moment or two later good old knitting Betty hopped up on the treadmill next to Gladys.  She smiled and set her machine once again to random hills at a high speed.  Then she did the unthinkable.  She reached down and grabbed her knitting and began to knit.  She began to knit while climbing Mount Kilimanjaro.  What in the love of GOD is this woman drinking?  Gladys gulped down some air and huffed and puffed praying to all things holy for the torture to end.  Betty White just knitted and smiled.  The clouds parted, the light came on and finally Gladys’ fifteen minutes were finally over.  She mustered up as much of a smile as possible, drank a half a bottle of water in one swallow and begged to go home.

The nurse lied again and told her just one more little machine.  No big deal.  Just peddle with your hands.  You will feel wonderful she lied, the time will fly by she said.  LIES they were all LIES.  Gladys climbed onto the seat and began hand peddling up K-2  huffing and puffing.  She peddled trying to keep her coordination going when she realized once again the knitting kitten is sitting next to her preparing to also do a little hand peddling.  Gladys couldn’t take it anymore.  She had, had enough.  She stopped and looked over at the sweet little old superhuman and said “if you start knitting with your feet while you are hand peddling, I AM DONE.”   Knitting Betty White smiled sweetly and said in her saccharine voice “oh honey, I’m good, but, even I am not THAT good.”  That is when Gladys fell off the machine…… laughing.




Thursday, April 14, 2016

Would You Rather?

Remember playing that game Would You Rather as a kid?  You know the one.  Would you rather eat a bug or touch a snake?  Would you rather walk on hot coals or pet a snake?  I would choose whatever didn’t have to do with being in the vicinity of the snake.  I have a phobia of snakes and would rather set my hair on fire than see, be around or especially touch a snake.  My friends and family always made sure to put snakes in the rather because they know how I feel about snakes.  I mean really I understand snakes are a necessary evil.  We would be overwhelmed with rodents if it weren’t for snakes.  I get it.  They serve a valuable purpose but please just let them do it far away from me.  I digress.  This is not about snakes, or rats or even being a kid.  This is about Would You Rather.

I have an autoimmune disorder. I won’t go into details other than I’ve had it most of my adult life and yes it’s a real illness.  I won’t call it a disease because that sounds icky and curable.   It is one of those illnesses that you can’t see.  I don’t walk with a limp or have huge sores all over my body.  It is invisible.  Believe me, just because you can’t see it doesn’t mean it isn’t there.  It causes extreme fatigue.  The kind of fatigue that makes you feel like all your energy just ran out your toes and spilled into a puddle on the ground.  You want to bend over, gather it up and put it back in your body but you can’t because you are just too damned exhausted.  Your body aches like you’ve been on a three day drunk and you are trying to sober up.  It is as if you have the worst case of flu you’ve ever had times one thousand.

 You don’t always know when it will flare but you can bet it will be at a most inopportune time.  Standing in the check -out line at Target you will feel a wave of exhaustion and then you are unsure of whether you can make it to the cashier before your body gives completely out and you will need to be carried out like a sack of potatoes.  Those of us who are experienced at this know the only thing to do is apologize to those around and abandon your cart and head for your car, where you sit until you can gather the energy to drive home.  You leave a contrail of your energy as you go.  Sadly with your energy so goes your cognitive abilities which means you must concentrate very hard on driving which drains more energy.  It is a vicious cycle the more you concentrate the more energy is expelled and the more energy you expel the more fog you create in your brain. 

During these flares you tend to play the Would You Rather game.  Only instead of would you rather ride an elephant or swim with stingrays or some fun activity you play would you rather take a shower or make breakfast.  You only have energy for one activity and you make these choices based on where you are in life.  You rationalize I took a shower two days ago, so I can make breakfast today.   Or you tell yourself I ate yesterday so I can shower today.  Yes, really.  You are really that fatigued.   You play this game with yourself all day long. 

 I say fatigued because fatigue is different than being tired.  Fatigue is wanting to do and go and be but you physically are unable to muster the energy.  Tired is from lack of sleep, or exertion.  The kicker is you are tired because you don’t sleep.  The fatigue keeps you from sleeping which feeds the exhaustion which exacerbates the fatigue. Not only are you fatiqued but you are tired and exhausted which makes your fatigue much worse.   This is a feeling that is deep in your bones and consumes your soul.  You try to read a book or watch a movie but you can’t follow the plot because it takes too much energy.  It is not depression or laziness it is fatigue. 


What’s your Would You Rather have an autoimmune disease or pet a snake?  Hand me that snake.