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962 pages, Hardcover
First published November 13, 2012
A child may interpret even well-intentioned efforts to fix him as sinister. Jim Sinclair, an intersex autistic person, wrote, "When parents say, 'I wish my child did not have autism,' what they're really saying is, 'I wish the autistic child I have did not exist, and I had a different (non-autistic) child instead.' Read that again. This is what we hear when you mourn over our existence. This is what we hear when you pray for a cure. This is what we know, when you tell us of your fondest hopes and dreams for us: that your greatest wish is that one day we will cease to be, and strangers that you can love will move in behind our faces."
The most important thing, often, is a belief in something bigger than one's own experience. The most common form of coherence is religion, but it has many other mechanisms. You can believe in God, in the human capacity for good, in justice or simply in love.
"Then a friend has a daughter who was a dwarf. She wondered whether she should bring up her daughter to consider herself just like everyone else, only shorter; whether she should make sure her daughter had dwarf role models; or whether she should investigate surgical limb-lengthening. As she narrated her bafflement, I saw a familiar pattern. I had been startled to note my common ground with the Deaf, and now I was identifying with a dwarf; I wondered who else was out there waiting to join our gladsome throng. I thought that if gayness, and identity, could grow out of homosexuality, an illness, and Deafness, an identity, could grow out of deafness, an illness, and if dwarfism as an identity could emerge from an apparent disability, then there must be many other categories in this awkward interstitial territory. It was a radicalizing insight. Having always imagined myself in a fairly slim minority, I suddenly saw that I was in a vast company. Difference unites us. While each of these experiences can isolate those who are affected, together they compose an aggregate of millions whose struggles connect them profoundly. The exceptional is ubiquitous; to be entirely typical is the rare and lonely state."
"Anomalous bodies are usually more frightening to people who witness them than to people who have them, yet parents rush to normalize physical exceptionalism, often at great psychic cost to themselves and their children. Labeling a child's mind as diseased--whether with autism, intellectual disabilities or transgenderism--may reflect the discomfort that mind gives parents more than any discomfort it causes their child. Much gets corrected that might better have been left alone."
[on schizophrenia] "In 2011, I was privy to a conversation between a biotech executive and James Watson, the Nobel Laureate who, with Francis Crick, discovered the structure of DNA, and who has a son with schizophrenia. The executive opined that schizophrenia research was diffuse and chaotic; he had a grand scheme for getting everyone to collaborate, so that people could each benefit from the knowledge of others. He had hoped he could inspire a breakthrough if he raised $400 milllion to address the problem. Watson said, 'We're nowhere near the stage where collaboration is useful. We don't know enough; there's nothing anyone has figured out for anyone else to build on. We need an insight, not a refinement. If I had your four hundred million dollars, I'd find a hundred bright young scientists and give them each four million. If I chose right, one of them would come up with something.'"
[on prodigy] "If Zhenya plays the piano with the fluidity with which I talk, he talks with the awkwardness with which I play the piano. His profound intelligence and complex thoughts are indicated but not expressed by conversation...I had been toying with the idea of music as a first language before I put it to Zhenya about a year after we met. I wanted to know something about the structure of a Rachmaninoff cadenza. 'This one?' asked Zhenya, and played six bars. On the tape of our meeting, the emotional transition is more suprising than the shift from speech to music: the notes contain all the feeling absent from the words...A yearning to be understood--the primary beauty of Zhenya's playing--distinguishes this from technical facility...I felt for the first time that we were in full conversation; it was as intimate as a confidence or an embrace."Whatever normality Solomon lacks, one must inevitably conclude after glancing through this book that he is exceptional also in speech. We have long known through our history that those with the "gift of tongues" have an outsized impact upon the masses. Solomon has this gift. Solomon demonstrates his gift in this book to begin people thinking in a new way on issues of disability and differentness, even homosexuality and transgenderism. Ignore him and what he has to say at your peril, for this man has sway.