Petra is wondering when this dawn will beome day's Reviews > NeuroTribes: The Legacy of Autism and the Future of Neurodiversity
NeuroTribes: The Legacy of Autism and the Future of Neurodiversity
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by
Petra is wondering when this dawn will beome day's review
bookshelves: 2016-150-reviews, 2016-read, popculture-anthropology, psycho-neurology-crime, medicine-science, reviewed
Feb 27, 2016
bookshelves: 2016-150-reviews, 2016-read, popculture-anthropology, psycho-neurology-crime, medicine-science, reviewed
Finished. Very long review. Apologies. Skip to paragraph 3 ** for a horror story. The book was hard to rate. Some of it is as bad as a 1-star: excreble writing when he's giving far too much detail about the irrelevant (to the book) discoveries of the 18thC scientist Henry Cavendish whom he confidently diagnoses as Aspergers. 3 stars for most of it where the research is general too narrowly focused on too few people but quite in depth for them and 5 stars for giving away such appalling things as the typo in DSM III.
People forget that DSM is a for-profit company. It made $10M on DSM III. It had 25 committees of people searching for evidence of at least 25 different symptoms of autism. They were well paid as professionals. They consulted all kinds of people from teachers to those therapists qualified by attendance at a day's seminar in some hotel ballroom. In other words, everyone involved had a pecuniary interest in diagnosing autism in as broad a way as possible.
** But to the terrible typo. For those who might be autistic or have aspergers or might not but definitely seemed to have something, there was always PDD-NOS. The intention was that children being diagnosed would have a certain number of symptoms from list A, from list B and list C. However, instead of 'and' the word 'or' was substituted. The author reckons that 75% of all children diagnosed with PDD-NOS didn't in fact have anything.
Hans Asperger said, a long time ago and his words have been nearly forgotten, trampled on and now totally ignored, not to pathologise eccentricities! Just because someone is weird doesn't make them mental! Forget that, they're all on the spectrum now.
I was going to write a long and well-argued (hopefully) review of the book and of own my own opinion that Aspergers and Autism are not related at all. But I'll keep that for another time and stick to reviewing the book (view spoiler) . I do think that a lot of children so diagnosed don't have autism at all and grow out of it (or according to many therapists are 'cured') in much the same way that 90% or more of the kiddies put on Ritalin turned out to be normal adults. The incidence of ADHD in America in children is higher than anywhere else in the world. But the figures for adults are more or less the same in all the countries of the West.
By all evidence that I've seen and read, Aspergers is most often just a personality type, that is unless you want to diagnose almost the entirety of Silicon Valley and perhaps computer people in general with having it. Would we even be so advanced in electronics without these people? In any case, quite a few of the 'symptoms' of Aspergers are common to Prosopagnosia or face-blindness (I have it so I know) which is only just being recognised and most people with it just think they are bad at remembering people, but there is more to it than that.
If a child has hobbies he is really into, he's encouraged and parents' say things like, 'the way he's always taking apart things, you could see he's going to be an engineer'. If a child would rather just play with one good friend, then that friend gets invited over more for tea and parents' say he's a bit of a loner. If the child is really good at maths, parents praise him. But once he has a diagnosis of autism, suddenly he's not got a hobby he's mad keen on, no that's perseveration, his kind of sociability is now inability to communicate, his ability with maths is an unhealthy autistic obsession. And so it goes... It's a self-fulfilling diagnosis.
So overall, it's quite a good book on the history of the diagnosis of Austism and relatively recently, Aspergers. But it isn't really about Neurotribes at all.
A final thought. If we stopped thinking of neurotypical people as normal but thought of them as the most common personality type, or the most usual, then those who were different would not be abnormal, but unusual, rare or even, as say A+ is in the world of blood groups, just uncommon. There would still be those who were definitely abnormal, Autism wouldn't go away, but people who are different wouldn't be labelled and if there were enough of them in each group, might get special ed. As in - a group of nerdy loners that don't like playing games in the playground, could be taught together in their favourite academic subjects and everyone would be a winner. Teachers, children and society. In any case it's better than making them depressed and feeling bad about not fitting in by labelling them abnormal.
Notes on reading the book(view spoiler)
People forget that DSM is a for-profit company. It made $10M on DSM III. It had 25 committees of people searching for evidence of at least 25 different symptoms of autism. They were well paid as professionals. They consulted all kinds of people from teachers to those therapists qualified by attendance at a day's seminar in some hotel ballroom. In other words, everyone involved had a pecuniary interest in diagnosing autism in as broad a way as possible.
** But to the terrible typo. For those who might be autistic or have aspergers or might not but definitely seemed to have something, there was always PDD-NOS. The intention was that children being diagnosed would have a certain number of symptoms from list A, from list B and list C. However, instead of 'and' the word 'or' was substituted. The author reckons that 75% of all children diagnosed with PDD-NOS didn't in fact have anything.
Hans Asperger said, a long time ago and his words have been nearly forgotten, trampled on and now totally ignored, not to pathologise eccentricities! Just because someone is weird doesn't make them mental! Forget that, they're all on the spectrum now.
I was going to write a long and well-argued (hopefully) review of the book and of own my own opinion that Aspergers and Autism are not related at all. But I'll keep that for another time and stick to reviewing the book (view spoiler) . I do think that a lot of children so diagnosed don't have autism at all and grow out of it (or according to many therapists are 'cured') in much the same way that 90% or more of the kiddies put on Ritalin turned out to be normal adults. The incidence of ADHD in America in children is higher than anywhere else in the world. But the figures for adults are more or less the same in all the countries of the West.
By all evidence that I've seen and read, Aspergers is most often just a personality type, that is unless you want to diagnose almost the entirety of Silicon Valley and perhaps computer people in general with having it. Would we even be so advanced in electronics without these people? In any case, quite a few of the 'symptoms' of Aspergers are common to Prosopagnosia or face-blindness (I have it so I know) which is only just being recognised and most people with it just think they are bad at remembering people, but there is more to it than that.
If a child has hobbies he is really into, he's encouraged and parents' say things like, 'the way he's always taking apart things, you could see he's going to be an engineer'. If a child would rather just play with one good friend, then that friend gets invited over more for tea and parents' say he's a bit of a loner. If the child is really good at maths, parents praise him. But once he has a diagnosis of autism, suddenly he's not got a hobby he's mad keen on, no that's perseveration, his kind of sociability is now inability to communicate, his ability with maths is an unhealthy autistic obsession. And so it goes... It's a self-fulfilling diagnosis.
So overall, it's quite a good book on the history of the diagnosis of Austism and relatively recently, Aspergers. But it isn't really about Neurotribes at all.
A final thought. If we stopped thinking of neurotypical people as normal but thought of them as the most common personality type, or the most usual, then those who were different would not be abnormal, but unusual, rare or even, as say A+ is in the world of blood groups, just uncommon. There would still be those who were definitely abnormal, Autism wouldn't go away, but people who are different wouldn't be labelled and if there were enough of them in each group, might get special ed. As in - a group of nerdy loners that don't like playing games in the playground, could be taught together in their favourite academic subjects and everyone would be a winner. Teachers, children and society. In any case it's better than making them depressed and feeling bad about not fitting in by labelling them abnormal.
Notes on reading the book(view spoiler)
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Reading Progress
February 27, 2016
–
Started Reading
February 27, 2016
– Shelved
March 7, 2016
– Shelved as:
2016-150-reviews
March 7, 2016
– Shelved as:
2016-read
March 7, 2016
– Shelved as:
popculture-anthropology
March 7, 2016
– Shelved as:
psycho-neurology-crime
March 7, 2016
– Shelved as:
medicine-science
March 7, 2016
– Shelved as:
reviewed
March 8, 2016
–
Finished Reading
Comments Showing 51-55 of 55 (55 new)
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message 51:
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Anna
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Jul 24, 2019 02:19PM
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Thank you. It is a subject I feel strongly about, I didn't stick to the point though :-(
message 55:
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Petra is wondering when this dawn will beome day
(last edited May 29, 2021 07:38PM)
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rated it 4 stars
You made it very clear in all the comments you posted today that you disagree with everyone and most books too! My friends have their own experiences, as I do, and express their opinions in their comments. You are not more "right" and them "wrong" except as far as your own experience is concerned. Being diagnosed very late with Aspergers/Autism makes you an expert on yourself alone. Relating everything to your own experience only, negates different ones, and everyone experiences things differently. The DSM has changed greatly over the years as it considers different opinions, not even those editors think there is only one standard.