JMIR MHEALTH AND UHEALTH                                                                                                                 Cheng & Hao
Viewpoint
     Case-Initiated COVID-19 Contact Tracing Using Anonymous
     Notifications
     Weibin Cheng1, MSc; Chun Hao2,3, PhD
     1
      Institute for Healthcare Artificial Intelligence Application, Guangdong Second Provincial General Hospital, Guangzhou, China
     2
      Department of Medical Statistics and Sun Yat-sen Global Health Institute, School of Public Health & Institute of State Governance, Sun Yat-sen
     University, Guangzhou, China
     3
      Health Information Research Center and Guangdong Key Laboratory of Medicine, School of Public Health, Sun Yat-sen University, Guangzhou,
     China
     Corresponding Author:
     Weibin Cheng, MSc
     Institute for Healthcare Artificial Intelligence Application
     Guangdong Second Provincial General Hospital
     466 Xingangzhong Road
     Guangzhou, 510317
     China
     Phone: 86 20 89168139
     Email: chwb817@gmail.com
     Abstract
     We discuss the concept of a participatory digital contact notification approach to assist tracing of contacts who are exposed to
     confirmed cases of coronavirus disease (COVID-19); the approach is simple and affordable for countries with limited access to
     health care resources and advanced technology. The proposed tool serves as a supplemental contract tracing approach to counteract
     the shortage of health care staff while providing privacy protection for both cases and contacts. This tool can be deployed on the
     internet or as a plugin for a smartphone app. Confirmed cases with COVID-19 can use this tool to provide contact information
     (either email addresses or mobile phone numbers) of close contacts. The system will then automatically send a message to the
     contacts informing them of their contact status, what this status means, the actions that should follow (eg, self-quarantine,
     respiratory hygiene/cough etiquette), and advice for receiving early care if they develop symptoms. The name of the sender of
     the notification message by email or mobile phone can be anonymous or not. The message received by the contact contains no
     disease information but contains a security code for the contact to log on the platform to retrieve the information.
     (JMIR Mhealth Uhealth 2020;8(6):e20369) doi: 10.2196/20369
     KEYWORDS
     COVID-19; surveillance; contact tracing; digital contact tracing; notification; anonymous; labor-saving; stigma; privacy protection
                                                                               Luca Ferretti and colleagues [1] modelled the potential effect
     Introduction                                                              of a digital contact tracing approach that involved training an
     Emerging evidence from the response to coronavirus disease                artificial intelligence algorithm to analyze COVID-19 cases and
     (COVID-19) in China [1], Singapore [2,3], and South Korea                 GPS-based population colocalization information. However,
     [4] has indicated that efficient contact tracing reduces the delay        the application of this powerful method may be hindered by
     between infection and isolation and accordingly prevents further          advanced technical requirements and violation of privacy
     transmission of the virus [5,6]. Contact tracing, which includes          regulations. Yasaka and colleagues [7] developed a
     contact identification, listing, and follow-up, is a crucial aspect       proof-of-concept smartphone app that allows users to create
     of epidemic control and is usually driven by health specialists.          “checkpoints” for contact tracing and also modelled the effect
     Contact tracing is a tedious task that requires enormous staff            of such an app under various adoption scenarios. This app
     resources, and it is not possible to fully implement contact              respects user privacy by not collecting location information or
     tracing in regions with widespread transmission. Alternatively,           other personal data. However, this approach relies on high levels
     some parts of this task can be substituted and even augmented             of vigilance and willingness to participate among a majority of
     by technology.                                                            the population. Another concept of “privacy by design”
                                                                               COVID-19 contact tracing via Bluetooth is being rolled out in
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     JMIR MHEALTH AND UHEALTH                                                                                                                          Cheng & Hao
     Europe [8] which relies on Bluetooth data exchange between                       themselves (Table 1). This tool serves as a supplemental contract
     two mobile phones to detect whether two people have come                         tracing approach to counteract the shortage of health care staff
     into sufficient physical proximity to risk infection, and notifying              while providing privacy protection for both cases and contacts.
     those who have been in contact with an infected individual who                   This tool can be deployed on the internet or as a plugin for a
     stays anonymous. This type of app has the same constraint of                     smartphone app. Confirmed cases with COVID-19 can use this
     requiring user cooperation to have any chance of success, and                    tool to provide contact information (either email addresses or
     it may be more useful in developed countries where smartphones                   mobile phone numbers) of close contacts; then, the system will
     are widely used.                                                                 automatically send a message to the contacts informing them
                                                                                      of their contact status, what this status means, the actions that
     Health care staff resources have been scarce worldwide during
                                                                                      should follow (eg, self-quarantine, respiratory hygiene/cough
     the COVID-19 pandemic, especially in developing countries,
                                                                                      etiquette), and advice for receiving early care if they develop
     where technological resources may also be inadequate. We
                                                                                      symptoms. The name of the sender of the notification message
     discuss a concept of a contact notification tool to assist tracing
                                                                                      by email or mobile phone can be anonymous or not. The
     of contacts who are exposed to confirmed cases of COVID-19;
                                                                                      message received by the contact contains no disease information
     this tool is simple and affordable for countries with limited
                                                                                      but contains a security code for the contact to log on the platform
     access to health care staff and advanced technology.
                                                                                      to retrieve the information. This approach can prevent reading
                                                                                      of the message by people other than the intended recipient. The
     Concept of the Tool                                                              personal identification data of both the confirmed case and their
     The core functionality of our concept is to provide a usable,                    close contacts will not be recorded during the process.
     labor-saving tool for contact tracing by confirmed cases                         Information provided by confirmed cases will also be encrypted.
     Table 1. Concept framework for the development of a tool for COVID-19 contact tracing.
      Concept                                 Descriptions and considerations
      Products                                Smartphone app
                                              Web-based platform
      Operating systems                       Windows and Apple
                                              App compatible with the latest smartphone operating systems
      Target users                            Suspected and confirmed cases with COVID-19
                                              People who receive messages from the platform
                                              People who are concerned about COVID-19 infection
                                              People who need guidance regarding the control and prevention of COVID-19
                                              Policy makers and public health specialists
      Functionality                           Contact notification (eg, email, SMS text messages, autochatbot); can be anonymous or not
                                              Shared exposure query database
                                              COVID-19 information hub (optional but strongly recommended)
      Application scenarios                   Cases when in-person investigation cannot be implemented
                                              Regions and countries where manual contact tracing is not in place
                                              Supplement to manual contact tracing, especially in regions of widespread transmission where people with no
                                              or mild symptoms are self-quarantined at home
      Navigation and use of the tool          Clear definition of close contacts of COVID-19
                                              Guide for generation of close contacts
                                              Official email account or telephone number
                                              Template notification messages
                                              Rights and responsibilities
                                              Online consultation
      Other considerations                    Paramount protection of personal privacy
                                              Strict adherence to general data protection regulations, careful oversight of data, and effective protections around
                                              the use of data
                                              Guaranteed equity of access to testing and treatment
                                              Careful design and monitoring to prevent malicious use
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     JMIR MHEALTH AND UHEALTH                                                                                                             Cheng & Hao
     Another key functionality is a shared exposure query database          United States and United Kingdom. This tool can help save
     for people whose close contacts cannot be reached by                   health care resources, freeing staff to provide more urgent testing
     messaging. This design is a crowdsourced database that allows          and clinical care for patients with COVID-19. Although mild
     patients to input their trajectory information, including public       cases who self-isolate at home may not associated with the
     transportation used and times and locations of the patient’s           spread of COVID-19, promptly informing contacts of possible
     movement prior to and after onset of symptoms. Trajectory              risks to take proper precaution measures seems to be necessary
     information can either be provided by the confirmed patient or         and reasonable during a disease outbreak.
     obtained during confirmation and uploaded by an
     epidemiologist. This trajectory information can be visualized          Considerations for Successful Use
     on a map, which may be useful for the public to determine their
     possible exposure to COVID-19. The tool should be simple and           Several considerations should be taken into account to guarantee
     easy to access so that it can be used in areas with limited            the successful use of this tool. First, the main purpose of this
     resources. For example, people can visit the website and search        tool is to provide a supplementary approach for patients with
     by date and route for possible close contact with a patient with       COVID-19 to inform their friends, colleagues, and neighbors
     COVID-19. This tool can also serve as a hub to access                  about possible contact while maintaining their privacy. Second,
     instructions and information about COVID-19 and health                 an accessible COVID-19 testing and care network is needed to
     services.                                                              guarantee equity of access to testing and treatment to meet the
                                                                            surging demand and relieve the anxiety of people who have
     Benefits of the Tool                                                   received notifications and are anxious about possible infection.
                                                                            Third, privacy protection for both the sender and the recipient
     We envisage that this tool will be useful for people who are           are equally important. The General Data Protection Regulation
     concerned about personal privacy and stigmatization related to         must be strictly followed, and careful oversight and effective
     COVID-19. Persons of Asian descent have faced stigma and               protection of the use of data must be ensured. Last, we need to
     discrimination in many places [9]. A person can also be                be alert to possible malicious use of this tool. People who do
     subjected to stigma after they have been released from                 not have COVID-19 may use the system to send messages to
     COVID-19 quarantine even though they are not considered to             others for evil purposes.
     be at risk of spreading the virus to others. Several digital contact
     tracing approaches have been explored worldwide [10]. Despite          Conclusion
     the potential of digital contact tracing, its potential impact is
     limited because it may conflict with patient data privacy              The successful application of this tool relies heavily on public
     regulations. Our approach is different from other digital contact      social responsibility and credibility, and it remains to be seen
     tracing methods in two ways. One is that it can be function as         if the public would adopt such a tool and what mechanisms are
     a website that does not need to be installed on the user’s             required to prevent misuse. This is a simple tool that does not
     smartphone. This will substantially lower the threshold for users      require complicated computer techniques despite strict user
     to access the tool. The other is that no data processing,              privacy protection design with respect to countries and regions.
     recording, or analysis occurs on the central server, which reduces     Additionally, this tool can help avoid coercive surveillance,
     concerns regarding personal privacy.                                   facilitate the allocation of health resources, and prioritize clinical
                                                                            service for patients with COVID-19. Information obtained from
     Meanwhile, this approach can be used as a supplement contact           the platform can also increase our understanding of the
     tracing tool in regions of widespread transmission where many          epidemiology of COVID-19.
     undiagnosed mild cases are self-isolating at home, such as the
     Conflicts of Interest
     None declared.
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     JMIR MHEALTH AND UHEALTH                                                                                                               Cheng & Hao
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     Abbreviations
               COVID-19: coronavirus disease
               Edited by G Eysenbach; submitted 18.05.20; peer-reviewed by F Zhong, D Wu, E Da Silva; comments to author 27.05.20; revised
               version received 02.06.20; accepted 04.06.20; published 22.06.20
               Please cite as:
               Cheng W, Hao C
               Case-Initiated COVID-19 Contact Tracing Using Anonymous Notifications
               JMIR Mhealth Uhealth 2020;8(6):e20369
               URL: http://mhealth.jmir.org/2020/6/e20369/
               doi: 10.2196/20369
               PMID:
     ©Weibin Cheng, Chun Hao. Originally published in JMIR mHealth and uHealth (http://mhealth.jmir.org), 22.06.2020. This is
     an open-access article distributed under the terms of the Creative Commons Attribution License
     (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium,
     provided the original work, first published in JMIR mHealth and uHealth, is properly cited. The complete bibliographic information,
     a link to the original publication on http://mhealth.jmir.org/, as well as this copyright and license information must be included.
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