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“You’re not fun anymore”
This was one of the last things a friend said to me before ghosting me over my disabilities & covid caution.
My wearing a mask? Not fun
My being bedbound? Not fun
My inability to travel? Not fun
She then said “I don’t know how you can live this way”
Almost everyone with chronic illness experiences this at some point.
Many ableds want us to hide our disabilities.
They want us to be the same as we were before because it makes things more comfortable for them.
If we show them the depths of our suffering?
They can’t cope.
They see us as better off dead.
Let me be perfectly clear… we live this way because we have no choice.
No one taps you on the shoulder and asks if you’re ok with becoming disabled.
No one gets your consent before stripping you of your health and leaving you bed bound.
It just happens. It can occur in the blink of an eye, and there’s not a damn thing we can do about it.
We can’t just go to the doctor and demand to be “fixed”.
We have to adapt. We have to grieve. We have to learn to accept our new life and find ways to cope.
Is it fun? Of course not.
Is it necessary? Yes.
Does it mean we aren’t fun anymore? No.
We’re still the same people we were before we became ill, our bodies just don’t function the way they used to.
We still experience joy and sadness. We still crave human connection.
People who decide we aren’t “fun anymore” are missing out on all the joy and friendship we have to offer.
They’re also denying the reality of the human condition:
Disability happens to almost everyone eventually.
It’s a minority group you can join at any time.
Chronic illness isn’t “fun”. I’m not going to lie and say otherwise.
It’s a difficult life filled with pain, sadness and a lot of disappointment.
But there can also be so much joy, and my former friend’s inability to see that is a poor reflection on her, not me.
We must stop treating people like commodities.
We must stop acting like their value is tied up in what they can produce or their physical ability.
We all have value.
We all have worth.
We all have things that light us up.
I was angry at this person for a long time.
I did so much for them over the years and then got tossed aside like garbage when I was no longer useful.
I’m trying to let the anger go.
I’m trying to remind myself that anyone who can’t love me as I am isn’t worth my time.
It’s not easy.
The pain we experience when people abandon us is real and adds insult to very real injury.
But I promise you there are better days ahead.
There are people who will stick by you no matter what.
People who won’t make you hide your pain and suffering.
There are people who will show up for you and accept you as you are.
Who will wear a mask, hold your hand in the hospital or visit you when you’re laying in bed.
Cherish those people. Nurture those relationships. Make sure they know how much it means to you.
If you’ve read this far and have a disabled person in your life, please reach out to them.
Say hi. Ask how they are. Offer to visit or provide some help. Show up for them.
Never underestimate the power of a small act of kindness, and refuse to leave people behind.
#disability #ableism #chronicillness #eugenics #inclusion #COVIDisAirborne
Imagine if we just believed disabled people?
If we trusted that they were the experts in their bodies?
If we listened when they said they could do something, and supported them when they said they couldn’t.
If we gave accommodations and assistance without judgment?
That’s true inclusion.
It’s Disability Pride Month and I’m mourning one of our elders…. Alice Wong.
Every year on July 1st she would talk about disabled rage.
She would remind us that it’s ok to be angry at the eugenicist, capitalist, patriarchal system we’re trapped in.
She would encourage us to embrace our disabilities AND our anger.
She would give us permission to be our true selves… to refuse to hide for the comfort of others.
She passed away last November but left an indelible mark on our community.
I want to honour her this month by continuing the tradition she started and inviting all my disabled peers to be proud, unapologetically themselves and angry if that’s what they feel.
Don’t hide.
Don’t smile and say “I’m fine” when you’re in pain.
Don’t settle for being treated as “less than”.
Don’t let the bastards grind you down.
#disability #ableism #eugenics #chronicillness #patriarchy #capitalism
I’ve had a huge health setback following my move.
My level of function is half what it was before.
The hospital said they would connect me with “resources” to assist with activities of daily living.
There’s a 1.5 year wait list.
MAiD was offered in under a month.
I don’t want to die.
I don’t want to allow the government to euthanize me.
But this is eugenics I’m always talking about.
I need assistance to survive. Help with cooking & cleaning.
The supports don’t exist unless you have a ton of money.
When you try and push your body to do it yourself, you get worse.
If you end up in hospital, they suggest assisted dying.
Am I “free” to say no? Of course.
Does it feel that way when nothing else is being offered?
Not at all.
I’m being denied the support to live while “offered” death.
That’s coercion.
It’s eugenics.
The system has decided I’m not worth saving.
I’m not alone in this.
Disabled people urgently need allies and support in this fight.
And I need some home care.
#eugenics #ableism #maid #disability #poverty #chronicillness #assisteddying
@device You have stomach left after you whittle that down? Talk to me about the #DoubleEmpathyProblem and what you can do to get #Allistic humans to understand that 50% of this, alongside #TheoryOfMind and #HolisticSensoryDesign belong to them and they've been studiously pretending it doesn't exist and blaming us for #Communication #Skill #Deficiency in literature and life alike when reality is #ProjectionConfession #Bias and frankly, #Eugenics alongside #Supremacist thinking. 🪔🖖📣
Nothing prepares you for the loneliness that comes with being chronically ill.
The grief of realizing the medical system can’t (or won’t) help you.
The pain of being abandoned by family & friends.
The isolation of knowing we’re in a eugenics nightmare that most don’t see until it’s too late.
I’ve got a friend who was non functional after a few hours with a GI bug.
I gently pointed out their symptoms matched the ones I deal with every single day.
Their response?
“You’re used to it. It’s not the same”.
That’s how disabled people are treated in a nutshell.
Our suffering is minimized.
The ableds suffering is always worse. Always more severe. Always “worthy” of pity. Always random and never their fault.
Our suffering is something to be adapted to. Something we could fix if we “tried harder”. Something we brought on ourselves.
It’s a disgusting double standard that exists to help the non disabled avoid facing the uncomfortable reality that one day they will lose their health.
It doesn’t matter how fit you are, how hard you work or that you do everything “right”.
You can become disabled at any time
Blaming the disabled for losing their health early in life won’t stop bad things from happening to you.
It’ll just help prop up a system that sees people as worthless the second they become “non productive”.
It’ll just assist the elites in developing eugenicist policies.
Almost everyone becomes disabled.
Disability justice impacts all of us.
Fight with us for better social supports. Better safety nets. Universal healthcare. Paid time off.
Don’t leave us behind.
New modeling from The Lancet suggests the USAID funding cuts will kill 14 million people.
Many of them are children.
600,000 have already died.
The man who gutted the program?
Elon Musk. The world’s first trillionaire.
He has a trillionaire dollars and is murdering the poorest people on earth.
He should be in jail.
Billionaires and trillionaires should not exist in a world where millions die from poverty every year.
https://www.thelancet.com/journals/langlo/article/PIIS2214-109X%2825%2900281-5/fulltext
#usaid #disability #ableism #eugenics #musk #capitalism #poverty #publichealth #uspol
"Thielbilly Elegy: How Peter Thiel Created JD Vance"
"JD Vance didn't climb to the heights of political power on his own".
"Thiel helped engineer every step of Vance's rise to power... from his first job in Silicon Valley to his first venture capital fund to his Senate & the Vice Presidency".
"If Vance becomes president... Thiel—his literal creator—becomes the most powerful man in the world."
https://www.youtube.com/watch?v=XRWF95i9zj8
#USPol #EUPol #JDVance #Thiel #TechFascism #news #democracy #Eugenics .
It took over 14 months, but Rodney Taylor has finally been released from ICE custody.
A disabled double amputee, Rodney has been in the US since he was two years old.
ICE grabbed him, denied him access to his prosthetic legs and put him in solitary.
Now that he’s out he’s started advocating for disabled immigrants and everyone having their health jeopardized in the camps
What was done to Rodney should have caused worldwide uproar … yet almost no one told his story.
We must do better.
https://www.theguardian.com/us-news/2026/may/23/rodney-taylor-amputee-ice-detention-speaking-out
#uspol #fascism #ice #abolishice #disability #immigration #eugenics #ableism
Listen more to the voices of pregnant oppressed Indigenous women & less to voices of unoppressed non-Indigenous women. The former have valid, justified fears of hospitals because of the fact that countless pregnant Indigenous women received involuntary surgeries to render them unable to give birth again. Others had their babies stolen from them, without consent or any prior consultations. I've listened to many personal horror stories about this - from my mid-20s to now.
Canada only ended its cultural genocide/eugenics on Indigenous on paper. They never really stopped their attempts to genocide Indigenous peoples. I am not being dramatic about this. It is a fact. A fact that almost all settlers conveniently choose to ignore.
#ForcedSterilization #IndigenousRights #Canada #HealthCare #SystematicRacism #CanadaFails #Eugenics #Medical #HospitalRacism #Genocide #CDNpoli
Companies referring to people as “Lower value human capital”
Welcome to end stage capitalism
Add this term to others such as “economically inactive” & “useless eaters”
The disabled, homeless, elderly and children fall in these categories too
Worth must never be measured by productivity.
https://news.sky.com/story/standard-chartered-to-replace-lower-value-human-capital-with-ai-13545809
#fuckai #capitalism #patriarchy #ableism #eugenics #disability
Report: A Lancet study says millions of people are left to die when politicians gut aid systems, eg, Trump with USAID.
"Some 239 million people are estimated to need aid in 2026, but only a third of that figure may actually receive it."
Recall the billionnaires' eugenicist credo:
"Even if billions perish in the coming climate catastrophe.. we shouldn’t be too concerned".
#USPol #EUPol #USAID #ClimatePurge #news #racism #eugenics #fascism .
RE: https://mstdn.social/@DemocracyMattersALot/116573632316555157
Read this and weep. I hope that our collective rage against this politics of #eugenics and hate matches and ultimately overcomes the scorn heaped upon the world by #Trump, #RFK, and the #fascists who are currently in charge. These people who have cut #NIH funding for #cancer, #dementia, & other #diseases that cause such suffering do not deserve the medical treatment that comes with the #research they attack and refuse to fund. It's a shanda.
That path to curing pediatric cancers is closing. Not because we have run out of ideas or new treatments to try, but because the Trump administration made a choice to cut funding for pediatric cancer research and undermine the institutions that once made America the envy of the world when it came to health innovation.
Analysis: The Epstein Files confirmed that "sexual abuse, elite wealth, big tech, & post-democratic ideology have been operating as a single system."
Thiel invests in Facebook, co-founds Palantir, receives $40 million from Epstein & advocates replacing democracy with corporate rule.
Elon Musk spends $300 million to elect Trump, then uses US diplomatic power on behalf of his own platform’s commercial interests.
Over 40 women testified that this neurologist sexually assaulted them
He performed unnecessary pelvic and breast exams
A top neurologist testified it was not medically indicated
He lost his medical license.
The judge let him off. Ignored every single victim. Ignored the female expert doctor. Ignored the medical board and common sense.
Burn it down.
#misogyny #medicalmisogny #fuckthepatriarchy #patriarchy #eugenics
Trying to move into a new apartment while mostly bedbound is nearly impossible. I would not be doing it if I had any other choice.
Baseline is shattered.
Budget is decimated from all the surprise expenses, many of which are related to my poor health.
It’s another example of the “crip tax” that we don’t talk about enough.
I haven’t been able to write so my newsletter has been sitting untouched and breaking my heart
I can barely keep up with messages and emails
I sincerely hope this setback is temporary and once I’m safely housed my writing and cognitive function return… but this is the reality when chronically ill
Every setback can be permanent.
Your baseline is not guaranteed.
You must guard it at all costs and protect what’s left of your health.
Take breaks. Set boundaries. Listen to your body.
It’s so hard to do, but it’s also incredibly necessary.
Respirator masks like N95s will prevent hantavirus infection.
Clean air will drastically reduce hantavirus spread.
We already have the tools, people just need to use them.
Public health requires everyone’s participation.
“You do you” gets people killed
#hantavirus #publichealth #wearamask #n95 #ableism #eugenics #chronicillness
A 24 year old Indigenous Canadian woman named Heather Winterstein died of sepsis after ER staff dismissed her repeatedly and labeled her as a homeless addict.
There’s an inquest into her death that shows her falling to the floor in the ER and still being ignored.
Bias, bigotry, misogyny and racism can determine the care you receive in the hospital .
I was Heather’s age when I experienced a life threatening complication after my hysterectomy
Like her I was sent home from the ER multiple times
Told I was exaggerating.
Attention seeking
Deemed a trouble maker
On my fourth visit my then boyfriend had to carry me in because I couldn’t even sit up
He had to raise his voice and cause a scene
He said he was refusing to take me home to die, and he firmly believed that’s what would happen
Triage called security who threatened to call police
They would rather arrest him than treat me
Thankfully a doctor heard him yelling and came to look in on me and instantly realized something was wrong
Within hours I was being rushed to a larger hospital for emergency surgery
I had been bleeding internally the entire time and developed a huge infected abscess
Had they treated me earlier, my survival odds would have been much better
Instead I very nearly lost my life and ended up spending a month in the hospital
I was one of the lucky ones
No one’s survival should ever be based on luck, race, money or privilege
Yet more often than not those things determine who lives and who dies
My heart is heavy for Heather and all who knew and loved her
We must do better
We must believe and listen to patients
We must strive to treat everyone equally
#disability #chronicillness #ableism #eugenics #healthcare #bias
@avilewis I wish you had worn an N95 mask to show all #PeopleWithDisabilities that you care more than other politicians about #DisabledLives & are against #eugenics in #PublicHealth policies. We have been failed by every single political party in Canada & are treated like none of our lives matter to any of you politicians.
#CDNpoli #FailureToProtect #CovidNeverEnded #CovidStillKills #LongCovidHealthCrisis #NDP #DisabledLivesMatter #CovidIsNotOver #CovidSafety #UnmaskedPlagueSpreaders #DoBetter #StopEugenics #Disability #Covid #LeadByBetterExample
@avilewis Bonnie Henry removing mask mandates resulted in my Dad getting infected by #unmasked hospital staff. He died from covid cardiac arrest in 2023. This was government sanctioned #murder by #eugenics policies. Every single political party has failed to protect citizens, especially most vulnerable ones. Every single politician has normalized eugenics. That will end up costing provincial & federal governments, millions, if not billions to deal with long covid & many other preventable health issues. You have an opportunity to do better & lead by a more humane, not eugenics, living example. Start by normalizing wearing masks indoors again.
#CDNpoli #FailureToProtect #CovidNeverEnded #CovidStillKills #LongCovidHealthCrisis #NDP #DisabledLivesMatter #CovidIsNotOver #CovidSafety #UnmaskedPlagueSpreaders #DoBetter #StopEugenics #Disability #Covid #LeadByBetterExample #YouShouldKnowBetter #N95sSaveLives #MasksSaveLives
RE: https://kolektiva.social/@arrrg/116415864015613464
🎯 #StochasticEugenics is still #eugenics
We're "overhead".
The people who don’t view housing as a human right are those who believe they will always have housing.
They can’t fathom becoming disabled, losing their savings or their support network.
They can’t comprehend having everything ripped away from them.
They think they’re the exception.
They’re not.
People don’t plan for homelessness or disability.
It just takes one accident, illness or stroke of bad luck.
We all need and deserve a safety net.
Why the hell am i suddenly seeing #eugenics adds on websites?
also Sponsored content on sites with this shit?
I have not looked up anything around it... nor do i use targeted adds.
Thats deeply troubling is it not?
This:
In the year of the city 2274, the remnants of human civilization live in a sealed city beneath a cluster of geodesic domes, a utopia run by computer. The citizens live a hedonistic lifestyle, but when they turn 30 must enter the "Carrousel", a public ritual that destroys their bodies, under the pretense they would be "Renewed" or reborn.(Logans Run)
and this:
In the year of the city 2274, the colony of human beings on Mars live in a sealed city beneath a cluster of geodesic domes, a utopia run by generative AI. The citizens live a hedonistic lifestyle, but when they turn 30 must enter the "Cloud", a public ritual that destroys their bodies, under the pretense their consciousness would be uploaded to a computer and live forever.#AI #GenAI #GenerativeAI #LLM #Mars #eugenics #LogansRun #ScienceFiction #dystopia
1. Economists from the physiocrats (18th century) onward promised society freedom from material deprivation and hard physical labor in exchange for submitting to an economic arrangement of society
2. In a country like the US, material deprivation and hard physical labor have been significantly reduced since then:
Francis Galton, pioneering figure of the eugenics movement, believed that good research practice should consist in “gathering as many facts as possible without any theory or general principle that might prejudice a neutral and objective view of these facts” (Jackson et al., 2005). Karl Pearson, statistician and fellow purveyor of eugenicist methods, approached research with a similar ethos: “theorizing about the material basis of heredity or the precise physiological or causal significance of observational results, Pearson argues, will do nothing but damage the progress of the science” (Pence, 2011). In collaborative work with Pearson, Weldon emphasised the superiority of data-driven methods which were capable of delivering truths about nature “without introducing any theory” (Weldon, 1895).From The Immortal Science of ML: Machine Learning & the Theory-Free Ideal.
I've lost the reference, but I suspect it was Meredith Whittaker who's written and spoken about the big data turn at Google, where it was understood that having and collecting massive datasets allowed them to eschew model-building.
The core idea being critiqued here is that there's a kind of scientific view from nowhere: a theory-free, value-free, model-free, bias-free way of observing the world that will lead to Truth; and that it's the task of the scientist to approximate this view from nowhere as well as possible.
#AI #GenAI #GenerativeAI #LLMs #science #DataScience #ScientificObjectivity #eugenics #ViewFromNowhere
The present perspective outlines how epistemically baseless and ethically pernicious paradigms are recycled back into the scientific literature via machine learning (ML) and explores connections between these two dimensions of failure. We hold up the renewed emergence of physiognomic methods, facilitated by ML, as a case study in the harmful repercussions of ML-laundered junk science. A summary and analysis of several such studies is delivered, with attention to the means by which unsound research lends itself to social harms. We explore some of the many factors contributing to poor practice in applied ML. In conclusion, we offer resources for research best practices to developers and practitioners.From The reanimation of pseudoscience in machine learning and its ethical repercussions here: https://www.cell.com/patterns/fulltext/S2666-3899(24)00160-0. It's open access.
In other words ML--which includes generative AI--is smuggling long-disgraced pseudoscientific ideas back into "respectable" science, and rejuvenating the harms such ideas cause.
#AI #GenAI #GenerativeAI #LLMs #MachineLearning #ML #AIEthics #science #pseudoscience #JunkScience #eugenics #physiognomy
Rather than get mired in the thought-terminating arguments around political parties or political factions, though, I think we'd do well to reflect on what sorts of other ways of thinking feed into this one: the measured life; standardized testing; the internet of things (sensors); tracking apps of various kinds; electronic health records; data science as a profession and Big Data generally; predictive modeling; generative AI and other optimization-oriented or productivity-promising technology. All of these function to render life as an object of knowledge in one way or another. All of them trace their origins through eugenics and the patterns of thought that led to it, and all of them threaten to enable and enhance further eugenic thinking. This is not to say these things are always all bad; this is meant to be a reflection on what exactly they're for.
Why read the number of steps your FitBit told you you took today, unless there were some sense in which you want your future self to be better than your present self? It's not an accident that this is called "physical fitness", "fitness" being the Darwinian concept describing which organisms should survive. Why subject children to standardized testing unless there were some belief it made them better students? To what end tends to be left out. Why adopt a technology meant to improve productivity, unless you're of the belief that improvement (optimization) were even possible?
Generally speaking, if one is able to bring oneself to believe that a human being is made better by a data-informed technical intervention, isn't one playing the same game as these anti-autism anti-vaxxers, just with different terminology? If your answer to this provocation is that your data is better than theirs or that you're more aligned with reality than they are--some variation of "the science is on our side"--you've ceded the territory: this is more of the same optimization logic that brought us to this point to begin with. I think we have no choice but to do better than this.
That's my reflection anyway.
#USPol #autism #vaccination #vaccines #antivax #eugenics #BigData #AI #PredictiveModeling #DataScience #science
Predatory Data
Eugenics in Big Tech and Our Fight for an Independent Futurehttps://bookshop.org/p/books/predatory-data-eugenics-in-big-tech-and-our-fight-for-an-independent-future-anita-say-chan/21312207
There's a nearly straight line from 20th century eugenics to 21st century big data and data science. Google, the bastion of big data, was founded by two Stanford graduate students; Stanford was founded by a eugenicist and instituted eugenics principles. Francis Galton--inventor of the regression analysis that forms the backbone of data science--was "hot or notting" London with a counter hidden in his pocket long before Harvard-age Zuckerberg recuperated the same with the favorite quantification technology of our day, computers.
"The measured life" is a eugenics concept. All these doohickeys that collect data with the promise of making your body a bit more "fit"? Eugenicist in origin. Eugenics is about "optimizing" the physical "fitness" of people. Apps that help you learn, make you more mentally "fit"? Also have origins in eugenics. Eugenics is also about "optimizing" the mental "fitness" of people. Hence the obsession with IQ.
This isn't to say you shouldn't take care of your body and mind in whichever ways you want. I do think it's important, though, to periodically reflect on, and ask yourself hard questions about, what's driving those efforts and what the goals really are. Part of understanding why eugenics thinking is resurging so hard and fast in the US is understanding its roots, where that type of thinking comes from. It's also important to reflect on where the apps and devices you use to achieve these goals come from. How many come directly or indirectly from Stanford, which was built by eugenicists to achieve eugenic goals, and its offshoots?
Trump and Musk are literally repeating themes from Francis Galton's eugenics out in the open now. They're confident they can get away with it without pushback because the ground was laid long ago. But eugenics didn't suddenly become bad again because coarse people started saying the quiet part out loud. It's always been bad thinking, bad science, and bad morality.
#DataScience #eugenics #BigData #fitness #US #IQ #Trump #Musk
It's a short step from "extinction"/"unsuccessful" ("low fitness") to "elimination". The latter word is what is meant. The passive voice/inevitability framing purposely obscures the agency of the literal, nameable human beings who are attempting to bring this reality into existence. "Embrace #AI or we will do our best to eliminate your profession, your livelihood, and you" is more precise and brings out the hostility of the threat these corporate statements attempt to hide.
This dehumanizing and ultimately eugenic idea frequently hides in plain sight like this. Sometimes evolutionary or genetic language and metaphors are used. Don't accept it. These folks may try to create this reality but that doesn't mean they'll succeed and it doesn't mean we need to surrender and let them succeed.
Mars does not have a magnetosphere. Any discussion of humans ever settling the red planet can stop right there, but of course it never does.From https://defector.com/neither-elon-musk-nor-anybody-else-will-ever-colonize-mars...
The South Pole is around 2,800 meters above sea level, and like everywhere else on Earth around 44 million miles closer to the sun than any point on Mars. It sits deep down inside the nutritious atmosphere of a planet teeming with native life. Compared to the very most hospitable place on Mars it is an unimaginably fertile Eden. Here is a list of the plant-life that grows there: Nothing. Here is a list of all the animals that reproduce there: None.
Life on earth writ large, the grand network of life, is a greater and more dynamic terraforming engine than any person could ever conceive. It has been operating ceaselessly for several billions of years. It has not yet terraformed the South Pole or the summit of Mount Everest. On what type of timeframe were you imagining that the shoebox of lichen you send to Mars was going to transform Frozen Airless Radioactive Desert Hell into a place where people could grow wheat?