Rare disorders

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1. A German woman named “B.T” suffered an accident at the age of 20 that left her blind and also have Dissociative Identity Disorder (Multiple Personalities). One of her personalities, a teenage boy, who can see.

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Schizoid personality disorder (SPD) is a rare mental condition where the affected becomes detached and indifferent to social interactions. Here's what you need to know about SPD.

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Why the Zebra? The zebra was chosen to represent rare disease based on a quote from Dr. Theodore Woodward: “When you hear hoofbeats, think horses, not zebras.” & “When you hear hoofbeats behind you, don’t expect to see a zebra.” 1 in 10 people live with a rare disorder & there are over 7,000 rare disorders. So we need to think Zebra. https://www.cacpresearchfoundation.org/why-the-zebra

Why the Zebra? The zebra was chosen to represent rare disease based on a quote from Dr. Theodore Woodward: “When you hear hoofbeats, think horses, not zebras.” & “When you hear hoofbeats behind you, don’t expect to see a zebra.” 1 in 10 people live with a rare disorder & there are over 7,000 rare disorders. So we need to think Zebra. https://www.cacpresearchfoundation.org/why-the-zebra

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New patient journey infographic gives a glimpse into the diagnostic odyssey 1

The road to a correct rare disease diagnosis is far too long. This Undiagnosed Day, please share this infographic with your community and if you, or someone

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Fatigue, Achiness, Weakness, and Rash Are All Signs of Hypereosinophilic Syndrome — Health

Hypereosinophilic syndromes (HES) are a rare group of blood disorders associated with an abnormally high number of white blood cells called eosinophils. Eosinophils are important for your immune system’s response to infections and allergic reactions.

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